So... I got my chemotherapy kit from the UPS man today. I have a liver disease contracted from a massive blood transfusion I had to have in '93, after suffering internal injuries. I'm in stage 1, but it's progressing so I have to have chemo/anti-viral treatment for the next 24-48 weeks. I've been trying to stay pretty upbeat about it, until today when the package came via UPS. Now my hands are shaking just thinking about it.
It's so small, just four pen-type devices (one for each week), and I have to mix the chemicals, inject myself, then pop some pills, knowing that shortly after I'm going to start shaking and shivering uncontrollably, throwing up, burning up, aching, suffering delirium and possibly suicidal depression (50-70% of participants report suicidal thoughts and/or urges). On the other hand, I understand I'll be losing weight... lots of weight. Because I won't be able to keep much down.
I get to do this every weekend for the next 6 months to a year, depending on how quickly I clear the disease.
I've been trying to convince myself that there's some way I could get down to TRF before this season is over, but that's just not going to happen now. I thought I might have time before I started the treatment, but at least I'm not having to wait months for pre-approval from insurance. That's a blessing, right?
I've always seen myself as strong, able to face whatever life throws at me, and that's been quite a bit, but this has me shaking in my renboots. At least I know that I will eventually come up negative, if I can stick with the treatment long enough, and there's a small chance that the side effects will weaken over time, but it's a daunting prospect. I think it would be easier if I was doing this as an in-patient treatment, because it seems like it will get harder and harder to stick myself knowing what it's going to do to me.
I'm sorry to get so heavy here, but I didn't know all this was going to pour out. I guess it's been pent up since I found out what the treatment entailed, and the delivery turned a release valve.
I'm fairly new to the forums here, but it's nice that this space is provided for those in need of positive thoughts and energy from others who have a little to share. I've been known to have issues with asking for help, but I'd be grateful for any happy thoughts anyone could send my way.
Quote from: Rani Zemirah on October 15, 2008, 11:55:46 PM
So... I got my chemotherapy kit from the UPS man today. I have a liver disease contracted from a massive blood transfusion I had to have in '93, after suffering internal injuries.
... (much skippage)
Quote from: Rani Zemirah on October 15, 2008, 11:55:46 PM
I've been trying to convince myself that there's some way I could get down to TRF before this season is over, but that's just not going to happen now. I thought I might have time before I started the treatment, but at least I'm not having to wait months for pre-approval from insurance. That's a blessing, right?
Indeed it is a blessing.
I can understand why you would not want to try to make it (especially given you have to cross a state line, and it's not exactly the closest one to the TRF site).
Quote from: Rani Zemirah on October 15, 2008, 11:55:46 PM
I'm sorry to get so heavy here, but I didn't know all this was going to pour out. I guess it's been pent up since I found out what the treatment entailed, and the delivery turned a release valve.
That is what I understand this particular board to be for (I hope, anyway).
Quote from: Rani Zemirah on October 15, 2008, 11:55:46 PM
I'm fairly new to the forums here, but it's nice that this space is provided for those in need of positive thoughts and energy from others who have a little to share. I've been known to have issues with asking for help, but I'd be grateful for any happy thoughts anyone could send my way.
I sincerely hope you're well in time for Scarby 2009, or at the very least, TRF 2009, and that you're one of the 30% or so that do not suffer from suicidal depression. Given Scarby 2009 is hopefully going to be the first faire I attend in garb (barring a miracle before the close of this year's TRF season), we will both have a lot to look forward to.
Please keep posting (anywhere on the forums), or at least keep in touch with someone that does so we all know you're still alive and (getting) well.
All I can say is that we're here for you. We'll keep you in our thoughts and send healing your way.
I will certainly send happy thoughts your way and keep you in my prayers. May God bless you. :)
Thanks so much for taking the time to read about my trials, and for leaving well wishes. They are much appreciated!
Rani, try to find a friend who can be with you for a while after each seession. I hate to think of you going through all of that alone. :(
Keep your eye on the big picture. You can get through it and there will be another (happier) side to what you are facing. Just stay focued on the goal of getting healthier whicj each dossage down.
Perhaps you could take a weekend off, give yourself a break and get to faire for one weekend? It would do you good and you'd have happy faire memories to get you through the rest of your treatments.
We are all here for you Rani. {{Hugs}}
Rani,
That is what this forum is for. For you to discuss your fears ans asks for prayers and help from friends on here. There are alot of caring people on here. I found that out earlier this year, when i had to have surgery done. So don't be embarrassed to come on here and ask for help, or express your feelings, or juust cry if you want too.
I can understand how scared you are about the shots.
Back in the 1992 i had a bout with Lyme disease. Back then they were not sure how to teart it yet, and the doctors were experimenting with different drugs. I was so sick, that they ended up putting me on an antibiotic treatment where i had an iv needle in my arm 24 hours a day attached to a portable pump with medicine in it, that i wore on a belt around my waist.
I also had to give myself injections with a needle. I remeber the first time i went to do it. I was shaking. But i did evntually get use to it. and , yes, i did have days when i felt sick afterwards.
Did anyone show you how to give the injection to yourself ? Mine, i had to pinch my skin along my stomach, and inject myself along the stomach area. They had me practice on a orange a few times before they had me do it on myself.
and yes, it does help to have someone with you the first few times you give yourself an injection.
and just remember there are people with diabetes who have to give themselves injections evryday so you are not alone.
sorry this had to happen to you. I wish you well and good luck. :)
Thanks so much, Anna and Lady Amy, for the kind thoughts and encouraging words. They mean so much!
I have had the "training", and tomorrow evening will be my first treatment, just before bedtime so I can sleep through the worst of it, I hope. At least that was the suggestion they gave me, and I hope it works. My little girl will be with my mother for the weekend, but I think I'd rather just be alone, since I'm lousy company when I'm sick, and I don't like to cry in front of other people. If I'm alone I won't feel the need to "be strong" for anyone else, and I can just go to pieces if I feel like it.
I have my bedside trashcan all set up... lol. And good magazines at the ready if it turns out to be less intense than they said. I plan on spending most of Sat. in bed, which might actually be kind of nice, for a change.
I've been thinking about blogging my treatment, but we'll have to see how this first one goes... I might not want all that down in writing... lol.
Thanks again everyone!
I will send happy thoughts,positive energy,and lots of prayers your way.Take care of yourself and hang in there sweetie.God Speed.
Rani,
I am, by no means, a religious man, but I'd be happy to offer up a prayer or human sacrifice if it helps. :o
Seriously, though, I understand not having anyone there, but, at least have someone on speed dial. Your mom, a close friend, that creepy guy next door, or the cat lady down the street. Just be sure someone can be reached easily.
Be well, Rani. As someone else said, keep the long view in mind. You sound like a strong woman and I'm sure you'll weather this.
Take care!
Thanks, Lord W and Maelstrom, and I promise I'll keep the phone by the bed!
(maybe a "raver" sacrifice??? LOL ;D but you have to dance nekid around the fire!)
(edit) and send me pics!!!
Okay I'm trying to watch my gutter mind and your making it hard for me right now Rani. ;D LOL
Quote from: Rani Zemirah on October 16, 2008, 05:48:50 PM
Thanks, Lord W and Maelstrom, and I promise I'll keep the phone by the bed!
(maybe a "raver" sacrifice??? LOL ;D but you have to dance nekid around the fire!)
(edit) and send me pics!!!
If it'll help, I'll gladly travel to Texas, sacrifice a raver to the appropriate Gods and cause all those around me to cry "EYE BLEACH!!"
Quote from: lordwriothsley on October 16, 2008, 05:52:07 PM
Okay I'm trying to watch my gutter mind and your making it hard for me right now Rani. ;D LOL
WOW! That's a lot of info! :o
Quote from: lordwriothsley on October 16, 2008, 05:52:07 PM
Okay I'm trying to watch my gutter mind and your making it hard for me right now Rani. ;D LOL
Why... is it playing home movies??? ;D
Quote from: maelstrom0370 on October 16, 2008, 05:55:40 PM
Quote from: Rani Zemirah on October 16, 2008, 05:48:50 PM
Thanks, Lord W and Maelstrom, and I promise I'll keep the phone by the bed!
(maybe a "raver" sacrifice??? LOL ;D but you have to dance nekid around the fire!)
(edit) and send me pics!!!
If it'll help, I'll gladly travel to Texas, sacrifice a raver to the appropriate Gods and cause all those around me to cry "EYE BLEACH!!"
Quote from: lordwriothsley on October 16, 2008, 05:52:07 PM
Okay I'm trying to watch my gutter mind and your making it hard for me right now Rani. ;D LOL
WOW! That's a lot of info! :o
You forgot the part about pics... (folds arms and taps foot impatiently)
Hey... how am I supposed to play the pathos card when you guys are makin' me laugh so hard???
(pssst... you're ruinin' my schtick, here...)
HA! Sympathy ploy!! I knew it, you wily woman! ;)
Pictures, huh? Lemme tell ya, I avoid the mirror when I get out of the shower, but if you want pictures...all I can say is...they're your eyes! :o
Hey... it can't possibly be worse than the email I accidentally opened last week! At least it'd only be an innocent raver sacrifice, with some incidental nekididity (<<<spell check is having an epileptic fit over that one... LOL), and not the :o!hardcore porn shot! :o I was subjected to all unknowing. Lemme tell ya'... never NEVER open mail if you don't recognize the name!!! I thought it was someone from my CHURCH, of all things... LOL Talk about eye bleach... bleck... :P
Quote from: Rani Zemirah on October 16, 2008, 06:28:08 PM
Hey... it can't possibly be worse than the email I accidentally opened last week! At least it'd only be an innocent raver sacrifice, with some incidental nekididity (<<<spell check is having an epileptic fit over that one... LOL), and not the :o!hardcore porn shot! :o I was subjected to all unknowing. Lemme tell ya'... never NEVER open mail if you don't recognize the name!!! I thought it was someone from my CHURCH, of all things... LOL Talk about eye bleach... bleck... :P
Oh sure!! Like strange people just
randomly send porn to people they don't know. I'm not buyin' it, sister!
What do ya call it? SPAM?? Bah! Next you're gonna tell us you get emails advertising Viagra and larger...ahem...noses!
::) :P ;)
Oh, Sweetie, can I ever sympathize w/you. I had stage 4 (5 being death) non-Hodgkins Lymphoma and underwent most of a year of chemo & radiation. Yes, it was awful. Yes, I was sicker than a landlubber hogtied & thrown in the bilge. Yes, I was suicidal both during and after treatment. But that was then & now I'm fine - knock wood - & enjoying the world.
It can be done - take care of yourself & keep us informed. Please don't hesitate to reach out - the Rennies are capable of amazing amounts of good thoughts & blessings. We'll see you soon! :-*
Thank you, Taffy. I'm so glad you beat the nasty C! I'll be callin' ya up all barfy so you can tell me "this too shall pass"!
I am learning much about the wunnerfulnesses of rennies every day! (hey, I'm a sicky... I can spell however I want!!! )
Geez... now I'm gonna cry cuz ya'lls so nice...
Quote from: maelstrom0370 on October 16, 2008, 06:42:12 PM
Quote from: Rani Zemirah on October 16, 2008, 06:28:08 PM
Hey... it can't possibly be worse than the email I accidentally opened last week! At least it'd only be an innocent raver sacrifice, with some incidental nekididity (<<<spell check is having an epileptic fit over that one... LOL), and not the :o!hardcore porn shot! :o I was subjected to all unknowing. Lemme tell ya'... never NEVER open mail if you don't recognize the name!!! I thought it was someone from my CHURCH, of all things... LOL Talk about eye bleach... bleck... :P
Oh sure!! Like strange people just randomly send porn to people they don't know. I'm not buyin' it, sister!
What do ya call it? SPAM?? Bah! Next you're gonna tell us you get emails advertising Viagra and larger...ahem...noses!
::) :P ;)
Don't be tryin' ta impress me with your large "nose", now... jus' send the demm pics... ::)
Quote from: Rani Zemirah on October 16, 2008, 06:01:16 PM
Hey... how am I supposed to play the pathos card when you guys are makin' me laugh so hard???
(pssst... you're ruinin' my schtick, here...)
Laughing is the best way to get through tough stuff, in my experience...and we're all here to laugh with you, and send lots of {{HUGS}} when you don't feel like laughing....
...sending lots of strength and laughter your way :)
Thank you, Tygrkat. That's why I love these boards so much, there is so much love and laughter here!
I'll send you lots of happy thoughts and gutter minded laughter! Since my friends tend to help keep my mind in the gutter, I've got plenty of day passes to spare! Tee hee
Please feel free to reach out any time! That is exactly what this forum is for! *HUGS*
HUGS, I hope everything is okay. I will catch you in Chat and we can have fun and laught and go ooohh look something shiny.
First dose this morning, after staying in chat all night with a new friend who helped distract me from the impending ordeal. I'm starting to not feel well now, so I think I'll go lie down.
I look forward to the shinies, Sarvia... thanks for the hugs! And you too, Fairyfly, for all the gutter minded laughs you can spare!
All of you have helped me work up the nerve to get to this point. Thanks...
Rani,
I am sending hugs and prayers your way. Having a strong spiritual soul and help from the Heavens above, will help you get through this ordeal.
Take care!
irish
Congratulations on taking your first step back to health! Every treatment brings you closer to your final treatment. I'm so proud of you.
Find a friend, a movie, a song that makes you feel better. I watched To Wong Foo almost every day - cause you know, if Wesley Snipes could be an even somewhat attractive woman, then so could I.
Don't eat food you love - you don't want to associate it w/sickies. I found that I could eat food at room temp because then it didn't smell so much & set off the sickies.
Finally, take care of yourself - that's job one. Good wishes going your way.
My thoughts and prayers are with you.
You all make me cry! Thank you so much for being here...
I guess I forgot to log off this morning, so here you all were when I finally crawled out of my cave. I can't even begin to express what it means to find such love, comfort and humor right here in front of me!
Not feeling so well, but not as bad as I feared, so far. Still shaky, and not really interested in eating, but I'm able to keep water down now, at least. Wish I felt up to working on garb, or at least reading, but I think it might be back to bed for me in just a bit. I'm going to try and catch up on the local gossip around here first, though.
So many hugs to you all. You make me feel so much better just because you are!
I hope you are doing alright. May you feel better more quickly than you think.
Hey Rani that's what friends and family for lass.Glad to hear your doing okay though.Take care of yourself and will pray for a speedy healing process for you sweetie.
Hugs, for strength and healing, and prayers, too!
Hey, hon, just thinking of you this a.m. & hoping you are feeling better. Once you get a feel for how your meds are affecting your mental & physical wellbeing, please don't hesitate to ask your doctor for meds to help you over the hurdles. Please don't be afraid to ask for anti-depressants & anti-emetics (nausea) & whatever else you may need. The trick is to start treating side effects before they get the upper hand & while nothing can completely take the side effects away completely, there is no need to suffer needlessly.
Take care.
Woo Hoo! Way to go, Rani!!
*does really bad white-boy-cabbage-patch dance*
Go Rani!
First one's done!
Go Rani!
First one's done!
I'm here!!! And I'm Alive!!! No more fever, the aches and headache are gone, no nausea. I can do this...
Of course I wasn't so sure last when I was laying there crying because it felt like my bones were on fire and my joints had all been flayed open to expose every nerve, but it's gone now, and it's amazing what 1000mg of ibuprofen can do in a pinch. Especially when you're so exhausted you can't even think.
Thank you all so much for helping me through this first treatment. It's meant so much to me, and I could never even begin to express my gratitude. I can't believe how wonderfully supportive and encouraging everyone here is, and I feel like I've fallen right into the lap of a huge, noisy, rowdy, rambunctious and loving family!
Don't worry Taffy, I have the meds waiting at Wally world, just gotta go pick em up.
And thanks for the dance, maelstrom, but it's not the one you promised, if you recall. And I don't see any pics, either... LOL
Thanks again, guys and gals! I love you all!!!
(mod for spelling)
I knew you could do it, hon! ;) :-*
Quote from: Rani Zemirah on October 19, 2008, 12:06:56 PMAnd thanks for the dance, maelstrom, but it's not the one you promised, if you recall. And I don't see any pics, either... LOL
Well, I still have to get to Texas and
abduct and sacrifice find a Raver before I can perform
that dance!
Unfortunately, that also slows the picture process down.
You're the first on my "send" list, though! ::)
Be well, you're stronger than you think.
Waiting... (tapping foot, checking watch)
Zemirah, you know how those yankee boys are, all talk and no follow through. Though this one does seem better than the average carpetbagger.
Quote from: Rani Zemirah on October 19, 2008, 12:25:33 PM
Waiting... (tapping foot, checking watch)
You'e just evil, ya know that? ;)
Quote from: Zaubon on October 19, 2008, 12:31:21 PM
Zemirah, you know how those yankee boys are, all talk and no follow through. Though this one does seem better than the average carpetbagger.
Ummm...Thanks! I think... :-\
Evil... moi??? You know it's not the sacrifice part I'm waiting for, right??? LOLOLOL
;)
I know, Z. I'm sure if you promised me you would dance around a fire naked and send me pics you'd follow through immediately, wouldn't you???
;D
Quote from: Rani Zemirah on October 19, 2008, 12:51:34 PM
Evil... moi??? You know it's not the sacrifice part I'm waiting for, right??? LOLOLOL
;)
Yea, yea, yea...it's the "after party" ;) :P
I have friends and friends of friends coming next weekend. God knows what kinds of pictures will surface after
that!!
Quote from: maelstrom0370 on October 19, 2008, 12:56:37 PM
Quote from: Rani Zemirah on October 19, 2008, 12:51:34 PM
Evil... moi??? You know it's not the sacrifice part I'm waiting for, right??? LOLOLOL
;)
Yea, yea, yea...it's the "after party" ;) :P
I have friends and friends of friends coming next weekend. God knows what kinds of pictures will surface after that!!
Hmmmm... sounds interesting. You'll have to keep me posted. LOL
;) :D
With all this talk of naked dancing around a fire and pics... I'm wanting to be second on that send list now. tee hee :o
Glad you're feeling better Zemirah! *HUGS*
Quote from: Rani Zemirah on October 19, 2008, 12:53:08 PM
I know, Z. I'm sure if you promised me you would dance around a fire naked and send me pics you'd follow through immediately, wouldn't you???
;D
Unless you insisted on fresh photo's. I haven't had a chance for naked fire dancing since New Years. (Most of the witness's have since been released on at least a limited basis from the hospital.)
Quote from: Fairyfly on October 19, 2008, 03:11:13 PM
With all this talk of naked dancing around a fire and pics... I'm wanting to be second on that send list now. tee hee :o
Glad you're feeling better Zemirah! *HUGS*
Thanks FF!
I'm thinking I might have to jack this thread over to John's Inn soon, if things keep progressing the way they are!!! ROFL
Nothing like laughter, fire and naked dancing men to make a girl feel better, eh???
Quote from: Zaubon on October 19, 2008, 03:43:22 PM
Quote from: Rani Zemirah on October 19, 2008, 12:53:08 PM
I know, Z. I'm sure if you promised me you would dance around a fire naked and send me pics you'd follow through immediately, wouldn't you???
;D
Unless you insisted on fresh photo's. I haven't had a chance for naked fire dancing since New Years. (Most of the witness's have since been released on at least a limited basis from the hospital.)
Well, All Hallow's is coming up, maybe you could work on that for us, k? Cuz' I likes me some fresh!
Ok, my sides are starting to hurt, and if I give my monitor one more bath I might not be able to
view said photos! I'm not sure who is egging on whom here, but were gonna get in trouble from the mods, I can feel it... :o ;D
Hey Rani, I'm so glad to see you feeling so well! That's awsome. :)
This is certainly the liveliest candles for prayers thread I've ever seen. :D
Thanks Anna, it was kinda rough for a while, and I'm certainly not looking forward to next weekend when I have to do it all over again (and again and again), but the laughter really does help, as do all of the hugs and prayers.
I feel so well cared for! :D
Quote from: Rani Zemirah on October 19, 2008, 04:42:34 PM
I'm not sure who is egging on whom here, but were gonna get in trouble from the mods, I can feel it... :o ;D
Tee hee I am a Mod. So far we're safe. lol 8) Glad to hear you're laughing! Send my apologies to your monitor. *Giggle*
Rani,
I will keep you in my prayers thru this ordeal. I am glad the bad stuff has passed. And to be able to have your chemo at home rather than a chemo lab is a plus too.
Quote from: RenRobin on October 20, 2008, 08:01:55 AM
Rani,
I will keep you in my prayers thur this ordeal. I am glad the bad stuff has passed. And to be able to have your chemo at home rather than a chemo lab is a plus too.
I think so to, but I can see the sticking myself part getting old pretty quick, but at least I have all of you to help me feel better, and the really bad part is only a couple of days out of the week. If it doesn't get any worse then I think I can handle it, but the present is just about all I have the energy for these days.
Thank you so much for your prayers, they help me get through each day.
Quote from: Fairyfly on October 19, 2008, 11:17:28 PM
Quote from: Rani Zemirah on October 19, 2008, 04:42:34 PM
I'm not sure who is egging on whom here, but were gonna get in trouble from the mods, I can feel it... :o ;D
Tee hee I am a Mod. So far we're safe. lol 8) Glad to hear you're laughing! Send my apologies to your monitor. *Giggle*
Sounds like permission to me!!! LOL
I have the drums, who's got the fire???
Quote from: Rani Zemirah on October 20, 2008, 12:50:56 PM
Quote from: Fairyfly on October 19, 2008, 11:17:28 PM
Quote from: Rani Zemirah on October 19, 2008, 04:42:34 PM
I'm not sure who is egging on whom here, but were gonna get in trouble from the mods, I can feel it... :o ;D
Tee hee I am a Mod. So far we're safe. lol 8) Glad to hear you're laughing! Send my apologies to your monitor. *Giggle*
Sounds like permission to me!!! LOL
I have the drums, who's got the fire???
I can see that this is shaping up to be one wild party. ;D
Lord W, I think you might be right! LOL
Then Rani I want in. ;D
Quote from: lordwriothsley on October 20, 2008, 06:35:33 PM
Then Rani I want in. ;D
Welcome, M'Lord, but be warned ... I think there be naked fire dancin' in yer' future! ;D
I haven't made a camp fire in a few years, but I'll give it a try! ;)
Huzzah!!! Sounds like the makings of a party to me!!!
Now if only I was able to drink a little Loki... maybe next season when my liver is all shiny again! Only a sip or two... really, I mean it...
Quote from: Rani Zemirah on October 20, 2008, 08:52:29 PM
Quote from: lordwriothsley on October 20, 2008, 06:35:33 PM
Then Rani I want in. ;D
Welcome, M'Lord, but be warned ... I think there be naked fire dancin' in yer' future! ;D
Lass if that will win me the wenches then I am all for it my dear. ;D
Quote from: Fairyfly on October 20, 2008, 08:53:35 PM
I haven't made a camp fire in a few years, but I'll give it a try! ;)
Don't you think that the camp fire for the naked men fire dancing would make your guy a little jealous. ;D
Quote from: lordwriothsley on October 20, 2008, 09:01:42 PM
Quote from: Fairyfly on October 20, 2008, 08:53:35 PM
I haven't made a camp fire in a few years, but I'll give it a try! ;)
Don't you think that the camp fire for the naked men fire dancing would make your guy a little jealous. ;D
Hey, he can dance too! We're equal opportunity over here!!! I have no problem watching someone else's man dance naked around my fire, as long as he leaves with the one which will get him in the least trouble! It's just dancing, remember...
and fire... and maybe a little loki...
My guy would be laughing and giving me tips on how to build the fire! He might join in... but that depends on his mood, and how much he likes the Loki. He's hasn't had any yet. lol I haven't been able to talk him into a kilt yet! Not sure if I'd be able to talk him out of one... in public...
See, there's a reason he's my guy! He likes me just the way I am! And Vice Versa! ;) ;D
And as for leaving with the one who'll get him in the least trouble.. That won't work because I'd get him in the most trouble! Tee hee :o
Quote from: Fairyfly on October 20, 2008, 11:10:45 PM
My guy would be laughing and giving me tips on how to build the fire! He might join in... but that depends on his mood, and how much he likes the Loki. He's hasn't had any yet. lol I haven't been able to talk him into a kilt yet! Not sure if I'd be able to talk him out of one... in public...
See, there's a reason he's my guy! He likes me just the way I am! And Vice Versa! ;) ;D
And as for leaving with the one who'll get him in the least trouble.. That won't work because I'd get him in the most trouble! Tee hee :o
Too funneee...
But I have to tell you, FF... at my party
I'm the Fire Goddess, and I get to build the fire! Oh, and I don't need a man to tell me how!
I keep them for other things... ;) :P
Go for it girl!
I don't need help either, so shhhh looking cute and confused gets them to take over when I don't feel like messing with it. :-X ;)
Quote from: Fairyfly on October 21, 2008, 03:09:09 AM
Go for it girl!
I don't need help either, so shhhh looking cute and confused gets them to take over when I don't feel like messing with it. :-X ;)
No worries...
(I'll never tell, your secret is safe with me!!!) ;)
Do you think we could end the day with a wet t-shirt contest so the men can have some entertainment as well? ;D
Quote from: lordwriothsley on October 21, 2008, 10:59:02 AM
Do you think we could end the day with a wet t-shirt contest so the men can have some entertainment as well? ;D
Sorry Lord W, but you'll have to get your own firedrumdance circle for that... the men
ARE the entertainment at this one!!!
MUAHAHAHAHA!!!!!
Okay then I'm all for it.Let the games begin. ;D
If you really want pictures, and since laughter is the best medicine, my videocamera (disguised and named "Haggis") has nightvision with a powerful zoom lens. If you still need a sacrificial raver, I have a magnet - a multi-colored lights flashy necklace medallion from Mardi Gras. Works just like the pied piper. :)
Quote from: Messyn McCleavage on October 21, 2008, 11:43:49 AM
If you really want pictures, and since laughter is the best medicine, my videocamera (disguised and named "Haggis") has nightvision with a powerful zoom lens. If you still need a sacrificial raver, I have a magnet - a multi-colored lights flashy necklace medallion from Mardi Gras. Works just like the pied piper. :)
**leads the Ravers along with the flashy-necklace-thingy**
"Pay no mind to the big, sharp pointy things in the corner. That's right, just line up over there. Yes, on top of the big stone platform. Thanks!"
Quote from: Messyn McCleavage on October 21, 2008, 11:43:49 AM
If you really want pictures, and since laughter is the best medicine, my videocamera (disguised and named "Haggis") has nightvision with a powerful zoom lens. If you still need a sacrificial raver, I have a magnet - a multi-colored lights flashy necklace medallion from Mardi Gras. Works just like the pied piper. :)
You gots skills, dahlin'! You're in !!! ;D
Quote from: maelstrom0370 on October 21, 2008, 11:46:16 AM
Quote from: Messyn McCleavage on October 21, 2008, 11:43:49 AM
If you really want pictures, and since laughter is the best medicine, my videocamera (disguised and named "Haggis") has nightvision with a powerful zoom lens. If you still need a sacrificial raver, I have a magnet - a multi-colored lights flashy necklace medallion from Mardi Gras. Works just like the pied piper. :)
**leads the Ravers along with the flashy-necklace-thingy**
"Pay no mind to the big, sharp pointy things in the corner. That's right, just line up over there. Yes, on top of the big stone platform. Thanks!"
You have such a way with bloodshed! I know you just wanna be an ordinary pirate, but you are destined for leadership. You are hereby dubbed Commander of the Sacrifice! I'm Queen of this thread, so I can create titles if'n I wanna... :P Oh waaaiiit... Goddess... that's right, I'm
Fire Goddess of this thread! That gives me
soooo much more leeway!!!
Hey, maybe we'll have a new movie for the Scary Halloween Movie thread!!! (is it okay to mention one thread in another thread???) OK, we need title submissions!
Quote from: Rani Zemirah on October 21, 2008, 03:11:52 PM
You have such a way with bloodshed! I know you just wanna be an ordinary pirate, but you are destined for leadership. You are hereby dubbed Commander of the Sacrifice! I'm Queen of this thread, so I can create titles if'n I wanna... :P Oh waaaiiit... Goddess... that's right, I'm Fire Goddess of this thread! That gives me soooo much more leeway!!!
Hey, maybe we'll have a new movie for the Scary Halloween Movie thread!!! (is it okay to mention one thread in another thread???) OK, we need title submissions!
M'lady, I am honored. I guess everyone needs a skill, right?
"Chaos-It's not just for breakfast anymore"
Quote from: Rani Zemirah on October 21, 2008, 03:11:52 PM
Hey, maybe we'll have a new movie for the Scary Halloween Movie thread!!! (is it okay to mention one thread in another thread???) OK, we need title submissions!
Yup.
Rennie Revenge.... Plight of the Ravers.... Sacrifice for Sanity... Tee hee ;)
Heeere Raverraverraver... come on, now... I got a shiny for ya'... thaaaat's it... right ooover heeere...
(GOTCHA!!!)
HUZZAH!!!!
(anybody gotta match?)
Hugs Rani Zemirah!
Thank you so much, Queen Bonnie! It means to world to me to be included in one of your hugs. :)
Would you like to join the circle? In all this madness you might run across a stray wizard! And it's ever so much more fun than the pity-me party it started out as!
Much love, my Queen!
Quote from: Rani Zemirah on October 21, 2008, 07:18:15 PM
Heeere Raverraverraver... come on, now... I got a shiny for ya'... thaaaat's it... right ooover heeere...
(GOTCHA!!!)
HUZZAH!!!!
(anybody gotta match?)
Nevermind the match, let them
accidentally fall into the fire.
Quote from: Messyn McCleavage on October 23, 2008, 03:00:33 PM
Quote from: Rani Zemirah on October 21, 2008, 07:18:15 PM
Heeere Raverraverraver... come on, now... I got a shiny for ya'... thaaaat's it... right ooover heeere...
(GOTCHA!!!)
HUZZAH!!!!
(anybody gotta match?)
But watch out cause it's like the old saying goes "When you play with fire you usually end up getting burned." ;D
Nevermind the match, let them accidentally fall into the fire.
Quote from: lordwriothsley on October 23, 2008, 03:30:26 PM
Quote from: Messyn McCleavage on October 23, 2008, 03:00:33 PM
Quote from: Rani Zemirah on October 21, 2008, 07:18:15 PM
Heeere Raverraverraver... come on, now... I got a shiny for ya'... thaaaat's it... right ooover heeere...
(GOTCHA!!!)
HUZZAH!!!!
(anybody gotta match?)
But watch out cause it's like the old saying goes "When you play with fire you usually end up getting burned." ;D
Nevermind the match, let them accidentally fall into the fire.
HAH!!! I am the
FIRE GODDESS!!!
I do the burning, not the other way around...
Well... lots of bravado there, eh??? And now that it's Friday again, I'm having a hard time laughing like I have been all this week. Treatment day has arrived again, but with not quite as much trepidation as last week, mostly thanks to all of you, my wonderful supportive Ren friends. Thank you all so much for helping me turn this towering, tremendous dread I have been feeling into such positive, courageous laughter! You warm my heart with the fire of your presence, and within the circle of your friendship I can face any flame...
Bless you all!
Steel is tempered and gold is refined by fire. Praying for your continued healing!
*HUGS* I know this is the hard part, but we're all here for you hun!
Now, where did we put those grass skirts at? Gotta have something for the guys to start out in... Maelstrom, are you hiding them?
Thank you, TG, what a lovely sentiment! I have a beautiful visual now. My determination to get through this is tempered steel, inset with the gold of wonderful, supportive friends! Makes for quite a sword, that! I believe I am girded for the battle...
FF, Maelstrom is indeed an excellent Commander of the Sacrifice, although perhaps a bit reluctant to get started on those pics he promised!
(Little does he realize that the true sacrifice will be on the part of the dancers themselves... when the grass skirts drop! LOL)
Sometimes the most difficult sacrifice to make is one's own sense of self-preservation... but I think a bit of Loki could ease the pain...
;)
Breathing in your pain, breathing out healing light for you Rani Zemirah
From one of your fans.....namaste :)
Rani I have been and will continue to pray for you.Hang in there sweetie.
Will be thinking of you - chin up!
{{hugs}}
Hoping everything is going as well as possible, and sending lots more strength and laughter your way...
We're all here for you whenever you need us...
;)
Sending along some hugs for tomorrow Rani. :)
I hope you are doing alright. Feel better quickly.
Thanks everyone... I'm pretty shaky right now, but no yurking so far. The real shakes won't start until tonight, though. At least if it follows last weeks pattern. I slept through the first part, thanks to a wonderful friend who kept me up in chat all night again, and helped me stop falling apart so I could get on with it. Self-pity sucks, but it's nice to have someone there who cares when self-pity's all you can find inside.
Not sure if I can eat, but I need to try. And water... lots of water...
Everyone have tons of fun at TRF this weekend, and take lots of photos!!! I want to see it all... And lift a tankard in my name! Love you all...
Hope you got some sleep - take care of you.
I am still continuing to pray for a speedy recovery for you Rani.Hang in there darlin you'll be alright.HUGS to you lass.
Not doing as well this week. I'm feeling quite sick today, with nausea being a real problem. I guess I'll have to get something for that, but I'd really rather not have yet another pill to take.
Feeling yucky... need a hug... :-\
Rani, I recall my mother always used Cola Syrup when we kids had upset stomachs. You can buy it at the pharmacy. Easy on your stomach and it tastes nice. Sounds old school, but call the pharmacist and ask what they think.
Anna, I've heard of using Cola syrup too, but I've never tried it - ginger ale always helps me when I have the flu or some other stomach 'ick', and I love the flavor anyway...
...and here's another {{HUG}} and hopes that you won't need anything stronger than ginger ale!
Rani I am sending lots of hugs your way.Take care and hang in there sweetheart you'll be alright.
First... *HUG*
Second, what's worked for me with the whole sick icky feelings has been chamomile tea with a touch of honey in it. It calms the stomach and sooths the nerves. Very relaxing stuff. They used to, and still do, give it to little ones to help them calm down before bed time.
My back up is flat coke or ginger ale. Can't take the bubbles on an icky stomach. It makes me feel worse not better. Plus I eat crackers, bread or pasta to help absorb what ever is making my tummy not happy.
And all of the above is pretty easy on you if it fails to keep everything down. ::) Hate when that happens.
*HUGS* Feel better sweetie!
Hello Rani! You are still in my prayers and thoughts... I hope the nausea eases or is minimal/non-existant. I second Fairyfly's chamomile tea recommendation... My grandmother went through intensive chemo and radiation, was constantly nausous, and found that chamomile tea and mountain yew tips (brewed with the tea) eased her tremendously. It helped with the jitters too (the treatments made her extremely jittery) and certainly relaxed her. Hope you feel better soon. :)
Thank you all for the helpful advice and hugs! I'm feeling better today than yesterday, and I've figured out what was going on. The anti-depressant I was prescribed was bothering my stomach and my nerves, so they're switching me to the one I requested in the first place... go figure! I've also got a scrip for Nexium, but I think I will see how this new med treats me before I start taking it.
I like chamomile tea, and I think I'll start drinking it occasionally again. I have to drink so much water to stay hydrated, though, that I'm not sure I have the room!
Thanks again for all the support and encouragement! It means so much to me, every day...
Chamomile tea isn't one of the ones that dehydrates you. It doesn't have as much, if any caffeine in it. So you should be able to use it in place of one of your glasses of water instead of trying to add it on top of all the water.
Nothing like having to run to the bathroom every few minutes to pee. *Giggles* :D
Glad you're feeling better hun.
Thanks FF, and I hope things are starting to calm down after your scare, also!
I've seriously started to consider just moving the computer into the bathroom, since I seem to spend more time in there than in here!
At least my sense of humor seems to be floating back up to the surface!!!
Rani I'm glad to see you feeling better today.Do still continue to take care of yourself and I will still continue to pray for a speedy recovery for you lass.Sending lots of hugs and love your way sweetheart.
So all this week I've been feeling a little worse every day, but this morning I felt great!!! Until about 20 minutes after I took these lousy pills. Now I feel like I could yurk all night, and I still have to take the shot tonight. I don't have anyone to distract me in chat this time, so I'm flying solo this week. I was hoping it wouldn't keep getting worse, but I guess I couldn't really expect it to be as easy as it's been so far.
Chemo sucks... but, I guess it's ultimately better than the alternative, eh???
Thanks, Lord W, I appreciate you're many kindnesses...
P.S. I'm rooting for you, too!
You're doing great, kiddo...{{hugs}} ;D
I've never known anyone while they were going through chemo, but my Mom was a transplant recipient, and her sense of humor, positive attitude, good friends and solid support system, and just plain stubbornness helped get her through the rough parts...you seem like you've got a good foundation and you're right - it sure beats the alternative...
...and as long as any of us are online, you're not really solo - your Faire-mily's got your back ;)
{{HUGS}}
Hoping you're well this morning :)
Thanks for the hugs, Tygrkat, they really help. Not so great this morning, but then again I didn't expect to be.
Still, nothing can be all bad, and it seems that just when things start looking really rough, the Universe drops a gift in your lap that changes the way the whole world looks. I've had lots of reasons to smile lately, and it's made this ordeal much more bearable, and even funny occasionally (who knew you could laugh and yurk at the same time???)!
Thanks to all of you who continue to support me through this, and especially one in particular (you know who you are), it's getting easier, even as it gets more intense. And thanks for all the laughter... I look forward to it every day!
*super hugs!* You're doing great hun. I know not feeling well sucks, but you've got friends who love ya here!
Thanks, sweetie, and I hope everything is getting easier for you and yours! Give your little one a big hug from me!
Rani I'll second FairyFly on what she said that you do indeed have friends on here who love you.After all that is what friends are for sending words and thoughts of encouragement when ones needs them the most.Hang in there and stay strong cause I have faith that you will get through this.Lots of Hugs to you Darlin.
Thank you, Lord W. I'm feeling a bit better today, and just think, I have a whole week to go until the next one!
Yes I hear you all the way however I wish that this whole mess would be done and over with right now for you cause I hate to see you suffer like these treatments and making you do.I'm glad to see you do good through the week but honestly it breaks my heart to see you suffer on the weekend when you have to apply this to yourself.
Hey Rani -
Sorry, I am a little late, but I have just been reading through your thread, and I have to tell you that I am impressed. I know what fun these maniacs can be, and I love them for it, but I have to say that I am very impressed with you, as well. You have been very brave and very strong through your ordeal, and I think that "fighter" attitude is a major part of what is getting you through all of this. That is not to take anything away from the incredible support system you have got going here. These are some of the most wonderful people in the world, and you will notice that most Rennies are fiercely loyal, so just be sure that you realize that we've all got your back. None of us can do this for you, but we can be there every step of the way to help carry your load. And you seem to be doing a great job of handling this, yourself. Take it from someone who spent 3 and a half years in a wheelchair, and for a while was not sure of survival, you can handle this, as you have proven, not only to yourself, but to all of us, as well. Every treatment is one closer to the last one, and we will all be here for you through every step of your countdown. It may not mean much, but I am very proud of you.
Peddlin :-*
Peddlin',
You have no idea how much it means to me to have all of you wonderful friends here with me through this. It makes it so much more bearable, and some of it has even been fun! Who knew that pouring my heart out on here would start this little party??? I'm having so much more fun trying to laugh through it all than I would have crying, and this thread makes that much easier than it might otherwise be, some days.
Thank you for your vote of confidence, Peddlin'. It means a lot to me that someone who has survived their own pain and fear would see strength in me. I truly do understand what a treasure I have found here in all of you, and I value each and every one! Thank you for all your support.
Lord W, I hope it will just get easier with each shot, but even if it doesn't, it's still bearable with all the love and prayers I receive from all of you! Thank you so much!
Rani, sorry I'm so late in sending you prayers.But know I admire you for staying so tough and knowing you can get thru this.I'm sending you lots of prayers that each day be a little brighter for you and a little easier. Know that each of us on these boards do care and send you prayers. :-*
Lady Joyce Ann, thank you so much for your wonderful prayers and well wishes! They brighten my days no end, and give me so many reasons to smile!!!
Ooo! I'm REALLY late to this thread, but better late than never! I wanted to bring this piece up, since I've worked with folks on the receiving end of the therapy you're getting and this seemed to work for them: make sure you have someone to talk to that can *see* you regularly (weekly or couple times a month at the least), who can be objective and pick up on any warning signs earlier than you might notice them yourself (being preoccupied with your throne as you have been, your Fiery Goddesness). It doesn't have to be a trained therapist, though that certainly helps, but just someone who knows you well enough to be able to pick up on those nasty side effects (suicidality in particular) that can sometimes be more dangerous than the meds themselves. I don't know how often you're seing your physician, but you can also ask them about keeping track of depressive symptoms at each visit (if they're not doing so as part of your treatment protocol already), just to have another set of eyes/ears looking out for you. Maybe you already knew all this, but in case you didn't, I thought I'd share with you. And I'm lighting a pink candle for you in the meantime. Why pink? I have no idea. It's just the color that came to me. Does pink mean anything to you?
Hi Molly,
Thanks for the candle, and the advice. I do indeed see a therapist each week, and have discussed all the possible symptoms with them, as well as my GP and my Specialist, so they've all got me under observation... and so has everyone else around me that knows what's going on with me! LOL I made sure I let people know that it's possible I might not be quite myself for a while, but if I seemed really out of it to let someone know. I'm not one to suffer in silence if it could mean my life, and I know when it's time to ask for help. This thread has been a huge help to me, as well! It's amazing to receive so much loving kindness coming from so many different people, and to have so much fun with it at the same time!
Oh, and pink... the only thing I can think of is Rose quartz. It promotes healing and self love, and attracts love into a persons life... other than that? Sounds like a nice candle. Thank you! Please come in and join the circle!
Thanks for the invite! And I brought along a sacrif gift for Your Goddessness: http://www.youtube.com/watch?v=wjtasMLcfpg (http://www.youtube.com/watch?v=wjtasMLcfpg)--tho perhaps his merits merit mercy?
Dayum!!! If I could spin like that I might be a raver, too!!! LOL Although it's always better with drums instead of amplifiers.
Lovely addition to the circle, Molly, and such a thoughtful gift! I think we might have to keep this one, since he could be used as bait incentive to draw the true sacrifice!!! You know, the ones who just stand around being annoying... I'll have to send this over to my Commander of the Sacrifice and see what he says, but I think a few more like this one could round out our little party quite nicely!
So... I've been thinking about this new gig, you know, Fire Goddess... I'm thinking I might have to garb her up and debut her sometime next season... but only if I get to design the garb for my CotS, as well... LOL
What say you, Maelstrom... game for some new garb, maybe another new persona??? Everyone has at least one extra person inside... this could be your chance to explore that side of yourself! LOL
Let see... I'll need a few minions... and some worshipers... and of course lots of new fabric...
Well, I don't know about minion necessarily, but I do eat fire, and I'm definitely interested in getting the torches back out ...
...maybe a 'Femme de Flame'?... 'Lady of Lightning'?....or some suitable title to that effect...
I'd love to learn to spin fire like that someday...
Woohoo!!! Even my 7y/o wants to spin fire like that!!! We're working on a set of practice poi for both of us (tennis balls don't burn you when they hit) so we can learn at the same time!
I can see I'm going to be bestowing more titles soon! Hmmmm... High Priestess Fire Eater is so completely as impressive as Fire Spinner, when it comes to titles. I'm wondering if this is going to have to go barbarian in theme, what with the drums, sacrifice, naked fire dancing... you know, that whole movie set. Imagine the garb!!! Well... for some of us, anyway... LOLOLOL!!!
Anyone who can eat fire deserves to be High Priestess to the Fire Goddess, right??? The title is yours, if you want it, Lady Tygrkat!
It would be an honor to take up the title of High Priestess Fire Eater ;D
...and I can only imagine the garb... ;)
This website has some great info on Poi and Fire spinning,making practice poi, different spinning patterns, safety issues, etc... and you can purchase practice poi there as well {althought it's definitely less expensive to make your own!}
http://www.homeofpoi.com/ (http://www.homeofpoi.com/)
I don't spend nearly as much time there as I would like, but when I do, it's certainly inspiring {what I wouldn't do with more yardspace, spare time and some 'extra' $$...*sigh*}...and should probably be required reading for High Priestesses to the Fire Goddess :P
Hey girlfriend,
Just checking in on you to see how you are doing? I appologise that I have not checked in this past week, I was on a family vacation.
Sorry to read that the chemo has been making you feel yucky.
Hang in there hon. I remember before they removed the tumor on my spine, how i had days that i felt like giving up, and like all hope was gone.
I was tired of tests and treatments and getting no answers and results.
But i fought, and held on, and I am glad i did, or else i would not be around to see my little boy grow up.
I know you are a fighter, and you can get thru this too. I made it thru, with the love and support of my family and the friends i met and made on here. So remember whenever you need a hug, or a smile you have friends on here. Don't give up ! Life is worth fighting for !
Hugs, and love to you !
Hey Rani sorry I am late as well getting back to you on this but like everyone else I to am checking in to see how you are doing.Like Amy said I to am sorry that the chemo has been making you feel yuck but just remember that you are an amazing woman in the eyes of everyone on here and your family as well.Hang in there and keep up fighting cause me personally I just don't know what I would do without you on here with us.You are an amazing person and it has been an honor meeting you and getting to know you.You are still in my thoughts and prayers.HUGS to you honey!
Hmm...something to make Rani smile and laugh...hmmm...i got it... changes in to my other character Captain Amy. Goes off to nearest tavern. Finds myself a bunch of cute young lads. Grabs a couple cases of rum. Goes out to a field. Builds a large fire. Watches as handsome lads take off thier shirts.
" Okay lads, start dancing ." Grabs video camera and starts video taping for Rani . ;D ;D
Quote from: Tygrkat33 on November 05, 2008, 05:52:32 AM
It would be an honor to take up the title of High Priestess Fire Eater ;D
...and I can only imagine the garb... ;)
This website has some great info on Poi and Fire spinning,making practice poi, different spinning patterns, safety issues, etc... and you can purchase practice poi there as well {althought it's definitely less expensive to make your own!}
http://www.homeofpoi.com/ (http://www.homeofpoi.com/)
I don't spend nearly as much time there as I would like, but when I do, it's certainly inspiring {what I wouldn't do with more yardspace, spare time and some 'extra' $$...*sigh*}...and should probably be required reading for High Priestesses to the Fire Goddess :P
What a fun site! Lots of video so I can see what they're talking about, instead of just trying to use my imagination. I always learn better by watching than by reading!
Welcome to the circle then, High Priestess! We will be pleased to make you part of the celebration! I have other titles in mind, as well. We shall have to see who presents themselves, and in which direction their particular talents lie...
This could become lots of fun! LOL
Lady Amy and Lord W, thank you both so much for continuing to check on me, and for all your encouragement, hugs and prayers! They are what keep me going, and help me through the difficult days.
I hope you're both ready to join in the fun, though, as well... this looks to be a pretty wild party, once we get the details worked out, anyway! LOL
Quote from: Lady Amy of York on November 05, 2008, 03:39:45 PM
Hmm...something to make Rani smile and laugh...hmmm...i got it... changes in to my other character Captain Amy. Goes off to nearest tavern. Finds myself a bunch of cute young lads. Grabs a couple cases of rum. Goes out to a field. Builds a large fire. Watches as handsome lads take off thier shirts.
" Okay lads, start dancing ." Grabs video camera and starts video taping for Rani . ;D ;D
Oh, Captain Amy, looks like you've got talents to spare! Perhaps you might consider becoming my Chief Chronicler of the Sacrifice... ? Gotta have someone to keep the record straight, right... LOL
So... it looks like we've got the makings of quite the party! I think I might need to start keeping track of all this.
So far we have:
Fire Goddess (my thread... LOL)
Commander of the Sacrifice - Maelstrom
High Priestess Fire Eater - Tygrkat
Chief Chronicler of the Sacrifice - Captain Amy
Divine Whip - Fairyfly
Mistress of the Revels - Lishy
I can think of lots of other titles, if anyone is interested... LOL
(edit/update for accuracy)
i accept the appointment ! :)
HUZZAH!!!
Welcome to the party, Lady Amy!! ;D
*takes in all the 'excitement' Lady Amy brought along*
...this is going to be GOOD! ;D
Good morrow, Sunshine -
Just dropped in to say hello and let you know I was thinking about you. I wish you a lovely day. :-* :-*
Tee Hee Looks like it's been busy in here!
Since I'm taking a break from having my nose stuck in a book, I wanted to come rejoin the fun! My list of talents include: tempting the prey, throwing axes, whip cracking, dancing and picking up drunk people. Lol ;) ;D
*HUGS* Glad you are feeling well enough to come play with us Zemirah!
Captain Amy, points for creativity in luring the dancers to the fire! Tee hee
I can tell that I have been away for way to long cause this party's getting better and better each day.Please would someone fill me in on what I have missed so far.
Quote from: Fairyfly on November 06, 2008, 12:20:47 PM
Tee Hee Looks like it's been busy in here!
Since I'm taking a break from having my nose stuck in a book, I wanted to come rejoin the fun! My list of talents include: tempting the prey, throwing axes, whip cracking, dancing and picking up drunk people. Lol ;) ;D
*HUGS* Glad you are feeling well enough to come play with us Zemirah!
Captain Amy, points for creativity in luring the dancers to the fire! Tee hee
LOL, thankyou ! yes you will find men will do anything for free beer, wine and rum ! Hee-hee ! Plus I also told them they would be partying with some really hot looking women ! ;D. oh and if they did not dance they be seeing the wrong end of my sword . ;D
Tosses another bottle of rum, and a couple juicy steaks to the dancing lads ! LOL !
Rum,Beer,Wine,Steaks on the grill,Hot looking women and bodices.............what more could a man ask for.Life is good. ;D
no taxes?
Quote from: Macintyre on November 07, 2008, 02:59:41 AM
no taxes?
There might be an occasional tax, Mac, but it would be payable straight to the Fire Goddess... and I'm willing to barter... ;)
Quote from: lordwriothsley on November 06, 2008, 02:28:47 PM
Rum,Beer,Wine,Steaks on the grill,Hot looking women and bodices.............what more could a man ask for.Life is good. ;D
Uhhh, Lord W, don't forget about that whole naked fire dancing thing... price of admission, and all that! LOL
Quote from: Fairyfly on November 06, 2008, 12:20:47 PM
Tee Hee Looks like it's been busy in here!
Since I'm taking a break from having my nose stuck in a book, I wanted to come rejoin the fun! My list of talents include: tempting the prey, throwing axes, whip cracking, dancing and picking up drunk people. Lol ;) ;D
*HUGS* Glad you are feeling well enough to come play with us Zemirah!
Captain Amy, points for creativity in luring the dancers to the fire! Tee hee
Hi FF, I'm glad things are starting to look manageable for you guys now! Sounds like you've got lots of skills, girly!
Lets see... what new titles did I put in my pocket today?
Perhaps you need to become my Divine Whip... in charge of directing the dance! The title is yours, if you want it!
Quote from: Peddlin on November 06, 2008, 07:15:32 AM
Good morrow, Sunshine -
Just dropped in to say hello and let you know I was thinking about you. I wish you a lovely day. :-* :-*
Hi Peddlin', glad you stopped by to say hi! Thanks so much for the lovely wishes... they make weekends that much nicer! Come dance with us soon!
Quote from: Lady Amy of York on November 06, 2008, 01:01:12 PM
Captain Amy, points for creativity in luring the dancers to the fire! Tee hee
LOL, thankyou ! yes you will find men will do anything for free beer, wine and rum ! Hee-hee ! Plus I also told them they would be partying with some really hot looking women ! ;D. oh and if they did not dance they be seeing the wrong end of my sword . ;D
Tosses another bottle of rum, and a couple juicy steaks to the dancing lads ! LOL !
Well, we are some really hot women... especially when I get the Fire going really well!!! LOL That's the way to keep 'em in line, Chief Chronicler!
Divine Whip works for me! tee hee ;D ;)
Huzzah! Let the record state...! (actually I updated it myself)
These titles are starting to sound rather... ahhh... interesting! LOL
Time to tune up the drums!!!
HUZZAH indeed!!!! ;D
Quote from: lordwriothsley on November 06, 2008, 02:28:47 PM
Rum,Beer,Wine,Steaks on the grill,Hot looking women and bodices.............what more could a man ask for.Life is good. ;D
LOL!!
Those are nearly the exact enticements I mentioned to get my Husband {then Fiance } to his first faire! :P
All I had to mention to my guy was that he'd see me and other chicks in bodices! ;)
Did someone say hot chicks in bodices.I'm in. ;D
Well... my drums are sounding good... anyone else got percussion? I have a few djembes, several rattles, shakers, maraccas, zils and a didge.
What'chu got?
And so... I've made it through most of another weekend. Some fever now, but I can probably bring it down with ibuprofen. Think it's time to go back to bed...
Rani the main thing is to take care of yourself right now and not try to overdo things.I am glad that this weekend went good for you though.You are still in my thoughts and prayers.Hugs to you sweetheart.
Well... my drums are definitely in tune, now! I'm sure the neighbors all think the natives are attacking at any moment, but it felt good to pound the skins for a little while. I'm just about to dig into a lovely calzone my neighbor brought to me for lunch, and I actually think I may be able to eat some of it!
This makes 4, and that means one less month if all this!!! Thank you all so much for being here with me, and for sharing this burden to lighten my load. You are all so wonderful, and I cannot express my love and gratitude in strong enough terms!!! Thanks again, my friends...
You are very welcome. We are all exactly where we want to be. Happy Monday! It just gets better and better from here on. ::) ::) ::)
You are going to make it girlfriend ! I know you can !
Right now rest and take care of that slight fever. if you can't eat, don't worry about it. there is an old saying that goes " Starve a fever, stuff a cold ! " . So rest and try to get fluids down you atleast !
Hugs and love !
< wonders to herself if Rani could be running a slight fever from watching the naked fire dancers. They would drive anybody's temp up ! Rofl ! >
Definitely a bit warm under the collar in here. Tee hee ;D
Fire wood - $20
Drums - $40
Hot naked fire dancers - beer, rum, wine, steaks, and chicks in bodices
Smokin entertainment - PRICELESS!!!
:o 8) ;D
Aaahahahaha!!! We so totally need to film that commercial!!! YES!!!
ROFLMAO!!!
Starting to feel more human today...
Human is good.
<back to the party now>
All I can find are my bones...but I'm afraid they'll be drowned out by the drums...can I just clap (or slap) along?
I have extra drums... but every instrument adds to the rhythm! You can play whatever you like!
I've got tambourine! tee hee :D
See... everyone probably has something, or can at least find something extra floating around to play. Nice... percussion is coming together, but we need lots more players... LOL
If we play it they will dance... !
Ive got a coke can full of coins I use to settle the puppy down when he is being restless- will that work?
*lol*
You know anytime you need it, there is a big blanket over here with lots of warmth. Hang in there, cause you're inspiring the rest of us ol' sickies!
Love ya!
HUZZAH!! for one month down!!!
You are doing great....I'm sure it was the fire dancers that had your temperature up...a Fire Goddess would get a little heated, wouldn't she ;)
Apologies for my absence, but the High Priestess of Fire Eating had to replace the power source for the laptop...but we're up and running full steam now! ;D
Quote from: Lishy on November 12, 2008, 01:28:06 AM
Ive got a coke can full of coins I use to settle the puppy down when he is being restless- will that work?
*lol*
You know anytime you need it, there is a big blanket over here with lots of warmth. Hang in there, cause you're inspiring the rest of us ol' sickies!
Love ya!
Awww... you're so sweet, Lish! And your shaker sounds like it will work perfectly! One of my best shakers is a film bottle filled with seed beads... Are you ready for the fire, my dear??? I'm thinking you really need a title... I'll have to ponder the matter!
Quote from: Tygrkat33 on November 13, 2008, 04:37:32 PM
HUZZAH!! for one month down!!!
You are doing great....I'm sure it was the fire dancers that had your temperature up...a Fire Goddess would get a little heated, wouldn't she ;)
Apologies for my absence, but the High Priestess of Fire Eating had to replace the power source for the laptop...but we're up and running full steam now! ;D
Oh nice! Does that mean we can webcast the
sacrifi celebration, then?!? You find new and interesting ways to please me, High Priestess...
I believe you may have been correct about my fever... it must have been because of the dancers!
LOL
You are in my thoughts - wow, a whole month of treatments! Give yersel' a pat on the back, m'dear - yeh deserve it!
Thanks Taffy, I finally feel like I'm starting to reach milestones...
I truly admire the way you've faced this - w/strength and humor and the willingness to request and accept support, which in itself takes a great deal of strength. You'll continue to be in my thoughts.
Fins UP!
Thank you so much for your kind words of encouragement, Taffy. It helps so much that I can come here and read all the lovely things you all have written. Especially when the weekend is difficult, like this one was...
I really don't think I could get through this without all of you! Thank you all so much!!! Week 5 is mostly over... thank goodness!
Thank you for keeping your progress posted. Helps a lot of people to remember you and keep you in thoughts and prayers.
Ferret
It's been five weeks already?
I had a thought for you Rani. Have you ever made or meditated with a a mandala? Here's a great site:
http://www.surfari.net/~carol/Mandala.html
Hope you find it uplifting. :)
{{HUGS}} to the Fire Goddess...one more down...and the flames just burn brighter...
You can do this ;D
Huzzah to the fire goddess.Keep on hanging on there and keep up the good work lass.You can do this,I have faith in you.
Yes... 5 weeks already! I think I may be able to actually get through this! It helps getting so much wonderful support from all of you, though...
And.... there's a certain pirate that's been keeping me company lately... virtually, anyway... and he makes it easier, also.
Anna, thanks for that mandala site, it's really beautiful!
Ferret, thanks for your thoughts and prayers, they help so much!
Tygrkat, thanks for the hugs, I can use every one I can get!
Lord W, thanks for your faith in me, sometimes I need someone to remind me that I really can do this...!
I love and appreciate all of you so much, and never more than on Mondays... LOL Have a wonderful day, everyone!!!
Hi Rani, Glad to hear things are moving along. Keep the chin up, YOU CAN DO IT! Hugs and :-*
Hey Chickie!
You are doing just fine, and we are very proud of you. This is just a bump in a very long road, and you will get past it soon. Then you will have clear sailing for a while. Just keep hanging on. :)
Ok, so where are the dancers? No one said they could take a break...
"Here dancy, dancy, dancy..." Oh wait, these are guys...
"Oh WOW! Someone left a keg here for all the bodice clad cute chicks! Who's got a mug?!"
Tee hee ;) 8)
I know... they just wander off whenever my Divine Whip takes a break... I'm going to have to have a talk with my CotS, also... he's been laying down on the job, I guess... it's been a while since he's been around.
That better be a keg of cider... or meade, at least! And the mugs are hanging in the branches of that really cool twisted tree over there... help yourself!
(edited because I'm frequently redundant)
Lady J and Peddlin', thanks for stopping by, and for all your kind words and encouragement... you can never know how much it means to me! The days are easier when I come here and read the wonderful wishes you all leave for me to find. It's like having my very own little wishing well... Thank you, so very much!
Oh yeah... have a mug of cider (or meade...) while you're here! Join the party!!! LOL
Be careful what you ask for Rani because when you tell a M'Crack to have a mug full of cider or meade it all usually ends up gone before you can have a mug for yourself. ;D
That's ok, Lord W... I'm not really drinking much these days, anyway... besides, here I'm a Goddess, remember... I can always make more!!! LOL
Drink your fill, darlin', and just let me know when the keg runs dry...
Quote from: Rani Zemirah on November 19, 2008, 12:55:03 PM
That's ok, Lord W... I'm not really drinking much these days, anyway... besides, here I'm a Goddess, remember... I can always make more!!! LOL
Drink your fill, darlin', and just let me know when the keg runs dry...
Thanks for reminding me sweetheart......That's right you are a Goddess and you do have the power to make more meade or cider,well in that case would you mind if I drank with you all...........Come to think about it I thought I was supposed to be one of the naked fire at your party. ;D :D
Grabs the mug from Lord W.
" You are suppose to be dancing . No dancing .. no drink ! . Someone has to keep the men in line around here. !" Rofl ! ;D ;D
Fires pistol towards the lads feet. " Now dance boys, dance ! the ladies want to be entertain .
Sigh...you just can't find good entertainment anymore ! You have to take what you can find. "
;D :P Sticks tongue out at Lord W and laughs ! ;D ;D
Quote from: Lady Amy of York on November 19, 2008, 01:30:46 PM
Grabs the mug from Lord W.
" You are suppose to be dancing . No dancing .. no drink ! . Someone has to keep the men in line around here. !" Rofl ! ;D ;D
Fires pistol towards the lads feet. " Now dance boys, dance ! the ladies want to be entertain .
Sigh...you just can't find good entertainment anymore ! You have to take what you can find. "
;D :P Sticks tongue out at Lord W and laughs ! ;D ;D
It's so good to be bad. ;D
ROFLMAO!!!!!!!
Oh thank you for the comic relief!!!
That's right, Lord W... no dancing, no drinking!!! And tell that to all your companions, too! Capt. Amy, you have my permission to discipline the men if they start to get out of hand again... and did I see clothing on that one over there??? What exactly do they think this is?!? I expect that to be taken care of immediately! (where is that Whip when you need her???)
Carry on, then...
Well in that case get to making! The M'cracks can drink ALOT of meade. ::)
Kegs full of meade! Tee hee
*brings out the big whip* Ok guys, put the meade down, take the shirt off, and get dancing! *cracks the whip near the guy with the shirt*
(http://i6.photobucket.com/albums/y250/fairyfly3/FFwhipbreaking.jpg)
Be careful FairyFly cause you never know that that guy with the shirt on just might like getting whipped by a hot chick like you and the other ladies. ;D
Aaaaahhhhhh!!!! We've been invaded by McCracks!!! Well... the more the merrier, I always say!!! Especially when they're McCracks!
(even a Goddess can aspire to something else, right... someday I wanna be a McCrack, also... ;D )
So... seem as though I need a Mistress of the Revels, and I have just the girl in mind! Oh Lishy, I need you, dear. I've found the perfect title for you... you'll be in charge of keeping the party supplied with all good and fun things! Including endless kegs of meade and cider, goodies to tempt the revelers... and that silly string you were talking about earlier!
Oh, and FF... that's quite the whip! Yes, yes I think that will do nicely... but I think we're all going to have to start thinking about the garb we're wearing to this little shindig... LOL Something a bit more... barbaric seems to be in order, eh??? Maybe a little leather, or something flowing, perhaps? Although that flame colored hair fits perfectly... :D
*very evil grin* Oh the fun I shall have with this. . . meade and cider and silly string and bunny fur floggers and fairy dust and bubbles - oh my!
Do I get to carry my flogger around and crack it at the naked men too? Cause it only seems fair since Im female and all. . .
*hands out whipped cream filled ballons to all the ladies* Ready. . . . set. . . .
GO!!!!
Official Hierarchy of Rani, Fire Goddess
Fire Goddess (my thread... LOL)
Commander of the Sacrifice - Maelstrom
High Priestess Fire Eater - Tygrkat
Chief Chronicler of the Sacrifice - Captain Amy
Divine Whip - Fairyfly
Mistress of the Revels - Lishy
Master of the Flame - Lord Wriothsley
I can think of lots of other titles, if anyone is interested... LOL
(edit/update for accuracy)
I just wanted to bring this up to date here instead of having to page back...
There are many titles left... who's ready to join us?
Well, you'll have to subject yourself to Fairyfly, my Divine Whip, but I'm perfectly sure she will have a place for one so practiced in it's use... so long as you see to the meade and cider, you may find your fun where you will, Revel Mistress! I also charge you with procuring entertainment for the festivities. I'm partial to Fire, as you know, and spinners are my particular favorite!
Go forth, and do my bidding!
(ROFL!!! Wow, who knew being a goddess could be so much fun???)
It's sometimes hard for me to read the words I've written here when the reality of Friday evening hits me square in the face... especially when so many of you write of how courageous you think I am, and I'm here crying because I'm alone again, and I don't want to face sticking this needle into my leg.
During the week it's easier to put on a brave face, because I don't have to look at this so closely, but when the weekend gets here, and my daughter leaves with my mother so she doesn't have to watch me make myself so ill, all I can think about is... why isn't there someone here to hold me and help me do this... why didn't the Universe see fit to provide me with that, at least, if there is no other way than this?
And once again, it's almost time...
Hey Rani you looking for another member of your crew well consider me a candidate.And by the way if you are interested in being a M'Crack I could take you as a pet because I just became an official pinned member last weekend at CRF.
{{hugs}}
Quote from: Rani Zemirah on November 21, 2008, 07:14:09 PM
... ezpecially when so many of you write of how courageous you think I am, and I'm here crying because I'm alone again, and I don't want to face sticking this needle into my leg.
We're here to remind you how strong you are when you forget...and sometimes it takes a lot of strength to admit that you're scared - sending as much support as I can from afar...
:)
*grabs a mug of meade and gets her torches ready for the fun to
really begin*
Hey girlfriend.... sending a big hug to you. Hey hon, go ahead and cry if you want to. I know everyone says you are brave and strong, but i remeber when i struggled with my illness the last three years ( it took them that long to discover the tumor on my spine, and to diagnose my diabetes ) there were days that i did not feel like being brave and strong. There were days when i just wanted to sit and cry, so go ahead and cry if you want. Sometimes a good cry really helps.
Do you have a journal. i found writing down all my feelings sometime s help.
I know as a mother myself, how hard it is to say goodbye to your daughter on the weekends, but you are doing the right thing, not having her witness your bad momments. My poor liitle boy witness a couple times his mommy being carried out on a stretcher by paramedics cause i had passed out cold from pain or could not walk or talk. The look of fright on his face, is something i will never forget. So even though you miss your little girl it is good she is not there on the weekends.
Big hugs to you !
It's hard to be brave all the time hun. And I SOOO know your pain at saying goodbye to your little one for the weekend!! *HUGE HUGS*!!! And like Amy said, you go ahead and cry all you want! It releases some of the stress, and causes good endorphins to flow which helps. So, don't feel bad about shedding some tears. It's part of healing.
Wish I lived closer hun. I'd come sit with you and make you laugh. Even hold your hair if ya get sick! I've been there with the being alone thing for so long, I know how comforting it is to just have someone to talk to. I've been trying to catch you in chat, but I keep just missing ya. Lol Unfortunately, after tonight I'm not sure when the internet at the new house is going to be turned on. So here are a bunch of *HUG* *HUG* *HUG* *HUG* *HUG* *HUG* *HUG* *HUG* *HUG* *HUGS*! Use them when ever you need one!
I'm going to miss ya this weekend!
Lishy dear, feel free to flog which ever one catches your eye. ;)
Thank you all so much for being such good friends! I'm not really feeling so well right now, but I'll post more later, because I want to tell you individually how wonderful you all are... but right now I may need to go yurk...
So... later...
Rani just know that we are still here for you when you need us sweetheart.
Rani, Im not one to post personal feelings on here much- you know why. But know that I love you, Im pulling for you- and there is absolutely NOTHING wrong with crying, feeling sorry for yourself, being angry, and ranting and raving at God. One of the hardest things I had to learn (and am still learning, daily!) is that human emotions are very real, and often, very neccessary things. They are given to us to cope with difficult situations- and to feel what we feel is healthy as it helps us process trauma and well. . . life in general.
You ARE brave. You arent hiding in a corner and pretending this isnt real. You are facing head on with your head held high, and even more remarkably, a sense of humor! Not only that, but you arent wallowing in it or using it as a crutch- you even hand out compassion and kind words to those around you in their moments of weakness. You are doing wonderfully babe, and even when you have those moments where the negative rushes in, you aren't folding up and saying "I quit."
Youre gonna be alright girl. Just hang in there best you can, and when you feel your grip slipping, you let us knw. We'll hold ya up from below.
I have the bestest friends in the whole entire Universe!!! You are all so kind and supportive, it almost makes me cry, but with joy! I'm feeling a bit better today, but this weekend was definitely more... intense... than ever before, and it's going to be getting worse with every shot, I guess. Still, you all help so much, and I am grateful for each and every one of you! Bless you...
Lord W, thank you so much for your humor, and your participation in all the silliness around here! You definitely deserve a title, and I think I've found the perfect one for you... Do you think you would enjoy the duties of Master of the Flame, in charge of keeping the sacred fire alight??? I have to say, it may not be easy, since I don't condone the cutting of trees to burn, and only use down and dead wood for my fires, since the forest is where we hold our revels, and we rely on the good will and grace of the trees. What say you, my Lord??? Shall I add you to the roster?
Tygrkat, I don't know what I would do without your kindness and support! You make it easier for me to laugh, even while I'm crying, and I will always be truly thankful for you! I can't wait to watch you with the torches, either!!!
Capt. Amy, thank you for understanding what I'm going through, and for relating some of your own story. It helps to be reminded that I'm not the only one who has suffered, and I certainly don't have it as rough as some. It helps me to put things in perspective, sometimes. I do have a journal, and I use it occasionally, but it seems to me that this thread helps me at least as much as it does, and all of you are far more fun that pages that don't do anything more than absorb ink. Thank you so much for all your kind words of encouragement, and for keeping those dancers on their toes!!!
Fairyfly, it means so much to me that you find the grace to post here for me even while you're own family is having such a difficult time, and it's a measure of your kind heart that you do! Thank you so much for the offer of hair holding, and next time I need it I'll just pretend you're here with me! LOL Thanks for taking Lishy into the fold, too... I think she's been wanting a little extra practice with that flogger of hers!
Which brings me to my darling Lishy... you are so good for me, my dear, and so very much fun, as well!!! I thank you for being there every day whenever I need to talk, and for making me smile so often. You give me so much loyalty and honest friendship, and that is rare in the world as it is. Thank you also for helping me to remember that I'm not alone in this, and there are people who care about me, even though we may never have even met in person...
And now I'm weeping in earnest, but for different reasons than last time! Thank you all so much for being who and what you are. I love you all so much, and appreciate you to no end!!!
And now... Lord W... would you see to your new duties? I believe the fire may need tending!!! Oh, and you may now drink as you like, but you still must to dance on occasion, since all men are required to entertain here, even those who bear titles!!! And remember, the clothing is not optional...
Rani I accept the title of Keeper of the fire so go ahead and add me to your roster sweetheart.And by the way thanks for allowing me to drink now.............Also be carefull what you wish baby girl because when I get hold of that fire.....well lets just say that you ain't seen nothing yet where gutter minds are concerned. ;D
I have updated the Roster of Titles to this point, Lord W! Welcome to the fold...
But you must take care with your title... it is Master of the Flame, and I expect to see it appear on your profile forthwith, understood? And that goes for the rest of you... if you will take my titles you must display them!!!
So say I, Rani, Fire Goddess...
i would add my title, but unfortunately they don't give you much room in your profile.my title won't fit. ! I'm working on it though ! ;D
I know, I had to remove some things from mine to put Fire Goddess on there... but I figured it was an even trade... LOL
*HUGTACKLE*!!! I'm back! Did ya miss me? Tee hee
Zemirah darling, even though we haven't met...yet... you have become part of my family! And all of my family are dear to me! And now I have a back yard where I can practice my whip and flogger techniques! *rotten evil grin* Speaking of which, I happily found the box that contained them and unpacked them today!
Lord W, you my friend are not the only one who's mind has a happy home in the gutter! You are truly among friends here. Lol
*HUGS*
Lord W, you my friend are not the only one who's mind has a happy home in the gutter! You are truly among friends here. Lol
(Quote from FairyFly)
FairyFly that's the fun part about this group is the fact that I have other friends to share my gutter mind with ;D.And Rani my lovely Fire Goddess I will work on having my profile updated with my new title.
Hi, hon - just wanted to let you know you remain in my thoughts - rest up & take in some calories so you have something "in the bank" for the weekend. Take care!
Thanks, Taffy. It's been a bit rough the last couple of days to even eat anything because of another failed attempt at anti-depressants that really tore up my stomach, but I think I'm starting to feel a bit better, and will probably be able to eat tomorrow. Thank goodness I don't have to cook anything this year. I get to play the chemo card and get out of all the chores... LOL I'll make sure to bring home lots of yummy leftovers also, even though nothing tastes very yummy these days...
Still not a very good day... might go lay down again for a while.
Have a Happy Thanksgiving, everyone!!! I love you all!
Rest up hun. Have a great day tomorrow! I hope something tastes at least a little like yummy food! Love ya too! *HUGS*
Happy Thanksgiving to you as well sweetheart.Like everyone else has said rest up,take care of yourself,and hopefully something will taste at least a little good like a traditional Thanksgiving dinner should.You always have been and will continue to be in my thoughts and prayers sweetie.
Hoping your feeling rested and happy...and that you were able to enjoy some of the good stuff yesterday, you continue to be in my thoughts :)
hmm..something to get Rani smiling..... I got it. Goes running from camp fire ," Be back in a bit."
Few hours later comes back.
" Okay , I think I have found the ulitmate Thanksgiving gift and entertainment for us ladies ."
In honor of Thanksgiving in walks the Chippendale dancers wearing nothing but buckskin. And then over in this corner i have a giant wrestling pit filled with cranberry sauce !
Well, I had a really nice Thanksgiving. I got to spend a while with my large friendly family, ate really good food (thank goodness everything tasted right!) then when I got tired I came home, rested, and had a lovely chat a little later. It was nice to have such a really good day...
Capt. Amy... did you mention buckskin??? That got me smiling right away... although I'll certainly be interested in seeing the results of the cranberry sauce wrestling. LOL
Hope everyone had as nice a day as I had, and enjoy the rest of the weekend! I'll post tomorrow if I'm not to tired.
Quote from: Lady Amy of York on November 28, 2008, 02:49:49 PM
hmm..something to get Rani smiling..... I got it. Goes running from camp fire ," Be back in a bit."
Few hours later comes back.
" Okay , I think I have found the ulitmate Thanksgiving gift and entertainment for us ladies ."
In honor of Thanksgiving in walks the Chippendale dancers wearing nothing but buckskin. And then over in this corner i have a giant wrestling pit filled with cranberry sauce !
Lady Amy, you know just the thing for the occasion, as always ;D
Yea, it is funny how such a shy, sweet, innocent , well mannered girl like me should know these things ! ;D ::)
( seriously though i was the shy, quiet girl growing up ! )
Glad you had anice Thaksgiving Rani. Mine was good. Snowy, but good ! :)
Rani I to a glad that your Thanksgiving turned out to be a good one and that you got to eat lots of good food to.Continue to take care of yourself and I will continue to keep you in my thoughts and prayers sweetie.
I am so feverish I think I might be glowing... not at all a good day today, so I'm just staying in bed. Oh my...
Well, looks like I've survived another weekend... it's getting a bit more intense every week, though, but this week was a bit easier because I had a little something for nausea, which also helped my outlook a great deal. I'm still tired and feverish, though, so it seems to be taking longer to get over it all, as well. And the dehydration... I feel like I'm just drying up! I can't drink the water fast enough to stay hydrated, and I'm drinking over a gallon a day... I feel like I'm going to start sloshing when I walk, soon!
Ibuprofen is my friend...
So happy to hear your holiday was good.Keep the faith and know we are here for you. ;)
Thanks, Lady J... I appreciate it!
I like the new avatar pic, btw...!
thank you. :)
Zemirah, I will be thinking warm and healing thoughts for you this weekend
...our computer at home is kaput so I may not get to check in and see how you're doing...you'll have to keep those dancers in line and the mead and ale flowing... ;D
{{hugs}}
Warm, comfy thoughts off to you - *hugs*.
Hello, my wonderful friends! I have something of a special request to ask of you all this weekend. I have noticed in the Candles for Prayers forum that there are many new threads, with many of our friends, old and new, having some sort of pain or unhappiness in their lives. I've been through the same thing several times now, and will survive this time, as well. Some of our friends are facing their trials for the first time, however, and need your thoughts and prayers far more that I do at the moment. I know many of you read the new posts there regularly, and post your healing thoughts and comforting words, but for those of you who may not have managed to get there recently, I ask that you find a thread this weekend and send someone a bit of love, comfort and healing, in lieu of posting here.
Of course, the circle continues, regardless... so feel free to stop by any time for a tankard of the finest of meades, ciders and perhaps a keg or two of ale this week! I do know how the kilted ones like their ale... Perhaps a tot of rum is in order also, since it's a bit nippy out, and I would hate for the dancers feet to become so numbed they are unable to continue!!!
On with the revels!!!
Hey, Rani -
I must say that your compassion is amazing. The fact that you can think of others, while suffering through your own adversity, I think will be of great benefit to you, in the end. I am a firm believer that "What goes around, comes around", and your karma should be in very good shape.
I do apologize for not being around for a while, but I was out of town for the entire week after Thanksgiving. I did think of you much, though, and I am glad to hear that you had such a lovely holiday.
I understand that all of this is getting tougher for you, as treatment progresses, but I am sure that, by now, you are starting to realize that you are much stronger than you ever thought you could be. If you ever start to question that, just ask us. We all can see how strong you are, and when things get rough, you just seem to get stronger. You are definitely an inspiration to me, and I am sure that I am not the only one. We are all very proud of you!
I just want to jump back in and let you know that I have been thinking of you, even while I was gone. I wish you wonderful things this holiday season, and for many years to come.
Peddlin :-* :-* :-*
Oh Peddlin,
How sweet of you to say such lovely things! I hope your Thanksgiving was wonderful, and that you enjoyed your time away, It's always nice to get out of town for a few days!
I was just noticing last Friday how many new and existing Candles threads there were, and since I have such an overabundance of wonderful friends who post in this thread, and who are so supportive and uplifting, I thought that I might share a bit of my own wealth with a few others who were struggling with their own pain, hardships and fears. It's easy for me to get wrapped up in my own turmoil and forget about what others must be experiencing, but a quick trip to the Candles thread has the happy effect of kicking my butt back where it belongs, to the realization that things are not so bad here, even though this is not much fun, but at least I know what the problem is, and I'm on the road to recovery. Not all of our friends are so lucky. Some are struggling to find a diagnosis, others are dealing with things that can't be changed, and still others are suffering losses that would devastate at any time, but especially during the holiday season.
I am so grateful to all of you who come here and post your support for me, and I don't even have the words to express my love and thanks for each of you! You will never fully know how much you all mean to me, or how much you help me get through every single day of this!!! I have not always expressed my gratitude well, or completely, but I thank the Universe daily now, and not just during the Season, for all the wonderful blessings in my life, amongst which I number each and every one of you!!!
Thank you all so much for being here for me, and for letting me be here for you when needed. This place, and all of you amazing fairmily members truly enrich my life, and ease my path... We are all so very blessed in each other!
Rani,
What you said in your last post was just beautiful !
You are a strong, and beautiful person, not just on the outside, but inside too ! Hang in there girlfriend. I know you area fighter and a strong spirit and you will make it thru all of this. Love you. Hugs !
You are very welcome, Rani, but I didn't say anything that is not true. You are an inspiration, and we are all very fortunate to be in each other's lives.
Lairde Guard'n and I spent the last week taking my 89 year old father out to party, which is always an experience. He had a wonderful time with his children and grandchildren, and even though he will be paying for it for the next couple of weeks, it was worth every minute. I have discovered that it is the memories that we make that are important.
Bless us every one!
That was very nicely said Peddlin.You are right,memories are what make things even more sweeter and they also live on forever which to me is a very good feeling right there in itself.
Each of us gives of themselves in the ways that resonate within us.
Lady Amy, if I am strong it's because you make me so! I see your own struggle, and understand that what you have gone through, and are going through still, must be so much more frightening than my own trials, and I see you stand up and face it with courage every day, even when courage seems impossible, while still loving and supporting all of us here, so how can I possibly do less when you inspire me so???
Peddlin, your father is lucky to have a daughter who loves him enough to spend time with him, and make sure he is surrounded by loved ones, and you are lucky to still have him to party with!!! My grandfather is 95, and my grandmother is 89, and they both had to miss Thanksgiving dinner because my GM was ill, and my GF wouldn't leave her. So, everyone stopped by afterward in ones and twos to visit, and so it didn't become the first Thanksgiving without them... Memories are indeed important, as are our loved ones!
Lord W, that is exactly right, our memories are what we pass on when we share them with the ones we love, and that is it's own kind of immortality...
We all shine, and that is the light of the Universe...
I'd like to officially re-present myself, my Queen.
Apologoies for my over long absence.
::) ;)
I am so glad to see you, Commander! How are the raver raids in the northern reaches going??? I know it's difficult with all the snow and such you've had up there, but please try not to stay away so long again! We've been having quite the circle while you've been gone, however... I think it might be time for that dance you promised me, Sir!!! The ladies have been waiting patiently...
LOL
Oh ummm...THAT dance!!??
Would you settle for a kilted can-can?
Not on your life!!! Perhaps I can arrange to have the circle cleared, however, since the dance was originally offered as tribute to me, and not as entertainment in general. And as my Commander of the Sacrifice I can grant a favor if I am so inclined. You may dance for me without other eyes (or cameras named Haggis) pointed at you, Sir. Allow me to have the fire stoked, and I'm sure the "entertainment" could use a break! Have a tankard of your beverage of choice, Commander, while I make arrangements..
(this should prove interesting... )
ROFL
I have the most incredibly amazing news... EVAR!!!!!!!
IT'S GONE!!!!!!! Undetectable levels in the blood, that's what the labs I took last week said!!!!!!! The virus is gone, and my chemo will only have to last the original 24 weeks, instead of the 72 they recently said it might have to last if I couldn't clear it right away! I still have to take the maintenance doses for another 16 weeks... but I no longer have the killer in my body!!!!!!!
Sorry, reaction is finally setting in, and I'm starting to cry!!!
I am so thankful to each of you who have been here for me, and who I'm sure will continue to be here through the rest of my treatments, and I just want you all to know how much you all mean to me, and how much every word you have all written here has lifted me out of myself and helped to make me whole again!!! Thanks to you all I have laughed until I cried many times, I have cried and you have comforted me, I have found my way out of the wilderness and to the flame of lasting friendship and I have had more fun than someone so ill should ever have expected to have!!!
We're not done yet... but when the chemo is over for good and I am healthy again, I have promised myself to ask admin if we can move this thread to John's Inn and rename it something that has absolutely nothing to do with fear!!! Will any of you make the trip with me???
Many congratulations on your news
Thank you so much, Lady Glorianna! I hope things will begin to turn around for you soon! I still am sending you loving comfort for your loss, and healing energy to help lessen your pain. I hope it can help even a tiny bit!
Very good news to hear hun! *HUGS* I'll save the hugtackles for when you're all better and up to getting them. Lol
Of course I'll follow you to John's Inn. Wouldn't be the first time I've visited there. Tee hee ;D ;) :P
Rani sweetheart this is such wonderful news.I'm so glad that the killer is gone,see what the power of prayer can do.Just like FairyFly said I will of course make the trip to Johns Inn with you as it won't be the first that I to have visited there either.HUGS to you sweetie.
Oh I'm so glad you both want to continue this adventure!!! It's become something so different than it started out as, and we've begun having so much fun with this whole fire/drum/dance circle that I think it might need a new permanent home in John's Inn... and that way we can get as wild as... well, as we can all deal with!!! LOL
Oh, Lord Flame, will you see that the fire is built up double this time, and Lady Whip... will you see that the dancers are taken for refreshment and allowed to rest a bit, then you may entertain yourself how you like with them until I recall them to the Fire. I have a command performance to attend, and I am guessing I will never get to see it if there are others present... LOL Now where is the Mistress of the Revels??? I believe I'll need to lay in a stock of Loki for this performance... (hmmmm... wonders if she could procure some of this Hot Dam^ I've been hearing about...?)
I'm actually glad it's Friday, for the first time in many weeks, because now that I know this chemo will end sooner rather than later, I'm anxious to be done with it, and it doesn't scare me anymore! It's not fun, of course, but neither is it stronger than I am, particularly with you all by my side!!! Thank you all, again and again...
Quote from: Rani Zemirah on December 12, 2008, 07:33:04 PM
... (hmmmm... wonders if she could procure some of this Hot Dam^ I've been hearing about...?)
...
Let's see, I believe the McLotofus faire van still has a half bottle of Hot Damn! 100, along with some Goldwasser and probably some Goldschlager.
Half a bottle!?! Sounds like just the stuff, Zaubon!
(I wonder how much that'll loosen a kilt???)
Oh yes....... I never got that dance from you, either... did I???
Ok, line form to the right...
Muaahahahahahahaha...... !!!
You didn't come to the campfire last Friday or Saturday. How can you see the dance when you're not there?
I'm sorry, Z, but I am just a bit occupied most weekends... but last weekend was spent stoking my own personal Fire (I had a fever of 102* most of the time)!
Besides, those two particular dances were offered to me, and if I am not in attendance then they don't count, and must be performed again while I am at the Fire... So Say I, and none to say me nay!!! Not to worry, though, I have banished Haggis from the dance for a day or two, and I shall be in attendance this weekend as much as possible! Dance on!!!
We have a place for Haggis to do his thing now http://www.renaissancefestival.com/forums/index.php?topic=5008.0 (http://www.renaissancefestival.com/forums/index.php?topic=5008.0)
Zaubon has created a wondrous realm where we may Drum and Dance around the Fire, and in a place where there pain or fear may not intrude (unless requested by recalcitrant dancers and administered by my Whip, of course...).
Follow the link, and help create the Circle!!!
*Starts herding the dancers to the refreshment tables in the new Drum Circle area*
Don't worry, they'll be all rested and ready to go when they are needed again. Should any of the ladies have need of practice with either whip or flogger, the dancers will be waiting in the wood around the new circle. ;)
This fire in my brain is raging full force tonight, and I ache as though something is stripping the veins from my flesh and prying my bones apart... and no amount of ibuprofen slows it, or even makes a dent!
102* again, for a few hours now...
Surely this must presage some transmutation... I wonder what I will be when I am done with all this???
Quote from: Rani Zemirah on December 12, 2008, 09:02:16 AM
I have the most incredibly amazing news... EVAR!!!!!!!
IT'S GONE!!!!!!! Undetectable levels in the blood, that's what the labs I took last week said!!!!!!! The virus is gone, and my chemo will only have to last the original 24 weeks, instead of the 72 they recently said it might have to last if I couldn't clear it right away! I still have to take the maintenance doses for another 16 weeks... but I no longer have the killer in my body!!!!!!!
Sorry, reaction is finally setting in, and I'm starting to cry!!!
I am so thankful to each of you who have been here for me, and who I'm sure will continue to be here through the rest of my treatments, and I just want you all to know how much you all mean to me, and how much every word you have all written here has lifted me out of myself and helped to make me whole again!!! Thanks to you all I have laughed until I cried many times, I have cried and you have comforted me, I have found my way out of the wilderness and to the flame of lasting friendship and I have had more fun than someone so ill should ever have expected to have!!!
We're not done yet... but when the chemo is over for good and I am healthy again, I have promised myself to ask admin if we can move this thread to John's Inn and rename it something that has absolutely nothing to do with fear!!! Will any of you make the trip with me???
My good Rani,
I have sat following this post of yours from the beginning and thinking on what to say to you about what you had to face and were going through, and the more I saw what you wrote, I saw I didn't have to say anything. You did all the work yourself in expressing how you felt, what you wanted to happen, how the people around you helped and everything. I saw your own strength you didn't know you even had spill forth and take over making you stronger and get through this situation. If this were not to have been so, I would have interveined with what wisdom I could have offered. I say this because I went through cancer treatemnt a year and a half ago and know what feelings you had. Although mine didn't need chemo, the radiation still reared its effects. I was given the all clear last May 5th. So I can relate and would have tried to help you through. And having certain CLOSE friends helps. But by watching your openness in your writings here I knew, even though you didnt yourself, that you had the strong mind already in the works. I am pleased at your outcome and pray the rest goes well and you continue to be healthy. Oh, and by the way, one thing that REALLY helps keep feelings in check during things like this, is to write down all your feelings and thoughts in a journal every day. Believe me it is like a (no pun intended here) shot in the arm in coping and feeling emotionally stronger. HUZZAH to you for your strength and positive attitude!!!!
Be Well,dear lady
Lord Sir Clisto of York
My Dear Sir Clisto,
Thank you so much for your kind words, and for sharing a little of your own ordeal. I can't even imagine having to face radiation, but I am so glad you didn't need chemo as well! And congratulations on getting the all clear! That is wonderful news, and I'm so happy for you!!! My wish for you is that you never be troubled by this shadow again, and your life be long, happy, healthy, and full of love and laughter, Sir!!!
I have been thankful every day for not only those who post here in support of me, but also for those hundreds of silent readers who have viewed this thread thousands of times, and sent so much healing my way. I will never know exactly who to thank for this outpouring of love, strength and well wishes, but I know they are all fellow rennies, which strengthens my conviction that we are an amazing group of individuals, united in our love of Faire and our bonds with each other, even though most have never, and may never, meet in the flesh!
When I first started this thread, I must admit it was simply a way to express my pain, fear and self-pity at the ordeal I was facing, but it quickly became something so different, and that is because of the overwhelming flood of support, prayers and well wishes I have received, both posted and silent, and though people say I have so much strength, I know it has mostly come from all of you who send it to me daily! This support, and my own illness, have also helped me to strengthen my compassion for others in need, and caused me to recall the power of positive energy and healing prayer, and if I had received nothing else from the experience, I would be eternally grateful for that gift. I feel my own connection to the Universe more strongly than ever before in my life now, and understand that when we are ready we may receive the gifts it has in store for us...
Thank you for being with me through this, and for your support and friendship, spoken or not! I owe so much to so many, and I will carry that debt with gratitude and humility, now and always...
Blessings,
Rani Zemirah
Rani,
I am sorry i did not post sooner girlfriend. I am estactic over the good news over your latest blood test results. Yea, yea, and yea ! ;D :D ;D :) ;D
Heading over to the fire circle to celebrate good news !
Now we just need to get rid of that fever of yours. Have to be well for Christmas ! You never know who you may find under the miseltoe you know :)
Hugs hon !
Dearest Rani -
What wonderous news! I am so happy that your illness has been subdued, and of course, it will take a while to purge your system of the poisons that were used to destroy that illness, but now you know that it worked, and soon, you will be on top of the world again. What a wonderful Christmas gift for us all!
I would also like to say thank you for allowing me to be part of your support system. Reading about what you have been going through, and experiencing that and the reactions of all of the participants on this thread, has somewhat restored my faith in the human race. It is so good to watch people, most of whom have never met, care so much and support each other, with no expectation of compensation or personal glory, but just because they feel compassion for another human being. I would like to thank you all for helping to restore a little of my lost faith in humanity.
You are all amazing! HUZZAH to you all, and may the "Powers That Be" bless us everyone!
And Rani - You Go Girl!
Peddlin
Amy,
Thank you so much for continuing to post here through all of your own trials and hardships. Your strength and compassion truly inspire me, as does your sense of fun and humor!!! You just continue to amaze me on a daily basis, my friend, and I try to model my attitude after yours! The fever is something I just have to live with for 3 days a week until they let me stop the treatments, because it's my body's immune response to the chemo, but it will stop once the treatments stop, so I can live with knowing what causes them, and when they will end... At least the holidays are during the week this year, so I don't have to worry about being ill during them!
Oh... and there's only one person I want to catch under the mistletoe, and since he can't be here with me, I'll just have to kiss my computer screen, I guess... LOL :-*
Peddlin,
Thanks for all your wonderful support and kindness through all this, and, while I still have 15 weeks of treatment left to go, it is in the knowledge that it has all been worth it, and will continue to be worth it, now that I know it really has done it's job!
I agree with your opinion of all the wonderful people who have posted, and continue to post, here. They are truly amazing, compassionate and selfless to have given so much of themselves, their time and their loving kindness to someone they didn't even know, and to all the others in the Candles forum where they post regularly, as well! I second your wish for blessings upon each of them, and I pray that this Holiday Season, and every day of their lives, be filled with Joy and Blessings!!!
Thanks, my friends... you all lift me up!
Thanks for the compliment girlfriend. But are you forgetting someone. YOU ! You, my friend are also a true inspiration. Hugs to you !
Yes, just like I stated in my post that you actually took he control even though you didnt know you were and not only inspired everyone around you but yourself as well. So yes, as Lady Amy said, hats off to you.
Now, Someone mentioned about dancing around the fire circle. Does this happen to involve any nudity? Cause I must be there to make sure it is done properly.... ;D ;D ;D ;D
been reading this thread for a couple of months now, didnt comment because dont really know you or your flock of rennies, but chemo is scary, and nothing can change that.
my doctor put me on an oral chemotheraphy regiment, 250mg a day to prevent my UC from becoming a full blown colon cancer, and the side effects suck, but everyday i just keep myself motivated, and realize that no amounts of chemo or intraveinous remakade ( another lovely chemo drug ) will scare me into giving up. life is short, and ultra precious.
your story is inspirational. or as we used to hear, "gettin' by with a little help from my friends..........."
Ok... I suppose I can just accept this compliment gracefully, and say thank you...!
And yes, Sir Clisto... you are welcome at our Fire! We have lately moved over to John's Inn for the circle, however, since there can often be less clothing than is common for a Candles for Prayers thread!!! LOL Please join us here for much merrymaking, frivolity and even a tankard or two!
http://www.renaissancefestival.com/forums/index.php?topic=5008.0
Well, what if I make sure there are candles and I pray real hard for the other, will it fit here then? LOL.. :P
When I started this thread I didn't know most of the people who post here regularly, either, or really many people here at all, but the people who make up this forum are amazing, and one by one they sent their support, prayers, hugs and laughter every time I needed them!!! The true inspiration is in the hearts of the people here, who give their time and compassion to so many, just to brighten someones day a bit...
I'm so sorry to hear that you're having to go the chemo route, also, but if there's one thing I continue to learn every day, it's that we can survive more than we think we can, especially if we have people who care about us!!! I would encourage you to post your own thread, and post in it often, and you will meet many of the same people who post here, because they give themselves to many others on here, and they have made so much of the difference during all of this! It's amazing what a lift it is to log on and find such an outpouring of love and support from friends you didn't even know you have, and to see them there day after day, week after week, and know they'll be there when you need them!
I will be thinking of you often from now on, kc, and sending you prayers for strength and healing. I hope to see your Candles thread when you're ready to let us in...
Quote from: sir clisto on December 16, 2008, 08:40:04 PM
Well, what if I make sure there are candles and I pray real hard for the other, will it fit here then? LOL.. :P
LOL... You may post here whenever you like, Sir Clisto, and I will always reply, but the dancing and drumming will still take place in John's Inn...!!! Please come join us anytime you like... there could even be a title to be had for just such a Champion as yourself. I hear there is active recruitment going on over there!!! LOL
I just made an appearance there and am observing for the moment.
Tsk, tsk, tsk... no observers, remember... LOL
We have drummers, dancers, visitors and those whom the Goddess claims as Her own, but everyone participates in some way! I'm sure you'll find something to interest you, Sir...!
Already have.. :o
LOLOLOL Wonderful, good Sir!!! We shall deal well all in the Circle! Stay and enjoy!!!
Back t regular programing. Just figure I would put a little laugh or smile here for others going through rough times.
That's kind of you, Sir. It's nice to have fellow Rennies wish you well, particularly when times are difficult. I thank you for your kindness!
Friday all over again, and I'm not feeling so hot even before treatment... I seem to get more tired every week, and it takes less for me to become exhausted. Today I did some shopping, both holiday and weekly grocery, and before I was even done I thought I was either going to lose my lunch or just lay down and go to sleep, or possibly both! When I get like that I also get irritated, and find myself snapping at my daughter, who of course doesn't understand what she's done wrong. I always manage to let her know it wasn't her, but then I'm consumed by guilt for hours... I'm doing pretty good with the treatments themselves, but some of the other side effects are starting to really kick my @$$ during the week! I'm very tired of being very tired... maybe I'll sleep earlier tonight.
Oh, and the fevers are starting to come almost every day, usually later in the afternoon or evening...
Well, keep a chin up that it IS the weekend. I went through this as well and you have to just keep talking to people or keep active as you can. Like I said before, Rani, try also writing all this down word for word in a journal how you feel, what you think, etc. Helps a lot.
Glad you went shopping etc.. That is all distractions from the crappy other stuff. And with your daughter as with our son, you have to sit her down and have a real involved discussion until she does understand. Just a passing communication each time is confusing to kids. It really helped mine and he was 18 at the time. Hell, I even had to do that with a few co-workers who didnt understand. LOL... Just take it all slow while going through everything. Rushing only adds to stress which makes ya upset, in a bad or depressing mood and makes things go backwards. Take a deep breath, In, out, in, out and relax. See, aren't you feeling better already? :)
Thank you, my friend... I've been talking to my daughter about all of this since it started affecting me, and even though she is only 7, she knows what the side effects are and how they may make me act sometimes, but that doesn't make it any easier for her to deal with when she's in the middle of it! And it doesn't make me feel any better about myself when it happens. I know it's not my fault, but try telling yourself that when your baby is crying because she doesn't know what she did wrong, but she's still getting snapped at by the one person in the world who's supposed to be on her side...
It always passes, and we always talk about it, but that doesn't make it ok, only understandable...
I'll be so happy when all this is just over and done, and I can feel more normal again! I do appreciate your encouragement, though, and I do actually have a journal that I write in regularly, and it does help, but sometimes it helps more when I write and someone actually answers, just like you have... Thanks, again!
Rani my dear sweet queen as always you continue to be in my thoughts and prayers.
Thank you, my friend... I welcome them...
The big thing is whatever works for you. yes, talking to someon who will listen helps as well as writing. I have done both. So, let it fly when and wherever. No better friends then rennies.
I have come to find that so very true!!! Thank you!
I don't know where my head has been, but tonight is the first time I've seen this thread. I have read about your trials, and I'm so sorry for what you have to go through, but reading on, I can see what a strong and beautiful woman you are, and how wonderfully you have been handling this.
I'm sure when you are hurting, you don't think you are strong or brave, but you really are an inspiration. I'll add you to my prayers, and now that I've found you here, I'll pop in to see how you are doing.
Hang in there girlfriend, i know you are strong. Hugs and love.
Well, it's such a quiet, unassuming little thread, Lady Renee, why on Earth would you have noticed it??? LOL No matter when you stumbled on it, though, I appreciate that you wanted to take the time to say a prayer for me, and I welcome you to my little corner of the Forum. I do occasionally have those moments when I'm not so chipper, but everyone here does such an amazing job of keeping my spirits up, or dragging them back up when I let them fall too far!
I appreciate so much your kind words, and look forward to hearing from you! Thank you...
Lady Amy, I'll get through all this, but sometimes a get a bit angry, both at myself, and at the circumstances, and I have to let it out somewhere. Here, I know I can safely release those feelings and you all will just accept them for what they are and continue to love and support me anyway! There is truly no better therapy than that!!! Thank you, my friend!
Oh my gosh Rami, Look over there!!!! Is that an elf I see with pointy toed shoes? Dang, you just missed Him..
Now, for that one second, did I manage to take your mind off all the nasties? LOL... ;) ;D :D
LOL... Elves are in every mall this time of year, Sir Clisto... pointy toed shoes and all! You, on the other hand, are definitely one of a kind... LOL Thanks for the distraction!
And why on earth are you awake at this time of night??? I just took my treatment, so I have a reason...
See, you just have to believe... LOL... What little it takes to divert you.
Yeah... I guess I'm just simple like that... ROFL!!!
I work nights that's why I am on from work yet. Getting to go in a few hours. Hope you are feeling better this day and that your weekend is nice, safe and peaceful. A good Mother/Daughter time to help throw those guilt feelings away.
Oh NO!!! You just missed a nakid Chip n Dale dancer run across your yard!!!
I quickly averted my eyes.
LOL... Unfortunately, the weekends are when I take my treatments, and I tend to get quite ill, so my daughter spends the weekends with my mother. I haven't gotten to spend a weekend with her for 10 weeks now... I usually spend most of Saturday either in bed or on the couch, although I frequently read the forums when I feel like I can sit at the computer for a few minutes, and almost half of Sunday is spent trying to recover enough so that when she gets home in the afternoon I can actually take care of her. I never look forward to weekends these days...
I saw the Chippendale Dancers several years ago, but I'm pretty sure they were all interested in the half naked waiters, so I wasn't terribly impressed... LOL Oh, but they were all very pretty!
Ok... chemo is starting to kick in, so it's bedtime for me, I think... I stay up so late on Fridays so I can be sure I'll be able to go straight to sleep after I give myself the injection, and sleep through several hours of side effects (which are starting even now...).
Have a good night! See you in the Circle!!!
Sorry, thats too bad. But, always keep possitive in the fact once its over you will have so many good weekends to make up you will not know what to do. And, even though the Chip n Dale dancers werent your style, I did see you look. be honest, you looked I saw you. ;) So, another distraction gained. LOL...
You have as good a weekend as you can and even through all the crap, know we are all here to help where we can. BIG KNIGHTLY HUG!!!
I just ran into this today. I am at work and fund this. I will left you up in pray and know you will be better. If I can do anything let me know. I will send healing energy your way to heal you from this problem. Best wish and love, Lord Zenok.
Quote from: Rani Zemirah on December 19, 2008, 07:43:08 PM
Thank you, my friend... I've been talking to my daughter about all of this since it started affecting me, and even though she is only 7, she knows what the side effects are and how they may make me act sometimes, but that doesn't make it any easier for her to deal with when she's in the middle of it! And it doesn't make me feel any better about myself when it happens. I know it's not my fault, but try telling yourself that when your baby is crying because she doesn't know what she did wrong, but she's still getting snapped at by the one person in the world who's supposed to be on her side...
It always passes, and we always talk about it, but that doesn't make it ok, only understandable...
Having a 7 year old myself, and occasionally having severe back pain that hurts so badly I can't turn over in bed without crying... I know exactly how it feels to get snappy with a little one without meaning it, or anything done wrong. Then see that beautiful face fall and the tears start. The next couple of hours and every time you think about it you feel like crap....
First, *HUG*!!! Children are just as resilient as they are sensitive. I've had to be reminded of that on several occasions. Especially since mine is a drama queen on top of everything and really knows how to rub it in when she wants to. Lol But, the talks definitely help, and her level of understanding is just absolutely amazing!
I know it feels horrid when it happens hun. I know it doesn't feel, "OK" that it happens, and "understandable" is a long way from being acceptable in your mind and heart. But just breath hun. What ever her level of understanding is at this time, just try to remember you are not causing any permanent damage and she loves you Very much! Most days Mother's are Goddesses to their children, some days we are human. And even as much as it doesn't feel like it right this moment, it's a good thing for her to know that Mom is human, just like her.
*HUGE HUG*!!!! Love ya sweetie! Don't be too hard on yourself. Besides, I bet some of that shopping was for her wasn't it?!? Is yours asking for a kitten this year too? Lol Mine is in the "I want that!!!" stage this year. Tee hee
Thanks, sweetie, I really needed that! And you're right... all of that shopping was for her... LOL She's so incredibly amazing! Of course she says "I want that" about every item on each page of the toy store books she's looked at this year, but she wrote in her letter to Santa that what she really wanted for Christmas this year was a happy family, and for her mom to be well so she can play and "do stuff" again... and she didn't need anything more than that!!! Oh, darn, now I'm really crying... She's awesome, especially at this time of year, because she's all about family and togetherness, and has been my main reason for going ahead with all of this since I found out I was going to have to.
Thanks, FF, for understanding me, even when I don't understand myself! You really are such a good friend, and I'm so grateful for you, everyday!
Sir Clisto, I really appreciate all the distractions at, what was it... 4am??? LOL And hey, of course I'm gonna look if a naked Chippendale dancer runs across my lawn!!! ROFL And thanks for the hug... never had a full armor hug before... :D
Lord Zenok, thank you for your kind words, wishes, prayers and healing energy! I can use them all... I appreciate you taking time from your busy work day to send them! I see how much energy you put into making someone's day special for them at least once a year, and that is a daunting prospect at best, faced with so many thousands of members Natal days... but you do it every day, and dedication alone doesn't sustain that sort of effort, so I know that you must be kindness itself!!! Thank you, again, and I hope every day is as nice for you as you make it for others!
And now I'm going back to bed for a few hours! I was woken up this morning by the phone ringing 3 times, just long enough to make me get out of bed, go into the living room, and watch it stop flashing as they hung up... so, of course I sat down to read for a few... LOL But... it's really not a good morning, although it's better now that I've been here, just as it always is!!! Still... I think I'd like to be asleep...
Thank you all so much, as always!
Rani you know whenever I see someone post a thread on here in need of a prayer or two or just needing to vent some frustration or anger my heart always goes out to them and I usually try my best to offer some words of encouragement to try and help lift their spirits a little bit and make them feel better,but of all the ones that I have ever read on here you and FairyFly have stood out to me the most.For some reason my heart has just been aching in pain for the two of you and it seems that I just can't get the two of you and your situations off my mind.
Rani when I first read about your troubles it really hit me hard and took a lot for me not to shed a tear for you because I know that going through something like that is not only physically hard but mentally hard as well.Every night when I would go to bed after saying my nightly prayers I would always say an extra prayer for you and ask God to to watch over you and comfort you and help you get through this right away so that you could go back to being happy and healthy again and not have to worry about suffering the treatments have to face every weekend.Well I must admit the way you have handled this whole situation has truly amazed me and I thank God every day that he has brought to where you are right now even with the continued treatments and chemo you are facing right now.Sweetie you are truly an inspiration to not just me but everyone on here as well and for that I just want to say from the bottom of my heart thank you and I love you my friend.
FairyFly my heart especially went out to you after finding out that your little girl was diagnosed with diabetes at such her young age.Children her age especially should not have to deal with such a serious health issue such as that (diabetes) much less any health problems at all.In a way I guess you could say that I was angry because I would often find myself saying "It's just not fair that a little girl this young should have to suffer like this" but you know I believe that the power of prayer works miracles beyond what any doctor,counselor,or pediatricion (pardon my spelling) in the world could tell you in this case.Then there were your own troubles that you were having to deal with pertaining to (as you like to put it ;D) your kidlet that would leave me asking myself "Why should have she to suffer to"? but then it dawned on me that Phoeny is your kid and as a mother you would give anything in the world just to see that your kid is safe and happy.I know I am not a parent (yet) but I did have a kid of my own right now my heart would break for them as your breaks for your daughter and the health problems she is having to face right now.
Sweetie just like Rani you have been a huge inspiration to not just me be everyone else on here as well and likewise from the bottom of my heart I would also like to say thank you,god bless you,and I love you to my friend.Always know that my love also goes out to Phoeny as well.Likewise that same love goes out to your daughter as well Rani.May you all have a safe,happy,wonderous,and joyful holiday season and happy and healthy new year.I predict that great things will happen for you all in 2009.Y'all can count on that.May God bless and be with you all.
You are such a sweet guy, Lord W, and you have no idea how much your posts brighten my day and lift my spirits! I thank you for all of your posts here, especially when my mood is low and I'm feeling lousy! I can never thank you enough for your thoughts, prayers and words of encouragement, support, and kindness... you lift me up, my friend, and that is something special! I can never thank you enough!
Good morning, Rani, Dear -
Take a deep breath, think of all the people who love you, and be thankful for another day. That is the way I try to start every morning.
Being a mother (even though my sons are "supposed" to be grown), I have something to say, and of course, you don't have to listen, but I will ask you to think about it. I know how sick, and miserable, and afraid you have to be, but I'm sure you know a little seven year old girl, who is very afraid, too. I have a suggestion. Sit her down, and explain to her that you are going through a battle with some of the cells in your body, and then tell her that you need her help to fight them. Explain to her that you know that she gets grumpy, when she doesn't feel well, and let her know that you have the same problem. Tell her that sometimes, when the bad stuff makes you feel bad, you may snap at her, when she actually hasn't done anything wrong. Explain that when people feel bad, it spreads to the ones around them. You might want to point out to her that she could be a big help to you, and that when you are feeling bad, there are things she could do to make you feel better. You could tell her that, when you snap for no reason, she could say, "Mommy, I know you don't feel good, but it is okay. I know you still love me, and I want you to feel better." Then tell her that a kiss and a hug always make you feel better. It is just an idea, but I hope that it might help both of you. I know that it still works with my sons. A kiss and a hug from them, always makes me feel better. If you can include her in some of your feelings, and make her feel like a part of your current life, she may not be so scared.
Just a thought.
Always,
P-
Rani, I apologize...I've been so wrapped up in my own *garbage* that I missed the beginning of this post.
At our home, we will keep you in our thoughts and prayers. Keep up the good fight, we all know you can beat this!
*Hugs*
Thank you so much, Peddlin, for those wonderful suggestions! They sound like a wonderful way to help us both deal in a more loving, understanding way, and I will be using that from now on... I'm sure it will help so much!!!
I hope your Holidays are turning out to be wonderful!!! Thank you so much for your thoughtful kindness!
Thank you, Deborah, for your kind thoughts and prayers, and don't ever worry about the timing of them! I The work whenever they are sent!!! I'll send a few your way to help with that "garbage", and we'll all have a wonderful Holiday Season!!!!
Thanks!
This has been a really difficult week for me, with trying to keep up with family obligations and wondering why a particular person hasn't been in touch, all while dealing with treatment has left me with very low energy, and worsening side effects this time, also. I seem to get stressed and anxious more easily right now, and I just want all this to be over! March 27 will be my last treatment, and I can't wait...
Meanwhile, since I don't really have much of a social life right now... I've been reading El Lobo del Mar, by the wonderfully talented team of Welsh Wench and Mad Jack Wolfe, from the beginning, and it's been very entertaining! I'm about half way through the story written so far, and I must say I would recommend it to anyone interested in the Pirate Adventure genre, and it has enough steamy scenes to appeal to the bodice ripper set, also!!! I'm just worried that when I get to the end of what's been written so far I'm going to have trouble waiting for the new installments to come out, so perhaps I'd better slow down soon... Oh yeah, right, like that will happen... ::) LOL
So... guess I'll try and read for a bit today, although it's not so easy on Saturdays to sit here. Hopefully some of you will decide to join me...
Rani as always I will come and join you in this adventurous story you are reading right now as it seems to be very appealing to you and something you are enjoying doing as well.I'm so sorry to hear about your difficult week however.This is truly the last thing you need right now with all that is going on with you especially with the treatments still in effect.You know that you are always in my thoughts and prayers so I will be praying that things get better for you and that the upcoming week will be a much better one for you as well.
Hugs to you sweetie!
It's a good storyline, and a rousing adventure! My only complaint is that I have to wait for new installments!!!
(perhaps I should learn to read slower???) LOL
Quote from: Rani Zemirah on December 28, 2008, 08:59:01 PM
It's a good storyline, and a rousing adventure! My only complaint is that I have to wait for new installments!!!
(perhaps I should learn to read slower???) LOL
But that's the good part about having to wait for the next installments of a story.It's like a good movie trilogy where they leave you hanging in the midst of the story so they can set it all up for the big surprise ending just like what happened in "Lord of the Rings" which turned out to be a very good trilogy and one of my personal favorites as well. ;)
No... it was hell waiting for the last movie to come out, although I was lucky in being able to read all of the books at one time! I don't like waiting, not even for something I'll enjoy...
I want it all, and I want it NOW!!! :P
Quote from: Rani Zemirah on December 28, 2008, 09:33:43 PM
No... it was hell waiting for the last movie to come out, although I was lucky in being able to read all of the books at one time! I don't like waiting, not even for something I'll enjoy...
I want it all, and I want it NOW!!! :P
Listen up Welsh Wench and Mad Jack Wolfe the fire goddess has spoken. ;D
Uhhh... no, wait... that's a totally different thread now, remember??? It's just 'lil ole' me here, now!!! LOL
(pay no attention to the man behind the curtain!!!)
(What are you tryin' ta' do, Lord W... don't tick them off or I may never find out what happens with the Kings!!! Not to mention how badly Mad Jack gets twisted in knots by a little girl!!!
ROFL!!!
Sorry Rani,I guess my sense of humor is not funny sometimes.And no I do not want to get you in trouble with the writers of this awesome story you are reading right now.
Oh please... if you couldn't tell that I was laughing while I was writing, then maybe you could get a visual clue... like that whole "ROFL" thing I'm so fond of... ::) :P ;D
WW and Mad Jack are great, and they'll be thrilled that we're discussing El Lobo del Mar, you'll see!!! I think it's a really fun read, and because I'm too impatient to sit around and wait for new installments... I've already started reading Dead Mans Tavern I, and will move on to DMTII when I'm done! I like these characters, and I want to see how they develop in different story lines! There is also a fairly large body of other work by these authors, and others here, in both the Port of Call and the Stories boards, so I would suggest that anyone who has been looking for an adventure lately can't go wrong reading these titles!
Oh, and as far as a sense of humor is concerned... maybe I should work on my comedic timing a bit, before I go tryin' to be funny anymore! ;D
*HUG* Sorry you've not been having such a good time of things lately hun. Just remember we are still here for you. We might get delayed in responding, but you are NEVER out of our thoughts and our hearts!
We just loves ya too much chicky!
*HUGS*!!!!
Still thinking of you, m'luv & am sending good thoughts - just think how far you've come. Hoping your new year treats you better - Phins UP!
Thanks so much, both of you! It was kind of a difficult transition for me, but I think I'm coming to terms with all the coming possibilities, and I'll survive whatever happens. Nothing has destroyed me yet, and hopefully this coming week won't have that power, either... We'll see, I guess...
Who are you kidding? You're a Fire Goddess! Nothing can destroy you! Just don't take any baths in the ocean hun. Tee hee
I'm glad to see you've come through the Holidays pretty much intact! Sorry I've been away for so long! The Holidays here were hectic! Between getting the house in order, keeping up with the kid, having two kittens in the house, and constantly running back and forth between Jersey and Philly to keep my guy where he needed to be... UGH! I don't know about you, but I'm sure happy school started today!!!
*HUGS* *HUGS* *HUGS* *HUGS* *HUGS* *HUGS*!!!! I figure it's about time for a refill! ;)
Ahhh... thanks, I needed that...
So far everything seems ok, but we'll see, I guess. I'm just full of ideas right now, though, so at least my creativity has been sparked by the recent years transition, and I'm ready to start making plans for the future again... or at least daydreaming about them...! (I'm researching major purchases...)
It was really nice to be able to send someone off to school this morning, I must admit... LOL Now if I could just talk to a certain other someone things would be almost perfect!
Chemo wasn't quite so bad this weekend, although I did spend a lot of time sleeping again. I stay tired these days, but I can feel that it's a different tired than it used to be, and that my energy will start coming back as soon as I'm finished with the treatments. I don't feel the same kind of fatigue I did before, and that tells me it's working... so that's a very positive sign!
I'll have to give this whole Fire Goddess thing some thought, if it means I can't swim in the ocean! There's got to be a way around that... maybe something to do with volcanoes... hmmmm...
Flame on! Flame off! My dear Goddess, thou hast the power to do what ever thy wishes, eh?
All Blessings be upon thee.
I used to do some energy sending to another friend of mine when she was ill and always felt tired. I'll see what I can do for you. I've got tons of energy today for some reason. Perhaps the break I'm getting from chasing a kid and two kittens {who are seriously confused about where their playmate is btw...} around the house is paying off. It worked rather well for my other friend some times. Only she was up half a night with an energy burst and reorganized her filing system one night... Ooops. Lol
And of course you can figure out something so you can go swimming! We'll put a Fae spell on ya to contain the flames for a while! Can't not go swimming if that's one of your passions!
I could stand a little reorganization! LOL
And I definitely love to swim, so that's a must! There's got to be something about Fire Goddesses swimming in the ocean, maybe Pele... hmmmm... not sure I'm ready to have a volcano emerge in the wilderness surrounding our Circle, though... ::) (though it could offer some interesting, and entertaining possibilities for future posts...) LOL
Rani,
I just found this thread, and I wanted you to know that you will be in my thoughts and prayers to the Lord and Lady for your health and general well-being. My sister in law had to do a set of treatments similar to what you've described, and only a STRONG woman such as you could deal with that.
May the blessings of the Goddess Hygea (Goddess of Health) be upon thy brow.
Thank you so much, Tammy! I'm sorry I didn't see this earlier, and I'm not sure why it didn't tell me there was a post here, but I appreciate you writing, and the compliment.
Well, guess I can give an update, since it's been a while! It's starting to get a bit easier, although the weekends are still a bit... bleh, unless I can distract myself somehow! Oh, and my hair is starting to decide it wants to migrate... to someone else's head, I think! It's not noticeable, but every time I run my fingers through my hair more and more strands are caught on my hand... As soon as it gets noticeable I'm planning on just shaving it all, and finding some funky scarves or something... unless I turn out to be one of those women who are incredibly hot with no hair...!!! LOL Oh well, it will immediately start growing again when I'm done with the chemo, so I'm not even going to worry about it, except to be slightly ticked off about it taking the last 10 years to get it to this length, (down to the small of my back), and I'm not looking forward to it taking that long again!
At least I passed the half-way mark!!! 11 left, then I'm DONE!!!
Rani:
Don't worry too much about your hair. When it ultimately decides to fall, you will know. At least that is how it was with Ron. Of course he took it in good humor, illustrating how just like in the cartoons you could just pull your hair out. He did this in such a way that he had us laughing so very hard. It actually happenened while we were at the Carolina faire, so when we got home, he had me give him a mohawk which he wore a couple of days and the we shaved it all. I guess what actually gave him a bit of a worry was actually his eyebrows and eyelashes. His beard kept trying to come back but it would remain as stuble. Two weeks after he was done with that particula chemo, hair started to make a comeback and it actually was thicker.
Well, hey, I wouldn't mind having thicker hair afterward!!! LOL Many years ago a close family friend had a long, hard fought battle involving chemo, and her hair not only came back thicker, but it also became really curly!!! As someone who has had board straight hair my whole life, I think I might like a few curls...
Lady Glorianna, Ron sounds like an extraordinary individual, and one I would have treasured as a friend! My heart aches for your loss, even as I admire your strength in sharing your stories of him with others who need encouragement in their trials. Thank you so much for lightening my mood this morning, and for the mental image of myself wearing a mohawk!!! It's something to consider, though I haven't had a hawk since my early 20's... LOL Have a great day, and I pray that your memories will start to bring you far more pleasure than pain this very moment...
My favorite Aunt would find the most outlandish wigs she could and wear them everywhere! I think she just liked freaking people out. Like, if they were going to stare at her, why not give them a good reason. Tee hee That woman had such spirit! The stories of things she'd done never fail to amaze me.
So, if you go the way of the mohawk, does that mean we can dye it multi colors and spike it? :P Long live Punk!
LOL I think I'll probably wait until it starts growing back in again, then bleach the very tiniest tips and dye them flame orange and scarlet... that way I'll look like my head is on fire all during Faire season!!! (snerk)
May I suggest Hot Topic for the dye! They have this dye that will work on any hair color and man is it bright! Lol
I'll check that out!!! LOL Thanks!!!
Ron's Mohawk
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/n630259915_1006137_3797.jpg)
I'm surprised it's taken this long to make a move. I went completely bald after my first treatment - including body hair. Believe me, nose hair is there for a reason. After I finished chemo, my head hair came back - but not as strong & shiny as it was pre-chemo. The rest of my hair is very sparse - which is a good thing! But my nose hair grew back like it had been fertilized. Hitler is not a good look on anyone.
Hope you're doing well - you continue to be in my thoughts.
Thanks for that great pic of Ron, Lady G! He has such very kind eyes, and the mohawk looks like it was stylin'! Maybe not the look for me these days, but at 21 I was definitely into the "alternatative" look... LOL
Taffy, I'm not sure how I've managed to keep it this long, and it's still not thin enough for me to say "shave it", but it won't be so very much longer...
I'm not so sure about the nose hair story... ROFL!!! I think I may have to do some serious praying about that one!!! :o
Thank you for sharing your stories with me, though, ladies! It definitely helps break through the funk... and I have found that the blue meanies don't like laughter!!!
Rani I know that we have not met yet in person but don't let the fact that your hair getting caught in strands in your hands worry you.If it were to all fall out today you would still be one of the most beautiful ladies ever in my eyes.Looks on the outside are just part of what makes a person but really and truly it's what's on the inside that counts.You know after reading your last update post I had a vision of myself sitting in your house waiting to take you out on a date with me.You were upstairs still getting ready but you were also dreading coming downstairs to meet me cause you were scared that I would not accept the fact that you had just lost all your hair due to your still ongoing chemo therapy.Well downstairs your living room I was waiting in was not empty.There was a houseful of people there including myself.
After waiting about 15 to 20 minutes you finally decided to come downstairs to meet me for our date but at the same time you still had that frightened look in your face.When I asked you why you looked so scared I looked up and noticed a scarf wrapped around and tight on your head to match the pretty clothes you were wearing for the date.When I went to ask you why the scarf was on your head you looked at me with the fear in your eyes and you said "Lord W that is why I was so scared to come down to meet you".Well after you said that to me a big burst of laughter filled the room along with all the people chanting she's balled that's why as they were making fun of you.
I then remembered in my vision that I had me reaching up going for the scarf on your head going to untie it when all of a sudden you burst out into tears saying "No Lord W please don't take that scarf off my head" while you were shaking in fear as well worrying that people would start making fun of you even more.Well after managing to get you to calm down for a minute I then remembered reaching around and starting to untie the scarf on your.As I was untying your scarf I could still feel you trembling in fear and I from the corner of my eye could still see the tears still coming down your face.I finally manage to remove the scarf that was covering your head and low and behold I noticed why you were so scared and thinking that I would change my mind and not want to go out with you any more.The last part of my vision I remembered catching a bunch of criticism from the other people in the room making fun of me cause I was as they said "About to go out with a lady that had no hair".
The bottom line is Rani that no matter what people may think of you in our eyes you will always be one of the most beautiful people ever that we have met on here.In the short time that I known you on here it has been a privilege to be able to call you my friend and sweetie believe me when I tell you that I would not trade that (calling you my friend) for anything in the world.The thing to remember is that no matter what other people may think of you that you still have friends out there where you live and on here that care for you and will be there for you no matter what the situation is.I'm sorry if I sounded so long winded but I felt that I needed to share with you what was on my heart.You and your daughter continue to be in my thoughts and prayers.Always remember that you will no matter what have your friends to count on no matter what the situation may be.I love you my friend and may God bless you and your little girl both.
Awww... Lord W, you're one of the sweetest guys I know! Quite the imagination, also!!! LOL
Don't worry, though, darlin'... I plan on rockin' the bald look!!! No timid hiding for this chickie... I'm out there, and I'm even thinking I might henna my scalp!!! I'd love to wear some really wild patterns up there... LOL
Rani as you saw from my last post I was trying paint a picture of what people can be like in situations like the one your in and I was also trying to let you know that the opinion that matters is that the one you have of yourself.I am glad though I could brighten your mood a little though.
I appreciate your thoughtfulness, Lord W! I'm not worried about what anyone will think when I lose my hair, though... It's just hair, and it's been so many different lengths in the last 44 years that as short as possible isn't really going to be all that shocking for anyone who knows me!!! LOL
Well it's like I said before love even when you do your hair in my eyes you'll still be the most beautiful woman ever and I mean every word of that to.
Awww... ;D
*Raises hand* I've got the Henna kit!!!
Well, I'll let you know when to head this way!!! LOL
Heya chicky girl! How have you been feeling???
Not too bad, lately... My symptoms have let up a bit since I started the new nausea meds, and I can usually control the fevers with the ibuprofen. I'd rather not take between 9 and 20 pills a day (ibuprofen are 200 mg, and I need 1000 twice a day on treatment days), but it gets me through.
I've also been having much more fun lately, and you have no idea how much that helps!!! ;D
It's really nice to occasionally have someone call and talk for hours, and suddenly I have a few of you who have made it a mission to brighten my days, and even a few of my nights, as well!!! You have no idea how much I appreciate that! You are all so wonderful!!!
You'll be glad to know the nose hair did back off - eventually. You might want to invest in some hats or caps that you like. I developed a taste for baseball caps & still wear them on a regular basis. You'll also want a knit cap to wear at night - the cheapo dollar store kind.
Take care - you continue to be in my thoughts.
Thanks Taffy,
I think I'll be going for the scarf look, with maybe a few knit scull caps, but the more I think about it the more I really want to do the henna thing, at least for Faire. In fact, I'm actually kind of excited about it! I can already picture myself in the Gypsy garb with my whole scalp hennaed in really beautiful traditional designs...
I plan on rockin' the lanes this season, and who knows, maybe I'll start the next big trend!!! LOL
Hi Zemirah. Come on up to visit the Pittsburgh RenFaire and I'll be more than happy to henna you ;D
Hope your treatments went well this weekend.
Blessings,
Anne
Thank you so much, Anne! I wish I could get that far north... I hear you guys really rock the lanes up there!!! And the offer of henna would be most welcome, although for some odd reason I still have far more hair than I logically should, and only 8 more treatments to go... who knew? Of course, that doesn't mean I'll have any left by the end... LOL It's starting to get a bit thinner, but it's still actual hair, and not that fuzz that happens so often.
Treatment this weekend was... not good... but this morning seems a bit better, so far. Of course, I haven't taken any meds yet (was just about to do that), so we'll see what the day brings, but even a little while of feeling human is much welcomed on the weekends! Just wish I could stay warm, though!!!
I could send you my electric blanket and my furry lap-warmer. Oh, wait...I would really miss the furry lap-warmer and I don't think she'd travel very well...but you can still have my electric blanket. ;D
The blanket sounds wonderful!!! LOL I shake like California when the fever hits, and nothing seems to stop it until goes away. Even the ibuprofen takes several hours to break it, anymore...
Mayhap you need to bring in a few of your fire dancers to share their warmth with you ;)
Now that sounds like a plan, but so far I haven't met one that doesn't get burned when he gets to close to my Fire... LOL
Guess I'll have to start looking for one who's fireproof, eh?!?
Quote from: Rani Zemirah on February 01, 2009, 12:21:29 PM
Now that sounds like a plan, but so far I haven't met one that doesn't get burned when he gets to close to my Fire... LOL
Guess I'll have to start looking for one who's fireproof, eh?!?
Look no further cause I am here. ;D
LOL My dear... as a good friend, it is only right and proper that I warn you that there is no one who cannot be burned, particularly when the emotions are involved! No amount of asbestos can defeat those flames... LOL
(how kind of you to offer yourself up as sacrifice, though, my friend...) :)
Thanks for the warning sweetie. LOL!
I'm sorry I've only now read this thread. I'm sorry you are going through this. I have to say, I admire your attitude - you are such a lovely person! I love the idea of henna for your head when the time comes. I think you can rock the bald look no problem :) Plus, you can always use wigs on days you'd like to have hair. You can have a differnet style and color every day.
Anyhow, I hope your treatments are going well, and I will keep you in my thoughts.
How kind of you! The many friends I've made here have made it much easier for me to get through this, and keeping positive helps so much when things start getting difficult!
Besides, if I absolutely have to be bald, shouldn't it be fun?!? LOL
Update: Saw the doc on Wednesday, and she said everything is perfect, the virus is still gone and likely to stay that way forever since I've managed to keep going this far without interrupting the treatments at all because of symptoms, and I've only got 7 weeks left!!! All my levels are within normal parameters, and everything is right on track, although I'm starting to feel a bit fatigued. My diet has suffered lately, though, because I've been too tired to do the cooking I enjoy, so I've been eating easy canned and frozen foods, and not getting the nutrition I really need, so I've stocked up on good fresh veggies, high protein lean meats, and foods high in Omega-3's so I can get back to feeling more energetic, even though I was told that during treatment days bacon is actually one of the best things I can eat!!! Go figure... LOL
Oh, and I have 2 ft. less hair this week!
Oh kindred one, bald is beautifull and more the spirit within...and bacon :P...yummm...truly blessed thou art. 8)
Thank you, Sir Monk... :D And, yes, the bacon is tasty... LOL
Seven more weeks ! You are almost on the home stretch. Keep it up ! :) ;) Hugs !
6 treatments left now, after last night... feverish again tonight, though. Not fun!
You are a strong and courageous woman. An inspiration.
{{HUGS}}
You are soooo close to the finish line, congratulations!...and although I may not post often, you remain in my thoughts Zemirah :)
Thank you, Tammy. I wouldn't have made it even half this far if it weren't for the wonderful friends I've made here, though! They've kept me going when I all I wanted was to curl up and be done with it, and made me laugh through my tears, and even brought out the Goddess that was hidden inside! LOL The people here are wonderful, and they're the best medicine in world...
Tygrcat, I know you have so many things going on, and it doesn't matter how often you post, or not. I feel you there with me always, my friend! Thank you!!!
Hey Rani -
You have made it this far, so obviously, you can do anything! But we already knew that. And we also know that bacon is it's own food group! ;)
Maybe not anything... but I'm feeling pretty strong right now, and I can definitely get through this! Thanks for the vote of confidence, Peddlin, it comes in handy when I start to doubt myself, and that will never do!!!
Now Rani, deep breathes I say. Innn.... Out....... Innn... Out... You have come a long way and are like a grand spell that has been cast. That sexy yet sinister smirk in your portrait tells it all. LOL.. I like it!! You are moving forward at elk speed. I see noting more then more of that mischievous smile in your future. ;)
Lord Sir Clisto of York
Quote from: sir clisto on February 17, 2009, 12:55:51 AM
Now Rani, deep breathes I say. Innn.... Out....... Innn... Out... You have come a long way and are like a grand spell that has been cast. That sexy yet sinister smirk in your portrait tells it all. LOL.. I like it!! You are moving forward at elk speed. I see noting more then more of that mischievous smile in your future. ;)
Lord Sir Clisto of York
Oh, my Lord Clisto, surely not sinister! At the time it contained nothing more than simple mischief... and perhaps a bit of invitation. Deep breaths are definitely good, and best when shared. Alas, all my breathing is done solo these days... :D
As for the stamina of Elk, why, I have no real choice in the matter, since any pause gives Mountain Lion the opportunity to catch up, and we know who wins in that altercation! My salvation lies in continuing to head for the tree line, though I am far ahead of the Wild Hunt and can no longer be caught!
I do believe you may be correct, though, and I also foresee more smiles in my future, particularly if you are in the general vicinity, m'Lord! Thank you for your so kind words (and for your token of favor bestowed...)! ;)
Rani of the Flame
I as all others here will be near and always in support through eyes of constant concern. We protect that treeline agains all matter of creature attempting harm your way. Be it known and written as such for all to take note. My vicinity is vast. You nae have to look far. We are all but a stones throw away by carrier pigeon if need be.
Lord Sir Clisto
And secure do I feel as you all stand shield to me, in truth as though I be girded and armored for battle, and amidst all comrades in arms within the heart of the mightiest of Armies! Though to, do I feel the finest Lady protected by Knight Gallant, and attended Royally with all tenderness and grace. Gramercy, my Lord, for your protection and your kind regard. The gift of it will rest in my heart beside my regard for thee.
Tis all in duties hand and a colde as olde as knighthood itself. We here stand as one for thee and others. know this always...
And I am humbled by that knowledge... and overflow with gratitude.
All is good in the realm then. Tis tyme to look to the stars and PARTY!!!
I believe an special Fire Circle is in the offing quite soon, so please do check in with us in the clearing, since you were there for the First Fire, and would be missed sorely were you not with us for the next celestial observance.
And I do believe it will indeed be a party to remember!!! ;) :D And this time, I will claim my own Dance with you, Sir Knight, be ye willing!
T'wood be an honor to dance with thee. I shall try to return as oft as I can from other duties. I am gathering what information I can on the creatures you asked me to watch.
Excellent efforts, m'Lord! Insidious are they all, and threaten the very existence of no few Faires with their chaotic and profane rituals! We will stem the tide, I am confident, and keep Faire as the sanctuary it has always been!
Perhaps you would trust to Dance the Flame with me, Sir Knight? As you shield me from danger from without, I may also shield you from the heat of the Sacred Flame, and it is an experience akin to no other... though not for the faint of heart!
I am of will to take up the offer and know that the flame is in your control to command. Sharing of such is also to spread truth of it to others.
Lord Sir Clisto of York
I am honored by thy trust in this, and hold your person as sacred as I myself am held in the circle of your protection. My dear friend, the Flame will await thy attendance at thine own convenience. Whenever you are able, it will be ready!
Rani of the Flame
And I shall make known the tyme. I await the pleasure.
Pleasure shared, then, for I anticipate as well.
So... this weekend will leave me with 4 treatments left to go, after tonight. I am astounded I've made it this far, and I owe it to the strength I've been given by all of you who have supported me through this entire ordeal. As things have progressed they have gotten bother easier, and more difficult, with some side effects easing, and some intensifying, but always you have all been here for me, lifting my spirits along with the corners of my mouth, and bringing me the best medicine, in the form of laughter, ever created.
I want to thank you all for the love and joy you've brought into my life, particularly during this test, and let you know how grateful I am for each of you! I couldn't have come this far without you all!!!
You are really on the count down! Damn, girl, I am so proud of you!
Thanks, Taffy!!! I'm starting to get really excited about feeling normal again soon! ;D
Normal, what's normal?? ;) :D
You've done great!! You've been an inspiration.
{{HUGS}}
;D
Quote from: Tammy on February 27, 2009, 07:44:52 PM
Normal, what's normal?? ;) :D
LOL ! You are on the home stretch now Rani! Yea :)
Quote from: Tammy on February 27, 2009, 07:44:52 PM
Normal, what's normal?? ;) :D
You've done great!! You've been an inspiration.
Ok... maybe normal was a bit of a stretch, but at least not sick or fevered every day!
Thanks, T, T, & A, ( ;D ) I appreciate the votes of confidence, and the hugs!!!
Quote from: Rani Zemirah on February 27, 2009, 09:45:15 PM
Thanks, T, T, & A, ( ;D ) I appreciate the votes of confidence, and the hugs!!!
:D LOL!
I'll leave that alone before this turns into John's Inn material ;)
Better bring it over to the Circle, eh? LMAO!!!
Not my fault that's the order you ladies posted in! ;D
(besides, it's been far too long since I had a decent chance for a wenchmouth!!!)
Quote from: Rani Zemirah on February 27, 2009, 10:22:31 PM
Better bring it over to the Circle, eh? LMAO!!!
Not my fault that's the order you ladies posted in! ;D
(besides, it's been far too long since I had a decent chance for a wenchmouth!!!)
You evil minded woman you. ;D
Who... me?!? ;D
I believe this is a clear case of someone's halo being held up by her horns... :P
{not that I would know anything about that};)
Wouldn't want it to strangle me, now, would you?!? Somethin's gotta hold it up!!! ::)
(gigglesnerk)
Rani I've just got three words for you "International Wenches Guild"..............you are a true wench at heart so therefore you would make a great addition to the IWG.
Quote from: Rani Zemirah on February 27, 2009, 11:58:14 PM
Wouldn't want it to strangle me, now, would you?!? Somethin's gotta hold it up!!! ::)
(gigglesnerk)
<snerk ! > ;D
I have been told that on occasion... LOL Guess I should check into it, then, eh?
I am now an Ette-in-training, so perhaps I should go international... but is the world really ready for me?!? :o
ROFL!!!
Yes Rani I think you should go international and plus I am on the IWG Forums as well so who knows maybe the fun could continue there. Like I said before you are a born wench and would make a great addition to the International Wenches Guild. ;)
I'll definitely take a look, then!
Go for it girl. ;D
Quote from: Rani Zemirah on February 27, 2009, 11:58:14 PM
Wouldn't want it to strangle me, now, would you?!? Somethin's gotta hold it up!!! ::)
(gigglesnerk)
*giggle*
I hadn't thought of it that way... ;)
(it usually just hangs on the bedpost, anyway...) ;D
Better than me, I share Tremayne's halo. Every time I get feisty it runs back to her... don't know why... :o
Oh god, I feel like crap!!! This fever gets worse every week...
Just found out yesterday that my insurance has been cut off, so I may be done with treatment already... not that I would mind, but that might not be the best thing...
Rani:
The insurance thing may be a formality. Don't cut your treatment short because of that. I'm sure your doctor will work with you in terms of the financila side. Aside from meds, we tried the good old cold compress method to attack the fever. Believe it or not, it helped. Just hang in there 8)
Thank you, Lady G. My insurance has definitely been canceled, and I'm having to apply for Medicare now, but I have a meds shipment due on Tuesday, and it's going to be canceled also...
I wish I could use the cold compresses, but when the fever hits I start freezing, and anything cold that touches me makes me ache so badly I cry. Mostly the only thing that helps is ibuprofen, and I take so much of it that it's probably damaging my kidneys.
I'm just having a rough time of it right now... and being whiny. I'll be ok, I know, and even if I have to stop now, I'm still negative and will stay that way, so that's positive, right?!? LOL
Thank you for your encouragement! That helps more than anything else!!!
Ask your doctor if the drug company can fast track you to a free treatment or two while waiting for Medicare to come through. You might also want to have them check your creatinine (sp?) levels for kidney damage.
I'm sorry to hear the insurance company did this w/you so close to being through w/treatment. They are truly excrement.
Yeah... that's my opinion, also! LOL
My doc does labs once a month, and the last ones were fine, even for my kidneys, but I do know that the effects of ibuprofen can be cumulative, and with the fever getting worse lately I've been taking more. I've got the pinking of my nail beds also, which is kind of freaky, but I'm doing heavy blueberry and pomegranate cleansing, so I'm sure it will be ok.
Thanks for the advice, and the support!!! I'm starting to feel a little better, now, and tomorrow should be even better!
If you're giving your kidneys a break during the week it will hopefully give them time to filter it out. Cranberry juice is also excellent for the urinary system - I was drinking that by the gallon. Now I like it w/vodka.
LOL... I'm kinda partial to the vodka mix myself, or at least I was when I was able to drink! By itself the cranberry is a bit acidic for me, but I do like it.
Wish I didn't have fever every day, but it's not bad enough to take something for it every day, so I get a break now and again during the week.
Still can't get any answers about the insurance...
OMG... I just talked to the pharm company and they said without insurance the last shipment of meds will cost $2400.00!?!
Not even a blip on the screen of possibility!!!
Quote from: Rani Zemirah on March 02, 2009, 12:59:37 PM
OMG... I just talked to the pharm company and they said without insurance the last shipment of meds will cost $2400.00!?!
Not even a blip on the screen of possibility!!!
:( Sorry to hear about your insurance luck. Did you see if your doc could get the pharmacy to fast trak as Taffy suggested? You would be surprised what some will do. You are in my prayers girlie! (((HUGS)))
Sorry to hear you are still getting the fever hon ! Hang in there, you are only have a few weeks to go. :)
Don't you just love insurance companies. I think a few of us on here can attest to how much we love insurance companies and doctors ! ::) ::) ::)
$2,400.OO for meds !! Yikes!! Perhaps we be needing to make a run to Canada or Mexico girlfriend ! ;D ;D
It's already too late... I got the cancellation letter on the 28th, the same day it was canceled! I do have the [hone numbers of a couple of organizations that could possibly help, though, so I'll see what they say. The problem is that I have to have the meds by Friday or I screw up my schedule.
Amy, it would cost almost that much to go somewhere and get the meds... think I'd rather spend it laying on a Mexican beach at Club Med...! LOL
Rani I'm so sorry to hear about your insurance problems with your meds. It sucks that they are charging you an arm and a leg for just a couple of perscription drugs, but hey be glad that you even have health insurance cause I haven't had any since September of last year and quite honestly it's been kicking my @-- ever since.
Thanks, Lord W, and I'm sorry to hear about your insurance problems, also! I don't know how people are expected to stay alive today...
I think it may work out, but I won't know for sure until I've got the box in my hand. I'll be spending today on the phone, though, I'm sure... ::)
Rani I'm just hoping and will be keeping my fingers crossed that something will come through for you.
Thanks, Lord W... I'm on the phone now with a few different agencies that may be able to offer some assistance, if I qualify. We'll see, but it looks to be a really long day... (sigh)
Like I said before Rani I will be keeping my fingers crossed and hoping that something will work out for you. Please let me know how things go with these few agencies you are talking with right now.
Oh wow... I'm covered, although there may be a weeks delay in my treatments... unless they can rush it through... (ohpleaseohplease)
Quote from: Rani Zemirah on March 04, 2009, 10:29:33 AM
Oh wow... I'm covered, although there may be a weeks delay in my treatments... unless they can rush it through... (ohpleaseohplease)
Well it's about time you be able to breath a sigh of relief.
OK... now if I can just get the doc to sign her name today I'll have it in my hand by Friday afternoon!
I don't even know how many phone calls I've made this morning, but my ear is starting to hurt, and I think it has a definite phone shape to it, now... LOL I don't care, I'm almost done!
Oh, thank the powers that you were able to get this corrected - breathing a huge sigh of relief on your behalf. You RAWK!
Thanks, Taffy! I don't know if I've ever talked faster in my life!!! LOL
Thank the Universe for programs like Partnership for Prescription Assistance and Commitment to Care!!! They're the ones who RAWK, bigger than big time!!!
HUZZAH!!!!
Double Huzzah !!! ;D
W o w ... I just managed to get my meds covered and expedited so I'll have them by Friday afternoon, get my previous coverage temporarily reinstated, and get the application for my new insurance taken care of, and all over the phone since 10am this morning! Oh, and I won't even have a co-pay for the meds...! :o
Six hours, but time well spent, if exhausting... :D Busy day for me!
Quote from: Rani Zemirah on March 04, 2009, 08:17:16 AM
I don't know how people are expected to stay alive today...
I know what you mean. Ron used to make such a funy face evry time he got his chemo because since we had to walk the paperwork from the reception to the insfusion center we could see the accounting where his first round of chemo was 12,000 each (he had 12 treatments), his second round was 20,000 a pop and his third round was 25,000 each time. At one point there was a notation that 100,000 was owed! :o by the insurance not by us ::) His treatments were for the most part covered (not even co-pay). This did not include the meds he took at home but copays for those never exceeded $30 so hail to the insurance indeed ;)
Glad everything worked out for you :D
Thank you, Lady G! If they had told me it would cost that much I probably would have had a heart attack... and given up! It was a scramble today, but worth it!
I'm so glad you won't have a break in your schedule.
Me too!!! I'm already well past the point where it could set me back, but I'd rather just get it finished as soon as I can!!!
Glad it all worked out for you sweetie! *HUG*
{I know that phone shaped ear thing... happens to me every now and then catching up with friends. Tee Hee}
Thanks, FF! Now I'm just waiting for the delivery...
I don't mind so much getting the ear thing while I'm having a conversation I'm enjoying... LOL Even when we've been on so long the phone starts beeping... (gigglesnerk)
Oh my gosh, I can't believe the trouble you've had with the insurance! But I am so glad it is all working out for you :)
Thank you, Seryn! I finally got my meds, but they were delayed, even though they said they wouldn't be, so I had to miss a treatment and my doctor frowned at me this morning... but she said it wasn't going to make any actual difference, so it's all ok.
I was sent the meds in a form I'm not familiar with, though, and now instead of having the Redipen that is simple to use, I have vials and syringes, and I have to measure part of one vial into another, mix without shaking and draw up into yet another syringe, then judge whether I'm simply subcutaneous (good), or penetrating the muscle (bad), by the way the needle feels in my leg. A needle which is more than twice as long as the one that comes with the Redipen injector. My pills are different, also, and now I have seven to take every day of just the anti-virals, instead of 3. And that doesn't include the 10 other things I'm having to take just to get through the treatments...
Still not happy about the whole fiasco, but at least I got the meds, and I didn't have to pay $2400.00 for them!
Makes me soooo much more thankful about everything!
I'm so glad you got the meds in today Rani but it sucks that they were delayed. You still continue to be in my thoughts and prayers as always.
Thank you, Lord W... now that it's down to these last few treatments it's gotten both harder, and easier... The side effects are getting worse, the treatments are harder to take each week and my moods shift with the wind, but knowing it's almost over and that it worked, I'm cured, has me so elated that I almost don't even care (well, until the fever hits, anyway, then it sucks!), and I just can't wait to get it over with!!!
I had to skip a whole treatment, because of the delay, and I can't catch up on it, but it's fine to do 23 instead of 24, since it's a fairly fluid number within a range of effective treatment durations, but I'll be done still on 3/27 with the chemo, and a week later with the pill phase.
Thank you all for supporting me through all of this!!! I know I could never have made it this far without each of you!
Hey Rani -
I am so glad that you got the medication and will be able to finish the protocol.
I know how hard this has been on you, but the end is in sight. Just keep telling yourself that there are many people in the world in worse shape than you are. That is how I got through seven weeks in hospitals and three and a half years in a wheelchair.
Just try to realize that you are going to live a long and happy life, and we are all grateful for that.
Oh Peddlin, I know, and it gets me through it all, as do all of you...
I'm starting to get really excited...!
You are an inspiration to me, dear, and everyone else who has posted their own stories to help inspire me to endure what I was afraid couldn't be endured!!! Thank you all so very, very much... :)
Tomorrow's your next to last treatment, right? Wow, such a long road & you are almost to the end - pat yourself on the back & promise yourself something nice when you get to feeling better week after next. I'm sending back pats, too! *pat, pat, pat*
Do you live in the Houston area? I'm thinking we could get together on Saturday 3/28 (first treatment free weekend, I think) & lift a few at the new Irish pub in Katy - what say you?
Oh, I soooo wish!!! I'm up here in OKC, loooong ways from you... but I'll be there for All Hallows this year, and by then my liver will be all shiny and new, and up to processing a bit o' th' grape (or whatever fruit is on tap at the time... LOL)!!!
I still have three left, including tomorrow, so 3/27 will be my actual last treatment, then the next weekend is our Faire, so I'll be going from doing no more than I'm forced to, to actually directing a brand new Gypsy camp! I wish I'd known I was going to be having chemo when I agreed to this... LOL
Oh, pooters! I'm holding you to All Hallow's, then. Thinking boutcha!
I will be there... I'm determined not to miss it this year!!!
Thanks, hon, I'll be thinkin' bout'choo, too!
Oh hey... I still have some hair!!! LOL It's pretty thin, but there's still more of it than scalp... :o Maybe I'll get to keep some, and not have to start out the season totally hairless...
If your hair is still skimpy, you can fill a snood w/weave hair, pin it to your hair - slicked back - & pop a hot on top. It does grow back - I had about 8" chopped off last week & it's still bra hook length.
Wow! That's quite a bit! They cut almost 2 ft off mine last month when I got my pixie cut...
Luckily my character is a wandering Gypsy fortuneteller, and headscarf is the head wear of the period for her! LOL
Our Faire is Medieval, and the time line is from 400's-1450's, so I have a very large pool of garb styles to choose from, as long as they're put together in a way that makes my Gypsy believable. It helps that I do read Tarot and runes, have a bit of herbology, know lots of traditional Gypsy stories, poems and songs, have a small book of traditional Gypsy charms and spells that I often assemble beforehand and carry for when I see someone in need of my services during Faire, and have a repertoire of period crafts to demo, also.
I'm not too worried about my hair, although I wouldn't mind having a little something to work with for Scarby... I've been considering possibly garbing a pixie for it, though, since I've already got the cut!!! LOL
I LUV the idea of a pixie-styled fae - who knows - you may decide that pixie is the perfect cut for you. And babushkas are timeless.
I think it might actually be the perfect cut for me... I love the way it frames my face, and it brings out my Cheyenne cheekbones like never before! LOL I do believe I've found the look to take me into the next decade...
And yes, it's always easier to tie something around your head than trying to do anything with your hair! I'm also pretty excited that I'm not going to have so much heavy hair to catch the heat at Faire this year!!! I always just swelter under all of it, when I could have been enjoying the breeze all this time...
I have some great ideas for a fire pixie... maybe All Hallows would be the perfect time to debut her!?!
W/some of that bright Torrid hair colour?! OMG, I'm getting all vapourish just thinking about it (says the woman who is considering bright pink) - sweet!
I'm thinking just the very tips in the flame red and orange, with bits of deep blue at the very base!!!
Pink!?! Like that hot fuschia, or more like neon cotton candy? YUM!!!
Your color is scheme is lucious. For me, hot pink, baby! Don't know if I'll do it, but I can't walk by there w/o shaking in my shoes for the sheer need of pink hair.
I think I'll have to have a new name for you, then... ;D
You should henceforth be known as Hot Pink the Pirate !!! Don't worry, though... I won't make anyone else call you that! It will be my special "chemo pal" name for you... (gigglesnerk)
I'll call you HP for short... ;)
Make that Hawt Pink & you've got a deal - I feel a new persona or group coming on. I'm a closet pink freak & wore it alot during chemo - made me feel better.
Nice!!! ;D ;D ;D
The Pirate Hawt Pink has been marked in the book, Commodore!!!
I can't wait to see her all garbed up!!! LOL
Why am I envisioning a pirate drag queen?
(gigglesnerk!)
I would never do that to you, dear! If you want to be Hawt Pink then it will be completely on your own terms, and she will look however you envision her, and no other way! I bet she's got a whole lotta sexy in her, though!!! ;D ;) :P
This is going to be too much like fun. Hawt Pink is just looking fer a little booty, eh?
A little?!? I'd say it's her charted course, and she'll not make home port again until she's taken her prize!!!
ROFLMAO!!! Oh, the feathers she'll wear... ;D
I was thinking that instead of a fox tail, Hawt would wear a tail of boa - speaking of feathers. She's pretty single minded in her quests - sparklies, sharpies & dingalings!
How're you feeling this evening?
She sounds absolutely purrrrfect!!! The sparklies should be real, though, the sharpies deadly, and the dingalings... well, I'll just leave those to her discretion... LOL :o
I haven't taken the treatment yet, because I drifted off to sleep on the couch for about two hours! I sleep at the oddest times, now, anyway, but I can feel my body starting to want a more normal pattern again, so that's good.
I seem to have turned into a lizard recently, and it's a combination of the dehydration and still having the heat on. I've decided that after this is over and my body has rehydrated itself... I'm going to the spa to have a facial! Maybe even a full body salt and sugar scrub, as well!!! I deserve it, and it will be my treat to myself for being such a good little lab rat...
Now, back to Capt. Hawt... :D Wonder what the name of her vessel is? The Pink Panther?!? LMAO! ;D
Quote from: Taffy Saltwater on March 13, 2009, 01:28:14 PM
Why am I envisioning a pirate drag queen?
ROFL ! Love the new name for Taffy !
It's been lots of fun envisioning her so far! She'll definitely get attention in the lanes!!! heheheh The birth of a new persona is always an exciting time, and makes me proud to have been there... (snifflesnerk)
This morning wasn't pleasant... with the worst chills, shakes and joint pain so far. If it gets worse... well, I'm determined to finish it, but it's going to be one of the hardest things I've ever done in my life, especially now, since I'm so much more involved in the process, with having to mix the chemicals myself, and inject with the syringe instead of the Redipen. Makes it so much more involved, and somehow more... immediate, in some way. Like I was more cut off from the process before, and now I'm experiencing it fully for the first time.
You know... I've often wondered about things like rites of passage, coming of age, vision quests, initiations and other kinds of life tests that people have faced for millenia, when moving from one phase of their life into another, and it occurs to me that here in this part of the world very few people get to experience things which are traditionally held to signify that someone is crossing from one state of being into another, and to facilitate and celebrate that fact.
I think chemo qualifies as one of those tests... Even if I only had to do the minimum, it's still the most intense long-term pain I've ever endured, and while it wasn't child birth, it's getting serious enough to be up there in the same category.
Hmmmm... I wonder who, and what, I'll be when I'm done...
With prayers and positive thought...a healthy, stonger person and sympathetic with those with whom you have walked that path with, so that you like Taffy can give encouraging words to others that have to face chemo. I admire you for the courage that you show, even when you do not feel like it Rani. You stay in my prayers, you and your kido.
That is something I would wish, also. Taffy, and many others, have been such wonderful inspirations to me through all of this, and I wouldn't have been able to get through it without everyone of you!
It's been a little difficult for me to keep up with all the different threads lately, that I've limited myself to replying in only a few every day, so sometimes I miss replying in some of the other Candles threads for a few days, but it's taking more energy all the time just to post in the few I can manage. Soon, though... so soon, I'll be done!
I appreciate the prayers and thoughts more than I can say, and I know they help!!!
I'm sorry you're not feeling well. You have been a trooper & I have nothing but admiration for your intestinal fortitude. You might want a liitle chamomile tea.
Yeah... it might help said intestinal fortitude... LOL As a matter of fact, I have some really good chamomile tea in the cupboard. Think I'll have a mug with my supper, such as it is...
The fever is on it's way back... I can feel it. I could deal with that, and the shaking, if it weren't for the joint pain... why does it have to hurt so much?!?
Ok, now I'm whining, so I need to eat before I'm forced to slap myself!!! Mmmmm... cheesy garlic bread.
Girlfriend, you are allowed to whine now and then !
Hang in there, you are almost thru this, the finish line is in sight.
Hugs, love !
How're you doin', ladybug?
I'm good. Still too early for the shot, so I'm just doing a little surfing, beforehand... Gotta keep in practice, right?
How's Hawt doin' these days? She any closer to making her debut than the back of your mind?
She's just flittting around, thinking of making fabric runs. Is this your last weekend of treatment? Just thinking boutcha.
Awww... you're so sweet to come hang out with me on Fridays! It's my next-to-last treatment, so next weekend is it!!!
I might even have a few strands of hair left... who knows!
I made a fabric run yesterday, and got the last of the fabric for this seasons garb! I have to dye the cotton gauze for my chemise, but it will be worth it to get just the right color in that light weight fabric. Also got some upholstery samples that look to be perfect to make into stomachers for both bodices and waist cinchers. Lets see, some gorgeous muted reddish and gold upholstery for half the gores in my skirt (the rest are a dark brown brushed corduroy), and a darkish heather green embroidered with gold diamonds for a plush waist cincher and Turkish style short vest I've been coveting this last year. Oh, and the dye for the gauze. So I had fun at Hancock's yesterday, and it was all on sale!
I think Hawt may have to be put on the back burner for a while. I've got a couple of outfits that I need to work on and a ropa. I'm also wanting to start some steampunk-y spats. I'm holding the patent on "Hawt Pink", though! I made a bodice out of the Alexander Henry roses & blue-eyed skulls fabric a couple of weekends ago to match a skirt I made year before last - it looks really nice w/my red chemise.
Sounds like you bought out Hancock's - and on sale, too. Good job! It sounds like you have your work cut out - & to be cut out. Don't you love new garb? I am intrigued by the Turkish jacket - post pictures, please!
I'm so proud of you - just one more week - et voila! c'est fini! Take care of yourself & try to get plenty of rest. I'm off to try to figure out a spats pattern.
OMG!!! I can't believe I fell asleep on the couch last night... before I took my shot!
I was sitting upright...
I had to take it this morning, so today will probably be really crappy, as opposed to only generally crappy. It's sooooo much easier to sleep through the worst! I need ibuprofen...
The vest is just a cropped vest that's darted under the bustline so it's fitted. It's Simplicity 5359 (http://www.habithat.co.uk/product_info.php/products_id/5433), so a commercial pattern, but it's a fun look, and it fits my gypsy fortunetellers journey, so it's an alternate to my new bodice that I'll be receiving very soon from miss Bonnie!!! I'll be trimming it with tassel fringe, or at least a nice heavy braid. Maybe both, who knows? LOL
Some days you just need to be laced up a little differently, I guess... ;) :P
I've been having fun with steampunk visions, lately! Have you ever read Girl Genius (http://www.girlgeniusonline.com/comic.php?date=20021104)? She's lots of fun!!!
Sounds like you're pretty busy with projects right now, also! I'm just starting to think about that Fire Fairie/Elemental, and she's beginning to sound like someone who needs to come out around All Hallows. Oh my... different length asymmetrical layers of varying shades of flame hued floaty chiffon (maybe hand dyed) with rolled lettuce edge hem to make all the layers stand out from each other, but more in a tattered way than a frilly way. Red and orange hints in the short-short hair, with deep blue and green low lights here and there, some nice fluttery wings, and a good pair of sandals. Few other bits and pieces and she'll be all set to make her debut, for at least one day of All Hallows!
Hancock's was fun, especially since everything I bought except the dye was more than half off, so I saved a lot on something I needed to buy anyway, and I got really great fabric that I'm excited to use! Yep, new garb is more fun that many things I can think of...
I'm getting pretty excited about the next two weeks. After next Friday I only have a week left of the meds, then I'll start to feel better within days. Need to start having more blueberries to help get rid of it faster, I guess.
Have fun with your spats!!! LOL I'm going to... well, hang out here, for a while... :-\
Once upon a time Ron made me a belly dancing costume using that pattern. I just might have to dig it out and take some pics at least on the mannequin ;)
Oh, please do, Lady G! I'd love to see it!!!
Here is a quick set I took this evening.
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_4994.jpg)
leather closure at back of "waist belt"
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_4995.jpg)
front of "waist belt"
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_4996.jpg)
close-up of center of "waist belt"
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_4997.jpg)
petal skirt
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_4998.jpg)
petal skirt
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_4999.jpg)
front of vest or choli
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_5000.jpg)
close up of trim
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_5001.jpg)
closeup of bottom edge trims
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_5002.jpg)
sleeve
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_5003.jpg)
back of vest where he mocked the edge on a V with the trim. With my hair only the V an not the round collar is seen
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_5004.jpg)
front
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_5005.jpg)
sleeve folded over
(http://i111.photobucket.com/albums/n136/Lady_Glorianna/miscprojects/DSC_5006.jpg)
sleeve folded over
It's gorgeous, Lady G! Wish my work was so beautiful! I absolutely love the colors, also!!! I hope you plan on wearing it this season...
Well...Actually he made this for me about maybe 2 or 3 years ago because at the time, along with two of my cousins I was taking a bellydance class at the community college. I wore it to the end of class party and for a dance one of my cousins and i put together in honor of my uncle's b-day. i have not worn it since. At MDRF I am cast ans part of the court so I have not worn it there either. I might end up selling at one point or another but since I seem to not be able to part with anything at the moment, time will tell...
Well, you just keep everything if you want to! If Ron made it for you, then it has a lot of him in it, and those things can always bring us comfort over time.
There is always the possibility you could travel to another Faire where you could wear it, right? Who knows, one of these days you might get an urge to be a Gypsy dancer for a just a little while... ;)
Huzzah for you, my brave soldier! I'm proud proud proud of you - you are truly inspirational. May blessings flow like water and surround and fill you with the light of love.
Oh Taffy, you can never know how much you all have inspired me, and today is both happy and sad for me because, as triumphant as I feel at having made it through this whole ordeal, I know it could have been so much more difficult without all of you here to lift me up, and having you all here in the same place so often will be missed sorely!
This is the last one, and I'll be done. I can hardly believe it's been six months. Well, yeah, I can... LOL But I have trouble believing it's really going to be over after this weekend!
It's been such a help to know you've been through even worse, and to have had your company and encouragement through it all. Thank you, my friend, you'll never know what it's meant to me... ;)
Rani,
I just want to say how proud I am of you girlfriend. I know it has been a long 6 months, and not always easy. But you did it girl ! Bravo ! :) ;D :) :-*
Thanks, Amy... as I said, I could never have done it without all of you here by my side whenever it got too overwhelming, or too painful, sad or scary... but the best parts were the ones that were too much fun!!!
I haven't laughed as much in years as I have in the last six months, and it's made all the difference... :D
Hoping today's not kicking you in the keister - take care.
It kind of is... but I'm holding my own so far. Gonna take a nap pretty soon...
Lighting a candle and adding you to my prayer list. We're all pulling for you Rani. Peace and blessings
Thank you so much, Lady O! It's getting a bit better today...
OMG you're finished?!?! ;D :D ;D :D ;D
HUZZAH!!!! and *HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS**HUGS*
Awww... thanks, hon!!! I'm pretty excited! No more shots, but I still have the pills until Thursday. At least they're not the part that made me really sick, though, just a little tired and queasy, but only 3 more days of that, then it's all over!!!!!!!
Thanks for sticking by me all these months! It's been more amazing than I can express...
A big ole thumbs up for you! - just a few more days and you can close the page on this chapter of your life. You so totally RAWK!
No more than you, darlin'!!! All of you... ;D
I can't remember now, are you gonna make it to Scarby for Closing weekend, Taffy? If so, then we can lift one or two there...
(I get to use the chemo brain excuse for not remembering anything for several more weeks... :D )
Congratulations! This is quite an accomplishment, and you should be very proud of yourself. You have shown amazing strength.
I have to admit, I do feel pretty proud of myself, even though I know full well that so much of that strength came from all of you who have offered it so freely, along with faith, hope and encouragement, every time I've needed it!
I can never express how much you all mean to me, and it makes me tear up whenever I think about it!!! You all have homes in my heart, forever...
Rani,
I got goosebumps when I read it was your last chemo. Huzzah!!! I am so proud of you for pushing thru it and coming out strong on the other side, if not physically, but mentally and spiritually for sure.
*Doing the happy dance!*
Thanks, RR! I've been doing a bit of happy dancin' myself, today!!! I am starting to feel better, though a bit of that is surely psychological, although since my liver is now functioning much better I know it's not all in my head. When the liver is happy, the body is happy, and mine is about to get really happy!!! LOL
Rani I'm sorry I've been out of the circle and away for so long but things have just been a little crazy for me a work lately and I just haven't had the time to get caught up with everything on these forums of ours. Anyway all I have to say for last weekend being your last chemo treatment is Huzzah! I'm so glad you made it through all that.Now you can go back to living a normal life. Huzzah for that as well. Anyway just know that I am so proud of you for making it this far. Once again Huzzah to you Rani. ;D
Huzzah to you girl ! Proud of you ! ;D ;D
Thank you both so much! You know you've both carried me all the way through this, and I'm so very grateful!!!
I'm feeling pretty tired today, but I think it's letting up just a bit, and by Friday morning I'll be ready for Faire!!! It will be so nice to be out in the sunshine and fresh air this weekend!!! (or at least fresh air... it may be cloudy, and possibly even a bit... you know, that "r" word! :o )
You mean "rainy"........oops "Did I say that?" ;D
Please do not curse my Faire!!! :o LOL
I dont think anyone or anything can rain in your parade ;) Congratulations Rani :D
You're right, Lady G! I'm going to have a wonderful time this weekend no matter what! LOL
Thank you, dear. I hope you're feeling a bit better today...
Hi, sweetie. Sorry I didn't touch back w/you on your first treatment-free weekend. I'm sure you found something worth doing - even if it was nothing! I had 3-day food poisoning and am still not well. Let me give a hint - for gratis: Sometimes it's not worth taking a chance on oysters, not even one.
I won't be at Scarby this year - funds, you know, but hope to see you at TRF. Take care of your bad old self.
S'ok, lovey, I had a ball at our Faire up here!!! Some friends and I presented "A Day in the Life of the Gypsies", and the camp was a huge success!!! We're invited back next year, and since we demo they don't charge us anything. We're expanding next year, also, and it will be extreme! I was afraid I'd almost killed myself yesterday morning, though. I could barely get out of bed, I was so sore!!! Three days of hard work after 6 months of mostly nothing can be... a really stupid idea... ::)
I'm sooooo sorry you were sick! I don't touch the slimy things, not ever! I've had one in my life, and even swallowing it with a shot of tequila wasn't enough to keep it from wanting to come back up... :-X Blech I hope you're feeling better now, though!
Wish you were going to make it to Scarby, but we'll hang at TRF for All Hallows... and we'll have to find a cheesieburger somewhere, also!!! I'll supply the Big Kosher Pickles! LOL
I saw "clean bill of health" from you over in another thread and had to jump in here and say HUZZAH!!!!! :) :D ;D
Thank you so much, Ambios! It's true... I'm completely done!!! Last stick for labs was today, and one more in six months, but I'm cured... ;D
So glad to hear about your finish with the treatments! (I have read the whole thread.)
Congratulations Rani! :D ;D :D
Thank you, both! I'm ecstatic, and my energy is just flooding back every day!!! I finally found a vehicle, also, so it's like getting my freedom again after being imprisoned in a small room for months. I hardly know what to do first... LOL
Lady L, that's quite a bit of reading! :o Thanks for wading through it all. :)
Lady G, I hope you're feeling a bit better today. You're in my prayers daily, dear!
It's so tempting to overdo, but it's good to stretch our wings sometimes. I'm still feeling puny, but what can you do. Since All Hallow's Eve is TRF's version of Day of Wrong, I'm schlepping out Professor Snape AND a new persona (not Hawt!) - in steampunk. The hardest part is coming up with a name for her - any ideas?
Glad your energy is rebounding & you got some wheels. You go (quite literally), girl!
Yeah, and I'm recovering from the weekend, finally! LOL
What is this new character like? Girly and fem, or a little more "independent woman"? We'll find her the perfect name!
Quote from: Rani Zemirah on April 08, 2009, 08:28:18 PM
Thank you so much, Ambios! It's true... I'm completely done!!! Last stick for labs was today, and one more in six months, but I'm cured... ;D
Best news ever!!! I've been folllowing (or is that lurking....) and couldn't be happier!!
So...when's the triathlon.......?
Not quite ready for running, or much more than a sedate stroll at this point, but of course that isn't going to stop me from trying... LOL I'll be attending our local drum circle Friday night for the first time since I started treatment, and there are three other festivals happening in the next couple of weeks that I plan on attending, though they're not Faire related. I'm also taking my renlet to Ft. Worth next weekend on the train, as a belated b-day present for her, and I want to get out to one of the state parks the weekend after that for some camping, swimming and hiking!
Guess it's started already, and I just didn't realize it!!! LOL
Thanks, Seamus, but why lurking? Have you ever actually seen me bite anyone?!? ;D
Doing happy dance ! So happy for you girlfriend. Just don't go overdoing it, and wear yourself out ! :) Hugs !
Too late, I think! LOL It's ok, though, since I actually get to sleep in on Sat. I'm just so happy to be feeling better!
Thanks, Amy!
If I could echo what Amy has just said I to am very happy for you and proud of you as well that you can finally go back to living a normal life again. Each post of yours that I have been reading recently just fills me with joy because I know that it was a long and sometimes painful road you had to travel just to get to where you are today. Let me be one of the first ones to say Huzzah to your progress and congratulations on your clean bill of health. Like Amy has said don't go overdoing it now cause that would not be a good thing especially now seeing how good you are doing. Anyway it's good to have you back to your old self again Rani. :)
Thank you, Lord W! It will be a few more weeks until I'm completely myself again, but I'm shaking off the effects more every day, and I'm getting out and doing things again, and that only helps!
I finally get to go back to our drum circle here tonight, and I'm so excited! I haven't gotten to go since I started the treatments, and that was in October, so it's been a while. Drum a little... dance a little... these things will help me get back to normal much faster!!!
Oh I believe you Rani and trust me the day you get to go back to living a normal life will we be a day that we will all be looking forward to.
Ahhh...the Drum Circle...healing...renewal...Magic.
Yes... it's wonderful to feel the rhythms flowing through my being like the very blood in my veins! I'm getting there, and feeling better every day!!! The circle last Friday night was very nice... small (only about 20 drummers), with a core group that usually mesh well, and tight enough that we gathered an audience in 45 degree weather!
I had a great time, then we all went down the street to a pizza joint called Sauced (I know, so corny it's cool, eh?) and listened to a local group called Pinky and the Snake Shakers... They're lots of fun! A great time was had by all, and I get to do it again every week!!! I'm definitely ready for spring to arrive!!!
So good to see you returning to the world. I've been working on steampunk queen Dame Daphne Dreadnaught, Lady Explorer, Zepellin pilotess, Time Traveler and Scientist. She and Professor Snape will make their faire debuts on All Hallow's weekend at TRF. The gun came together over the weekend and the goggle components have been gathered - just need to gather my oomph for a spray paint fest.
Bang those skins, baby!
Oh,sweet!!! I want Steampunk garb, too!!! She sounds like quite the zinger... LOL Can't wait to meet her! Ever read Girl Genius (http://www.girlgeniusonline.com/comic.php?date=20021104)? Steampunk comics ROCK!!!
I'll be bringing all my drums to TRF, btw, as well as assorted and sundry percussion... so I hope you're up for some circle time! Not the public one, though, unless it's been tamed since last season! No reason we can't form our own circle, and be careful about who wanders into it... :D
I've been trying to read Girl Genius online, but - gah! - there's so much of it so will probably start buying the books. I like the Jagermonster.
I'm so glad you'll be heading to TRF - are you going to be camping or what?
You betcha'!!! Wouldn't miss it for the world! That's what initially drew me to the TX threads, was the TRF camping thread! Sounds like my kinda party!!! LOL Not quite sure who I'll be camping with, but I have a few offers, and I'll be choosing one based on the circumstances of the moment... ;D
Do you camp, or hai for home at the end of the day? Because I hafta tell ya', you'll be needin' ta' come hang wit me in camp for a while, girly!!! (wow... was I just channeling Sarah Palin?!? :o )
Oh, I love Jagers!!! They crack me! LOL I wish I could get tho books, myself, but I did get a kick out of reading them online, until I came to the end... It's hard to wait two days for just one page, so I wait two weeks, then I have six pages to read!!!
I am a true child of my mother, whose idea of roughing it is the Ramada Inn. I hie my hiney home at the end of the day - usually a little early because my night vision sux. My son used to live out in that area & taught me the back roads, but ye gads, it's like the inside of a cow's stomach.
Do you read the devils panties? She's heading to faire this weekend so she should have some good fodder for future strips.
Oh sweet!!! I haven't read it in a while, but I love the strip!!! Those grrrlies roar!!!
My nod to the comforts of home is my inflatable queen size air mattress and all my own personal bedding... including a pile of pillows! I do love waking up to the sounds of the morning, but I don't like sleeping on the ground anymore, although I didn't mind it for years. I might even camp at Scarby this year, in whatever that campground is not too far from there. I guess there will be a few other R/Fer's there, so I won't be out there all alone. Of course, I could just sleep in the mini-van. If I take the two back seat rows out I can put a twin air mattress in there and be nice and comfy... :D
I got caught up w/Girl Genius over the last coupla weeks. The Jagerwomen were beautiful creatures & I believe I must be at least partly Jager because I have such an obsession for wowza hats. I bought a Burda Victorian jacket/skirt pattern that made me think of Agatha's red suit. My weekend project is a Victorian-ish corset - 'cause underpinnings are so important. Then I can work on my steampunk suit. Pattern: http://www.burdafashion.com/en/Patterns/Main_Collection/7880_Historic_dress_%281888%29/1270778-1128998-1003047-1534296.html
Hope you are continuing to feel better.
Oh, stickysweet!!! Gotta love the Victorian undies, they... do things to me!!! Woot!!! ;D That suit is gonna be so gorgeous, woman... Can't wait to see it modeled!
Agatha is crazy cool, huh? Wish she was a redhead, though, but I guess she couldn't really pull off the ditzy early days without the blond... Don't read too fast, though, because once you come to the present days it's agony waiting for the next page, and they only put out three a week!!! :'( I was warned about this, and I still devoured it all unheeding, and now I wish I had slowed down! What I get for being greedy, I guess... Of course, everyone gets the same warning, and everyone ignores it, then they say the same to whoever they turn on to GG, also... ::)
I'm pretty good, and getting better by the day, although I've had to admit to myself that it's going to take more than three weeks to get back to normal. Of course, it didn't help that right after treatment ended I had so many commitments to keep that I almost made myself ill all over again! I've since slowed down a bit, but at least the drum circle is more relaxing than taxing, as long as I mostly play, and only dance a bit... :D Every Friday night, though!
How are you doing these days, btw?
I was one of the "everyone" that gobbled it down in a few ecstatic sessions. I can understand why they only do 3 panels a week - that's a lot of detail. Did you see the panel where they got back to Mechanicsberg (burg?), and there were a bunch of "billboards", one of which was for devil's panties - the detail is what makes it. That & the Jagers - *Jager crush*. It took a while for Agatha to grow on me - the ditziness & for once I'd love to see a heroine who doesn't look like a 12 year old boy's ideal - she makes me think of the Playboy cartoon women. I liked her better when her spark started kicking in & hope she ends up w/Gil.
It sounds like you are making a good comeback. It feels so good to get back to a treatment-less life, although my "normal" was not what it was pre-illness. I'm so glad you've got a good support system - very important.
All goes well here - hope the same for you.
The Jagers really do rock hard, don't they?!? I really want one of the Jager pins they sell in their store! In fact, I might just go order one today... LOL I am tinking djoo might vant vone alzo, pretty gurl...
I'm blown away by the detail in each panel, and Aggie is showing a lot less ditz and a lots more grit these days, but yeah, I could do without the barbie doll proportions. She seems a lot less apt these days to end up in nothing but her Victorian undies without quite knowing why, or how, though, and that's gotta be a step forward, right? ROFL
Been working on my favors last couple of days, and I hope they turn out well in time for Scarby! I'll save you one...
Drum circle tonight!!!
Gotz peen? - No. Vonts peen? - Yez! Hy vill go to GG Store.
Have fun tonight at the drum circle - and rock those favors, girl!
WOOT!!!!!! Gonna drum and dance tonight... in skimpies!!! LOL
Drum that beat and move those feet, my Goddess. ;D Will the presence of Fire be aboot? ;)
All Blessings be upon thee, thy kith and kin.
Divine Reminder
Rock the skin & your skin! Have fun, cheri!
Wish we had a fire... but in the City it's a no-no this time of year, with fire bans in effect until we get some good rain... It was really nice tonight, though, and I danced as much as I could... until my knees were weak!!! It was great!
And now I'm verra sleepee.......
So glad you had a great time.
Me too!!! ;D
Vell, dollink, hye tink hye must be sewing teh Mama Gkika gown. Hyu vant to mek a Jager invasion at teh TRF?
Oooooh, vee Jagers lofe to invade!!! Iss vhat vee do best!!! Mebee so, mebee so... I vill tink on dis for vhile, hund see if can vork, hokay?
Hokay!! Hyu knows hennymore Jagerkin? or wannabe Jagermonstern?
Spanish Peacock vas he vhat introduce me to GG, but he dun't vear eenyting but keelt... mebee, who know, ve find in next few month, hyes?!? Ve need start new tread for 'dis...
Oy vay ???
Hokay, vill start new tread in TRF. Sounds like gut dirty fun ta me!
Hya! Goot tink ve gotz da' akzentz, no?
Hoh yeah, ve gotz akzentz, dollink! Just zo you knowz, hye mek teh new tread in TRF. Ve heff a neeble. Hye mek de ordern for de peen end book 8 todeh - iz goot tink. Zo, dollink, hyu heff hyu hat?
Hye heff mudbugs (crawfish) for eatingz tonight. Goot eatz!
Hye needz de goot het, hye rreelly doz!!! I dun't get de peen, hyet, too!
Hyu lyk doz mudbugz, hyah??? Hye can tryz zlurp dey headz, but dey dun't stay down... :-X
Yah, de mudbugs - hyu gotta bite dem tails & suk dem hetts. Dey dem sure mek you sikk ef dey iz bett.
Hyu gotz to find de goot hett - iz impawtent.
All goes well here - spent the morning w/my mom paying bills and running around. This afternoon I'm working on a chemise for a sea nymph thing I'm putting together. The fabric is kind of metallic & pleat-y - have the feeling this may give me grief, especially when it comes to the neckline.
Hope you are continuing to improve everyday - anymore drum circles in the near future?
I was going to go last night, but it turned cold and rainy here, so I baby-sat a friends online game while he went out and played with R/L gaming friends. I'm a good baby-sitter, and his village grew nicely, though I kinda neglected my own! LOL S'ok, though, since we have a circle here every Friday night...
It's much easier to speak zeh akzent rather than write it, yez?
I need to start on my new skirt soon, and finish my favors, and dig out all my camping gear, and pack for Scarby, and... and... and get a little rest one of these days!!! LOL
Got me a shiny new camera yesterday, for a really good price, too! It's fun, and much easier than I thought it was gonna be... I so happeee!!!
Better to stay in and warm especially since your immune system may not be 100% yet. No need to weaken the system. Sounds like you had fun babysitting the game. Now take care of your village.
Hoh boy, iz hart to write aksent, hey.
I've got bazillions of projects going. The body of the chemise is put together - they always confuse the bejabbers out of me & I've yet to find a pretty way of finishing the neckline, but what the hey. There's a double layer skirt & then closer to TRF, a fancy pantsy bodice. Obviously, Mama Gkika needs her gown. That bodice may prove to be a buggerbear.
Congrats on the new camera - I always love to explore all the features of a new one. Hye so happeee for hyu!
Hoh BOY!!! Izz zoooo much funn forr me!!! Goot tink izz eezy, too, hor I can smash zo qvick on vall... yah?
I have so much fabric that needs to be used, but even if there was another 24 hours in every day I still wouldn't have enough time to just finish all the projects I have going... LOL I believe I'll be leaving all my future bodices to Bonnie, though, since I absolutely adore the one she's already made for me, and I have the fabrics for my next one ready to ship off to her as soon as I can afford to pay for it! I'd better get them while they're still affordable, because once everyone starts to realize how good she is I think her prices will start going up!
I can't believe how cold it is here, and even more so since I still have low-grade fevers most every night, and will until I manage to get that stuff completely out of my system... Been feeling pretty darn good lately, though, and running around like mad, doing all those things I haven't for so long! It feels great to do things for myself again, finally!!!
The fabric seem to breeding in the corner; the spools of thread, however, have skipped the county.
Stay varm, dollink - sleeps vell!
How've you been? I think about you & hope that you are continuing to feel better w/each passing week - take care of hyuself.
I'm pretty good, actually! I'm getting back to normal faster than they thought I would, but of course slower than I'd like... I'm also almost completely off even my diabetes meds. I still have two pills a day that I take, but that's down from 5 a day just 3 weeks ago, so I'm happy about that! They're saying it will most likely just go away once I've lost a bit more of the weight I gained while I was sick. I hope so!
Other than that I've just been daydreaming about Scarby, and looking forward to TRF... putting garb together in my head before putting fabric together, looking for cool little things I can use to make accessories, and trying to figure out if I'm going to go ren the next day or Fae... Been dreaming up a Fire Faerie the last few months, and I'm thinkin' All Hallows might just be the time to debut her...
Geez... I need like a week straight of Faire just to wear all the ideas I'm coming up with lately! That means my creativity is coming back, and I'm glad I finally have the urge to start making again!!!
How have you been lately? What's up in your day-to-day?
Glad you are feeling better! Yay creativity!
Hope to get to see some of your creations
Thank you! If you'll be at TRF for All Hallows then you'll see what I'm dreaming up right now... LOL
I'm so glad to hear that your health is improving so rapidly and that the diabetes is coming under control - good news all around.
Yay for good health!
Meeeee toooo!!!! I'm excited to get in the water this summer... I love to swim, and it will help with getting back into at least a recognizable shape again! LOL It's nice to have a waist line again... :D
Soooo... a few weeks ago I had my six month labs after the end of treatment, and all my numbers looks perfect, and it's been over two months since I've had to take any meds for diabetes, so the next A1C test (three month blood sugar average) should say it's completely gone, also!!! I'll have another set of labs in a year, and a completely clean bill after that...
Managed to get out to the park today and do a bit of hiking, for the first time in... well, quite a long time, and it was very nice!
Starting to feel like it's really over...
Good luck girlfriend. You know i'm rooting for you ! :)
Glad that things are very much looking up ::) ;)
Thank you, ladies! I'm rather excited, myself... :)
Congrats on the good reports!
Thanks, Taffy... it's definitely an "exhale" moment... :)
I am so happy for you!!! This is awesome news. ((((((HUGS))))))
Thanks, Tammy! You all make me feel so loved... :) :-*
Rani,
That is such wonderful news! Makes lfe so much more when you get that "normal" report.
How right you are, Robin, and it makes me so much more excited about the future, also! Thank you! :)
OMG!!! I just got the results of my latest A1C test done (3 month blood glucose average), and just as I have suspected for the last year... I am no longer Diabetic!!! My doctor is surprised, but the test doesn't lie, and the Diabetes has reversed itself since the liver disease was treated and defeated!!! All tests in the last year in the normal range, with no spikes at all... without taking any meds. :)
I also went yesterday for what will hopefully be my final labs for the liver disease, a year after the last set, and 1.5 years after the end of the chemo, and if they come back clean again then I won't have to have another set for 5 years. In effect it will be officially gone, with just a simple blood test once a year for 5 years and a routine follow up liver function panel in 5 years to see how things have repaired themselves. Here's hoping...
Quote from: Rani Zemirah on October 08, 2010, 11:03:33 AM
OMG!!! I just got the results of my latest A1C test done (3 month blood glucose average), and just as I have suspected for the last year... I am no longer Diabetic!!! My doctor is surprised, but the test doesn't lie, and the Diabetes has reversed itself since the liver disease was treated and defeated!!! All tests in the last year in the normal range, with no spikes at all... without taking any meds. :)
I also went yesterday for what will hopefully be my final labs for the liver disease, a year after the last set, and 1.5 years after the end of the chemo, and if they come back clean again then I won't have to have another set for 5 years. In effect it will be officially gone, with just a simple blood test once a year for 5 years and a routine follow up liver function panel in 5 years to see how things have repaired themselves. Here's hoping...
Wow Rani - that is great news. Being new to the forum I had no idea. Congrats all the way around.
Wonderful news my friend!!! :-*
LOL That's ok, no one would expect you to! Thank you, though! I'm excited that I'm starting to feel more healthy again! It's been a very long time... :)
Thank you, Trill... It is wonderful, and I feel so blessed!
I think today is the first time I went back and read the original posts in this thread ... and now it's really good to hear today's good news, after all you've been through over the last few years.
Seriously considering a day-trip to TRF on AHE, to exchange {{{{{HUGS}}}}} ;D
Take Care,
David Baldock
Such very good news. A big ole thumbs up for you!
Huzzah for good news!
To your good health, Rani. *clink* :)
Hello Rani,
I am but a humble Knight and not one who heals but I can tell you I will keep you in my thoughts and prayers. One of the things all Knights learn early in life is "Dues Lo Vult" God Wills It... Please stay strong on your quest and I am sure he will lead the way for you.
I am also a Diabetic and take several shots a day. They are nothing to be afraid of and you do get use to them. They do not hurt. It is a mental thing to focus on and you will get thought it. Keep the faith good lady!
My daughter Princess Emma also sends you her blessings and wishes for a full recovery.
Good Luck!!!
Sir Michael of Mentor and Princess Emma of Fayetteville
(Great Lakes Medieval Faire)
WoooHooo! ;D That is such exciting news! I'm very happy for you, and I wish you even more good health & strength to come!
Thank you all so much for your kind words and well wishes! I'm very excited by this latest news, as you can all imagine! My doctor has said it's vary rare for anyone to cease being diabetic (unless it's pregnancy induced, of course), but there are cases, and healthy liver function is a very important part of overall health, so he's pretty sure that was the most likely cause of it in the first place. I haven't had to take any meds for it in almost a year now, though, so I was convinced it was gone when I started feeling better even without them.
Now to start getting my strength back, as well...
I am glad you got GOOD news! That is a lot to go through.(hugs)
Rani, that's wonderful news. I've gathered from some of your posts that you've had to deal with some difficult medical conditions.
One of these days, Nim and I will make your acquaintance, and I'm very much looking forward to that day. I sense a very good heart and soul in you, and my intuition is generally right. I don't think there's a chance of making TRF for AHE, but we've been known to fall prey to impulse. Our best wishes are with you.
Thank you, Mairte, and you to, Merlin!
There have been times when it was, indeed, very difficult, but I've had wonderful friends and supporters here on R/F (as you would no doubt be able to see were you to take a day or two to read through this extremely looong thread... :o ), and it would have been so much harder without all the prayers and well wishes. In fact, a great deal of it was filled with laughter, hilarity and even a bit of naked-fire-dancing and raver-sacrificing! All in order to appease the Gods, you understand... ;) heheh
It was the laughter, most of all, that saved my sanity... and for that I am profoundly grateful.
Rani,
Huzzah! That is such wonderful news - and such a great way to start the weekend and the rest of your life.
Laughter definitely is the best medicine, to steal a phrase from Reader's Digest. The frau complains that I don't smile enough, but under this beard, who can tell?!? I've got one reserved just for you, Rani. ...but let's be clear: you don't ever want to see me naked-fire-dancing...it might push you over the edge of sanity. :D
Oh, after some of the things I've seen (and had to do) in the last few years... believe me, sanity is the last thing I'm worried about losing! ::) LOLOL
(can't lose whatcha don't have, right?)
Lady Kett, you're so right! It really does feel like "the rest of my life", finally, or at least it's definitely starting to! Few more bugs to work out, but I feel like I'm actually headed somewhere now, instead of just waiting around to start living again! I'm pretty excited... :D
Rani ...sorry this is late in coming to you. have not been on here in a while. Been a busy month for me.
Anyway I am so happy for you girlfriend. I remember when you were going thru your bad health situation, and I and others on here kept telling you " Don't give up, there are better days ahead ." I'm proud of you for not giving up. It took alot of courage and strength on your part and I say way to go girlfriend.
Huzzah to being healthy again. You deffinitely deserve it girlfriend ! Now go out there, kick up your heels , have fun, and enjoy your new healthy life ! :)
Big hugs ! :-*
Thank you, Amy! It's been a long road, and I certainly couldn't have gotten through it without all the support and encouragement I've received here on R/F. I have so much gratitude for all of you who have been here for me, and there is no way I can ever thank all of you enough!
I need to start getting my strength back now, so I can get back to doing all the things I used to enjoy so much!
W00T!!!!!
Verily woot, Rani! I'm sorry my words of support come late but I, too, have been away from the forums a while. Hang in there, lady, and keep the positives coming!
Oh, thank you both! I'm still waiting on the final word for my liver function tests, but they should probably come this week, and since there haven't been any sort of indication to the contrary, I'm going to keep on believing the best!
I this case, the positives will all be negatives! :D heheh
Rani, OH I wish there was something I could do to make this easier for you! Gosh that is horrid! Just stick with it and remember it will end with you healthy... If you can find a Yoga class you might add that to help booster your mental resolve! Blessings And I hope it clears in 6 months rather than a year!!! Cat
Cat, I think you might have missed a few posts... :D It's been a year and a half since the END of the chemo, and it cleared in 8 WEEKS, although I still had to do the full 6 months of chemo! I've been negative for more than 1.5 years now, and am just waiting for the final labs to let me know it's gone for good. Thank you so very much for your well wishes, though! It was made very much easier than it would have been by all the wonderful and supportive people here who lifted my spirits every day, and made me laugh when I thought I would cry!
I'm very excited to get the final results, though... and I wish they would hurry it up! It always takes a little time to get things back from the labs, though.
Rani,
You know you have nothing to wory about. You have people here and beyond looking after you! ;)
Thank you, Lady Glorianna! I do know I've been blessed greatly... :)
Got the final word today... FREE and CLEAR!!! No more major labs for 5 years, and then only a formality! If it's not back by now... it's not coming back!!! :D
All tests are negative detection, liver and pancreatic functions are perfect, and all systems are GO!!!
What awesome news to get the day before I leave for a long weekend of Faire! AHE at TRF sounds like the perfect time and place to celebrate!!! WooT!!!
AMAZING! HUGS!!!!!
Quote from: Rani Zemirah on October 27, 2010, 11:14:17 PM
Got the final word today... FREE and CLEAR!!! No more major labs for 5 years, and then only a formality! If it's not back by now... it's not coming back!!! :D
All tests are negative detection, liver and pancreatic functions are perfect, and all systems are GO!!!
What awesome news to get the day before I leave for a long weekend of Faire! AHE at TRF sounds like the perfect time and place to celebrate!!! WooT!!!
Woo Hooo! Yay for you!
See you Saturday.
Congrats!
HUZZAH!!
Congratulations! ;D Have a wondrous, safe, and well-deserved wild rumpus of a good time at faire!