prayers,hope,faith.....

[lordwriothsley]

Amy I'm so glad your back and glad to hear that you had a wonderful trip. You still continue to be in my thoughts and prayers love.

Hugs to you! 

[Lady_Glorianna]

Good that you are back and that for all intents and purposes the trip went well. In terms of the MRI's, I think you can call them and ask them to send you the copies.  I can say I kind of know how you feel about the results thing. I still don't have my results but in my case I fear they will show nothing because I know that this is not normal and I would like an answer but this is about you not me. Just hang in there Amy! You know we are all behind you

[white trillium]

Happy to hear that you're back home and had a decent trip.  Hang in there and know that there are a lot of people pulling for you.

[Lady Amy of York]

Today  was  a  bad day.  I  was in the  worse pain i have  ever  been in with  my back. Thank goodness i still had  some prescription  Vicodan in the house  from last year when i had  my sugery.  I'm not for one  to go throwing  down prescription pain meds(  i'll take   tylenol, or  Aleve ), especially  ones  from last year, but  i was  desperate. 
I  did  not  want  to  go  to the  emergency  room. For  one  i  could   barley move  and  get  out of  bed, so I  spent both of  the  day in  bed  cause  i  could  not even  move  without  being in  pain. On  a pain scale  from  1-10, 10 being the  worse  it  was  a  10 plus  !
  Sitting here now  with the laptop in bed, trying to keep  my mind  off  the pain.Not as  strong  as  this  afternoon, but still  uncomfortable. Hoping  to get sleepy  enough  so i can fall asleep.  I  don't want  to take  another  pain  pill, but I  might.

      I  had  my  husband  call   the  neurologist  in Rochester  today  and he spoke  to  the  receptionist. He  asked  if  they had  received  the  MRI  reports  and  was  told  that  they  did, but  that he  would  nedd  to speak  to  the  doctor.  He  asked  if  the  doctor  could  call us,  but  we  never heard  anything.

Being that  this  is  a hospital   that    the  neurologist  i am  seeing is  at, i am sure  that  they  must have  a neurologist  on staff on the  weekends.  so  iam  going  to try calling  there  gain  tomorrow   and  seeing if  someone  could  tell me  if  anything  showed up in  my  spine  on  my  MRI's. Wondering if  one of  the  bulging  discs  that i supposedly have    could  be  pressing on  some  major  nerves.

anyway,  trying to think positive,  etc..   Some  days   are harder  then  others, but i am determined  to  lick  this.   I  just  feel beaten  down  right  now.  I can tolerate  pain, but  not like  what i had  today.

Thanks  for  all the prayers  thoughts, hugs, laughs.  They  really help  keep  me  going.   You guys/gals  are  the  greatest !

[Rani Zemirah]

Honey, I'm so sorry you're hurting so much!  I wish there was something I could do for you...  I'm glad you're keeping after the docs, though, because it seems like they never volunteer info, you have to drag it out of them!  I'm praying that you'll find out what's going on in the next day or so, and that it turns out to be something fairly easily fixed, dear! 

Maybe you need to ask hubby for a massage so you can relax enough to sleep?

Try to get some rest tonight!  You're in my thoughts...

[Lady Amy of York]

Thanks  hon.  Yea, i had  my husband Tim try to  massage  my back earlier, but it  hurt  too  bad, for  him to even  touch it.    I'm  going  to take   a pain pill and  try  to  get  some  sleep.
   and if  it is  not better tomorrow  i guess i will have  no choice  but  to go  to the  ER, cause i  can't  even stand  up, it hurts  so bad. 
   
   and  if  not  tomorrow  I  will deffinitely  be  pestering  the  neurologist  on  Monday  to get  my results.

I tell you, it is  times  like  these  you appreciate  the  good  days.  What keeps  me  going  is   my faith,  and   my family  and   my  friends, and  i think of  our  brave  men  and  woman  laying  in army  hospitals,  some  of  them   in  much  more  pain  then  i am   .

[white trillium]

Sorry to hear that you are hurting so much, and, also, wish there was something I could do to make things better.

I hope things take a turn for the better.

[LadyOren]

It's good to see you staying positive.  Keep it up.  You have a lot of prayers coming your way.  Peace and blessings with lots of hugs!

[Lady Amy of York]

Thanks  everyone.   Yesterday   when i woke  up  the  pain had  subsided  enough  that i was  able  to  stand  up, and  walk about without  being  in agony, which i was  grateful for, cause  friday was  no  fun at all.
Today  though when i  woke  up though the pain  was  back.  I  did  try  caling the  neurologist office yesterday  and  just got  a answering  service  so i will  call tomorrow.
 
Yes, i am trying to think positive, but this is really starting to get to be a  royal pain in  the  you  know  what.  It really hurts.   I want my strong body back . I played  sports in highschool, i danced, horseback  rode.  Ugh, now look at me.  sigh  !

[Lady Amy of York]

  I ready to scream, shout and  cry  right  now. I have  been in   pain  since  friday  with  my back.  I  have  placed  several calls into  my neurologist  requesting  someone  call  me  and  no calls  back,  so finally just now  i called gain, and  refused  to hand  up until  i talked  to someone.Finally  got  a  doctor  to talk  to me.

Very, short, brief coversation. She was talking so fast, i could  barely get a  word  in.
the bottom story...she  said the  brain scan was  fine, and  the  spine  scan  showed  nothing that she  could  remark  on. We will see you in September  for  your  follow  up.

I said  what about  the  bulging discs.

she  said  there is  no mention of  them here.

i said  i have  cat scans here  showing  them  and  was  wondering if  they couldbe  causing the current pain i am in.

( even  my thoracic  surgeon  who was  voted one of  the top   20  saw  them last  year  and  said  i could  have problems  with them down  the  road. But at  he  time  we  were  dealing  with  the  tumor  on  my  spine... ) i did not  say  this  to her, but felt  like  it .


i told her i was taking codene  to get thur  the  pain. i can barely stand up. I am not making this  up. i m in alot of  discomfort and  would  like  to know  if  anything showed up on my scand  like  the  bulging  discs.  I said even  my husband  placed  a call  to the office  telling them  how  much  pain and  discomfort  i was  in.


Her reply was  well we  shall see you in september for  your  follow  up appointment.

So basically it was like  i  got  the  brush off  from her.

True it was 5pm  and  she  may have  been in  ahurry  to get home , but still, is that anyway  to treat someone.

so i am ready to scream  and  cry  at the  same  time. That  was  the  whole  coversation. Very short. did not  seem to care  that i was in  pain.
and  the pain is real. If i could be up and about walking about i would  be.  Arrgh !  Scream !  scream !

**********************************************************

okay, i am done  ranting, but i am still fustrated. the only reason i went to this  neurologist is  because  both my family doctor  and  the MS  doctor i had seen both felt that there was  something major  neurologically  going  on  and  that i needed  to be  seen  and  treated  by  a general  neurologist  right away.I keept saying maybe it was  orthropedic, but they kept saying neurological. 

So now to unwind  abit, talk to my husband, and  decide  our  next step.

******************************************************************************

okay so I guess i can say it is  good news that  the brain and  spine scan  showed nothing.  But on the other hand, i still have no explanation to what is  causing  the  tremors, numbness, and  now  the  back  pain.
  and one could also say that i could  cross off neurological problem  for  now, and  start looking  at either orthopedic, diabetic  or  hormone, or chemical.
But i am still a bit annoyed that the doctor kind of just gave  me  the  brush ooff  when i told her  the  pian i was in.
Well, as i have leraned  there are doctors  and  there are doctors. Some  can be  very compassionate  and  understanding  and  others...
  Then again, there are some  doctors  with terrible  bed side  manners  but yet they are very good  doctors.
     Anyway, i know  the  tremors  and  numbness i get is  not normal. You don't just start shaking  for  no reason. You  don't pass  out  for  no  reason.  You  don't get pain  for  no  reason.  There has  to be  an answer. 
It's  just  when am i  going  to get  that answer. 
I'm not a  baby. I  can tolerate  alot of my symptoms, and i do on a daily basis,  but still i would  like  to know  what is  causing all of  this.
     I am trying to think positive, but right now  i am very fustrated. 

[Celtic Lady]

  Omg, Amy. I'm so sorry to hear that you are hurting so badly. I was getting very angry reading about how short the doctor was in her conversation with you about your reports and for not acknowledging your pain.

Many hugs and prayers for you.

[lordwriothsley]

I totally agree with Celtic Lady on this as well. Just from reading your post about the pain you have been in Amy I was getting a little miffed myself at it as well. How can this woman look in the mirror and call herself a doctor when just by the conversation you brush you off the way she did. UGH! Anyway I'm sorry about my little rant cause this is not about me it's all you honey. Amy just know that you are still in my thoughts and prayers as always and if you ever need someone to talk to or someone to blow off some steam to don't be afraid to send me a ren-mail.

Hang in there cause I believe in my heart that the answers you have been searching for are on there way to you.

Hugs and love to you lass.

[Lady Amy of York]

Thanks  Celtic lady  and  Lord W.  Yes, it has me  pretty angry too, but i am trying not  to think about it, cause i know  stressing out won't  help.

I'm going to request  copies  of  the MRI  report  cause i have learned from past experience  not  to  trust    dcotors  all the  time.  Sad  to say.  But my previous  neurologist that i use  to see  told me  there was nothing that showed up on a MRI  report.  Thankfully i asked   for  copies  of  the  report otherwise i would  have  not known  about the  tumor  i had  my  spine.

Then when i saw my thoracic  surgeon  last year for  the surgery to remove  the  tumor  he  asked  for  my MRI  reports  and  said  did you know   you had bulging discs.

So that is  twice  that something  showed up on my  MRI's  and my previous  neurologist did not tell me  about it.(  the  reason why i switched neurologists, but this new one  does  not seem  much better. Lol,  why  do  i  pick  all  the    winners    ) So i am  going to ask  for  copies of  this  latest  report  so  i can  make  sure  nothing has  been  overlook.

[lordwriothsley]

Amy hang in there girl cause like I said before I believe that the answers you have been looking for are on there way.

[Rani Zemirah]

I'm glad you're looking for second opinions, and even third!  It's important to get all the info you can, and then some.  Keep pushing until you get an answer, dear!  Thinking about you, and sending lots of healing energy!!!