I just got off the phone with Amy. Good news she is in good spirits, bad news is she's back in the hospital. She was at faire last weekend and was purchasing some new pirate garb, go figure, when she passed out for no apparent reason. Next thing she knows she's got paramedics standing over her and she can't tell them where she is or what her name is so they transported her to the hospital. They're still not sure what is up but fortunately the hospital by the faire seems to be more thourough than the one by her house and they are doing all kinds of tests and such. No results yet. She's hoping to be up and at faire this weekend when I get up there but like I told her, her first priority is to get better then if she can make faire, good. As I get updates I'll post them. Keep her in your prayers for a speedy recovery.
As always she is definitely in my thoughts and prayers. Please let her know that we are thinking about her as well.
OMG! Of course she is in my thoughts and prayers..afterall, she is my 'hired assassin'!! LMAO!
Hope to see her this weekend.......
irish
Let her know we are thinking about and praying for her.
I am also wishing her a speedy recovery.
Healing thought & prayers to you & Lady Amy. We had finally met this past weekend & I was looking forward to talking again this weekend.
May her recovery be quick & complete, My best to you both.
Yes, please let her know we are all thinking of her and send her a hug.
OMG :o ! Thank you for the news, Master James. Please let her know that we're thinking of her and sending prayers her way. Many hugs to her as well.
Please let her know that we love and miss her!
Amy, you know we're all praying for your healing, and sending all kind energy your way! Takes, care, dear, and feel better soon!!!
(((((((((HUGS)))))))))
Oy Vey! Obviously heartfelt thoughts and prayers for healing and recovery to Lady Amy of York. I am glad to hear she was in good spirits when you spoke with her.
Lady Amy you are in my prayers girl! Thanks James for the relay of information.
I got an update from her husband last night. She had a relapse while in the hospital Wednesday morning. They're still not sure what is up and they are still running tests so we'll see. Its possible if all the tests come up negative that they will let her go sometime today but that is still up in the air at this point. Just have to wait and see.
Master James, please let Amy and her family know that thoughts of strength & healing are with her. I'm glad to hear she's in good spirits, and thank you very much for keeping us posted.
*Hugs to all*
I just spoke with Lady Amy on the phone. She is being released from the hospital today. She sounds in good spirits and that is always good! :D
Keeping her in my thoughts and prayers!!!
Thankyou everyone for the hugs and prayers. i am at home.
what a week. Went to Sterling on sunday. felt fine all day. was wraping up the end of the day, when i literally passed out.The next thing i knew i had pramedics and EMT's hovering over me,asking me questions ,and i could not tell them my name, or where i was. pretty scarey.
so they rushed me by ambulance to the Oswego hospital where i was monitored very closely.
after several hours in the ER they decide to admit me, and run some hearts tests, and they wantde to monitor my heart rate closely.
So they watched me closely on moday and did heart tests .
ther tests all came back okay.
in the meantime i also had my menstrual cycle come on and i was losing alot of blood.It was like ariver. Monday and tuesday i was soaking thru every 10 minutes.
so ob-gyn was brought in. they did a ultrasound which ruled out fibroids, cysts, masses , etc.
and the oby gyn guy wo i was very impressed with, cause he took the time to lokk over my med records and talk to me and get my complete medical history, said he wanted me to come into his office next week and have a biopsy to rule out ovarian or uterine cancer, it shhoked me up at first, s
and then beacuse of my medical history, and all the blood i lost the last few days he thought it would be in my best favor if they scheduled a hysterectomy for me.
so yesterday i was kept there while they gave me meds to stop my bledding, plus everytime i stood up, my heart rate would go up so they were not ready to let me go yet.
but today the doctor who was in charge of the floor i was on felt there was no reason to keep me any longer, . and i am not going to go into a long story, but me and my husband almost got in abig argument with him, cause he said he could not pinpoint the cause of me passing out and t went as far as to suggest it was all nerves or that it was all in my head.
My husband politely told him i was at faire very relaxed with friends, and not nervous at all when i passed out. yea like i want to pass out and be taken by ambulance. and a couple of nurses who were there were ready to strangle the doctor and they said if you could have seen her the last few days and the blood she lost, this is not in this girls head. and he left, and i was told by the nurses that this doctor is not thought of very fondly.
so they contacted the ob-gyn who had seen me, and who i really liked, and just shook hs head, and then saisaid he thouht the other doctor was abit out of line. then he said Amy you don't nedd any more stress like that. Go home, relax with your family, and get back in to see me for the biopsy and then we will shcedule the surgery,
so i have an appointment with him on august 3.
then i was talking to the charge nurse and she said they were pulling me off of some of the meds my family doctor had me on cause they thought they were lowering my blood prssure too llow and could have caused me to pass out, that or the severe anemia i had cause when you have anemia there can sometimes be a lack of oxygen to the brain.
so i am at home resting,
and then if that was not enough i find out tonight that one of my sister's was in the hospital the last couple days also cause they think she hada precursor to a stroke.
so my poor parents ,bwteeen worrying about her and me, my mom was going crazy with worry.
then i two older dogs who are suffering with poor health. one has a breathing problem, and the other one has tumors, and evry day is a added miracle but we get a call from the vet this afternoon, and my one year old puppy who we took for her yearly checkup last week, has tested high for Lyme disease.
so it has been quite the week from hell, but as my husband said maybe we are finally getting some answers to waht is going on with me.
so keep me in your prayers, cause i am nervous about the biopsy and pray that it is not cancerous. and i will be gald when the surgery is done and over.
.
Well Amy........you are home and that is the best medicine!
Sorry to hear about the puppy and the older dogs. Lordie, like you need more to try to handle!
Let me know if you need me. You have my number!
Just get well, so you can take care of the annoying problem, I have...LMAO!!!!! ;D
thanks irish, and as you can tell by my typing in that message i am pretty sleepy, so i think it time to hit the hay. dont get much sllep in ahospital. looking forward to a good night sleep. :)
*HUGS*
Amy, I'm glad you're home! I'll be sending lots of thoughts of strength and healing to you and your family, furry and otherwise...
:)
Glad to hear you've got someone taking you seriously, hon! Hope this biopsy will bring positive news! I'm praying for you!
Thanks everyone.
My husband and I are questioning wheter they released me too soon from the hospital. I had a mini relapse this afternnon at home and almost passed out and could not think straight, and everything kept spinning around me. If it was not a hour and a half drive back to the hospital i was in, i would have had Tim take me back, but i did not think i would make it that far in the car.
I did not want to call to my local ER cause neither me or my husband have cared much for the treatment i have gotten there in the past. But if i have another epsiode like today, i may have no choice.
So I am at home resting and praying that I don't have any more episodes before i see the ob-gyn again on August 3rd.
Amy just know that we are all thinking about you and pulling for you through this. Please continue to keep us updated on how you are doing.
Hugs and love to you as always.
Not sure how I missed this earlier, but I'll keep you in my thoughts Amy. You've got a whole "trials of Job" thing going on lately, it seems. I sure hope the pendulum starts to swing in your favor soon.
I am keeping you in my thoughts, Amy!
((Hugs))
Wishing you a complete recovery!!
Hugs and prayers for you, Amy.
Sending hugs, positive thoughts and prayers your way!
Thanks everyone. I am on bedrest for now, and am going stir crazy. Thank goodness for the laptop and tv.
The heavy bleeding i had has stopped for now thanks to some meds they put me on.
I am still getting dizzy, and disorientated when i stand up, and my pulse rate goes up so i am pretty much restricted laying down . My feet and hands keep getting very puffy. My blood sugar is fine, but my blood prssure is lower then normal. I see my family doctor on Tuesday, so see what they have to say about all of it.
My husband has been home with me the last few days (thank goodness for the weekend ) cause the doctors did not want me being left alone. Not sure what he is going to do this week. Can't really afford to have him miss too much work.
My liitle guy is trying to be a brave liitle trooper thru all of this. I am gald i am home with him now, cause he really cried the other night in the ER when they told him mommy had to stay in the hospital.
Ugh, i hate all of this, and what it has done to my family, and especially to him over the last couple of years. He is only five, but since he was a baby all he has known is his mommy in and out of hospitals, or witnessing his mommy passing out and being rushed by ambulance, because she barely had a pulse rate.It is dramatic enough for an adult to witness , let alone a small child.
I pray that we are finally getting to the bottom of all of this maybe, and that this will all be behind us soon, and that i have nothing but good health upahead.
i don't know how this ever happen to me. i was the healthy, active child growing up.
oh weel,Thanks evryone for the continuous prayers and support. keep them coming please, not just for me , but for my family too.
hugs and love--Amy
Amy, I've been thinking alot about you and wondering where the causes lay. In reading all your symptoms: chest pains/dizziness/fainting/ tingling and swelling of your hands and feet, and your most recent symptoms... I wonder if you might be seriously anemic? Did the doctors run tests to see what your red blood count was?
Quote from: Anna Iram on July 26, 2009, 03:07:48 PM
Amy, I've been thinking alot about you and wondering where the causes lay. In reading all your symptoms: chest pains/dizziness/fainting/ tingling and swelling of your hands and feet, and your most recent symptoms... I wonder if you might be seriously anemic? Did the doctors run tests to see what your red blood count was?
I actually asked them to run some blood tests on me, about three weeks ago,cause i know anemia can cause some of the symptoms i have been having, and it did come back that i was anemic, and they have me taking some heavy duty iron supplements three times a day.
I too wonder if i am more anemic then what the tests indicated and if i need more then just iron supplements.
I know though, that they tested my blood counts every day in the hospital, and from what i was told there was nothing that concerned the doctors.
so it continues to be a mystery, but hopefully the mystery gets solved soon, casuse i am getting tired of all of this.
You know, I like a good mystery as much as the next person, but hop you find an answer soon.
*hugs*
Sending you healing thoughts. I hope things get better soon. Best wishes for a good bill of health on your visit on the 3dr.
You remain in my thoughts and prayers Amy.
Hugs! I'm so sorry to hear you were in the hospital! I hope everything starts to improve. Love and courage to you and your family!
Thanks evryone.
I am okay, if i say laying down. BUT, when i stand up i start getting dizzy, my pulse rate goes up, and i feel like i am going to black out. My vision is blurred in my one eye and i get tingling in my hands and feet.
I contacted my family doctor and he was not much help, then again myself, and my husband don't really care that much for the way he has handled my situation. he is okay for treating minor symptoms like colds, flu, but that is about it.My current symptoms are way above his levelof expertise.
He did order a blood test though to check my blood count.
I see the ob-gyn on Monday for a biopsy and shall see what that shows. In the meantime i am trying to think postive, pray, and hold onto the faith, that we shall get hopefully see a silver lining soon and get to the bottom of all of this.
This has been going on long enough.
On the postive note..today is my birthday. after all i have been through, I am thankful to be celebrating another birthday. it is nice to be turning 29 again !!!
Happy Birthday! :)
Sending you lot's of birthday wishes that you find out soon what need to be fixed!
Happy Birthday, Amy. ;D
You are still in my thoughts and prayers as always Amy. As I said before happy birthday to you my friend. I hope it's been a great day for you today as well.
HAPPY BIRTHDAY!!!!!!!!!!!!!!!!!!!!!!!
Happy Birthday! (sorry a day late!) Wishing you a complete recovery for your birthday! Hope you are feeling better.
Huggs & healing to you!
Happy Birthday ~ Amy!!!! ;D
Oh wow... I'm so sorry I missed your B-day, hon! I try to read everything, every day, but I seldom get it done...
!!!HAPPY BIRTHDAY, MY FRIEND!!!
Hope it was full of love and laughter, dear!
Amy, have they run a MRI, CT scan and a brain scan on you?
Happy Birthday Too
Warm fuzzy happy healthy thoughts your way Amy, as well as belated happy birthday. I hope you are doing better.
Thanks everyone.
Lady Mikayla, I have had several MRI's and catscans done.
Tomorrow i go for my biopsy. Getting nervous. Pray evrything turns out okay.
Consider it done. Prayers and good thoughts are being sent your way as always Amy.
How did I miss your birthday ???
well, HAPPY BIRTHDAY!!! ;D I hope it was a FANTASTIC one, you DEFINITELY deserve it!
I'm keeping my fingers crossed, thinking good thoughts, and sending lots of strenght & healing your way :)
Had the biopsy done. Now we just have to wait for the results. hate waiting.
I have a hormone condition called Poly Cystic Ovarian syndrome ( why i had such a hard time getting pregnant, and when i did, almost lost me and the baby, and also why i now have diabetes),and my menstrual cycles have never been regular since my son was born, and the last 2 i had significant blood loss .
So because of the blood loss, my history of PCOS, and the severe anemia i have all of a sudden despite being on the iron supplements, the doctors today felt it would be very beneficial for my health, if i have a complete hysterectomy done.
The plans are to have it done some time next month. Suppose to call me later this week to schedule. They want my blood count to improve first.
I pray that the hysterectomy is will relive alot of my symptoms if not all of them. The doctors seem to feel it will make a great improvement in my health.
so for now, sit and wait, and try to remain focus and calm, etc.... ::) :P
As always prayers and good thoughts continue to come your way Amy. Please continue to keep us updated on how you are doing.
Thanks Lord W. i am just resting and taking it easy. Trying to build my red blood cell count back up, and take my iron supplements to imrove my anemia, for they won't do the surgery until eveything imroves, cause there is a risk i could go into shock.
So throwing down these lovely iron pills which make me sick to my stomach, but i do what i have to do.
also am waiting for the results of the biopsy... sigh...waiting and waiting...
for some reason i feel like my guardian angels were watching over me, and i was meant to pass out at faire. Cause i finally have found a doctor who has actually said " I think i can help you, and improve your health quite a bit."
So hoping and praying that this is finally the answer we have been looking for.
Well, that is def. a silver lining amy..that this doctor will help you! keep me posted. ?
Amy,
I tried the iron pill route and they did not help me, but an infusion did...pricey, but my ins. paid for it since it was done in office. Man can I tell when my iron goes down now...the difference is unbelievable.
Good Luck, you remain in my prayers.
Amy I had no idea that they wanted to do surgery on you for this. What kind of surgery do they want to do if you don't mind me asking?
Lord W, the doctor felt that the severe anemia i had maybe caused by a hormone imbalance that I have and so they are planning to do a complete hysterectomy.
The only thing is they have to wait for two things first before they do the surgery.
They have to wait for the results of the biopsy to make sure I don't have uterine cancer, and they also are waiting for my red blood cell count and iron count to improve cause it is very low right now.
Renrobin..they mention to me when i was in the hospital that they might do blood transfusion, but so far they have me just taking the iron supplements which as i have already mention make be feel yucko. Much rather have a transfusion I think.
Amy, I'm so glad to hear you've finally found a doctor who can help you. :)
Quote from: Anna Iram on August 05, 2009, 09:59:05 PM
Amy, I'm so glad to hear you've finally found a doctor who can help you. :)
Me too ! :) I was begginning to wonder if there were any decent doctors left in this area , who took the time to listen to you, and treat you like a human being, and try to help you, etc.
It only took me passing out at faire. Who knew ren faires could be so good for your health ! :)
Lady Amy, I am SO GLAD you finally found a doctor who could give you answers and offer solutions and a treatment plan! ;D
*hugs*
I'm sorry we didn't get to meet up at Faire, but I am thrilled for you that you're on your way to being healthier!
...I just had a thought (look out! :P lol!), if the iron suppliment pills are bothering your stomach, maybe a liquid suppliment would be easier for you to tolerate. I've used one called Floradix before, the people at the health food store where I used to work recommended it often (and it's actually pretty yummy, too). Here's some info:
http://www.florahealth.com/flora/home/usa/products/r64771.asp (http://www.florahealth.com/flora/home/usa/products/r64771.asp)
This is an excellent product! I had my own struggles with anemia a couple of years back and though it is still just a supplement and not probably going to work miracles, I found it helped. Very easy to take, tastes good and easy on your tummy. Ask your doc about it.
Amy, I am so happy to hear that you're finally getting the answers you've been seeking for so long!!! Congratulations, dear friend! Now to just take it easy and build your strength so that you can get this taken care of, and I pray that you'll be able to get back to enjoying your life again!!! You might take a look at a few dietary websites to see what foods help to build up the blood, also...
I'm hanging in there. I caled my doctor and he switched me to a different form of iron, although it still does not agree very well with my stomach.
I have lost about 8 pounds. Keep this up and I will have to get new garb next year for faire. Hmmm...new garb...maybe these iron pills are not too bad after all ! :) ;) ::)
I am still running a slight elevated temp, and i continue to sometimes get dizzy. I still get the numbness and fast plase rate, but i know aneimia can cause that so i am hoping it will all be a thing of the past before too long. My vision get very bluury which is one reason i have not been on here much. Hard to see the screen.
Yes, i am glad that i have finally found a doctor who maybe able to help me. Lord knows it has been along five years.
My health first went down hill when i was pregnat with my son. They almost lost me and him. He was born healthy, but my health continued to deteriorate, which was devasting to me cause here i had a new baby at home.
I spent four years going to neurologists who tested me for just about everything in the book.
I finally asked for my recors and thank goodness i did. Cause my neurologist i was s eeing negeglected to tell me i had a tumor on my spine. I ended up having surgery last year to remove the tumor, which thank goodness i did, because they found that the tumor was wrapping it's self around my heart, and i could have been dead a few months down the road.
ten everything seemed find up until this spring when i started getting dizzy spells, and actually passed out twice at home. i keept telling my doctor something is not right, but i got nowhere. so i started watching what i ate, and did alot of research on different illnesses , etc. when i rread about anemia, i insisted that i get tested, and bingo i was anemic. the only thing was the doctors did not tell me i was as severe as i was. did not find that out until i passed out at faire.
so yea, i am praying that i finally have found a doctor who is going to help me. i have been impressed with him so far. he takes the time to talk to you, and listen to what you have to say.
***************************************************************************************************
As i was typing this the phone rang and it was the nurse from the new doctor i am seeing. I am scheduled for surgery on September 9 at the hospital in Oswego.
I am nervous. i know it is not life threatening like my surgery last year, but still it is surgery.
Yay for the new doc!
((((hugs))))
Everyone gets nervous before surgery..just keep thinking about feeling better!
Thanks for the update, been wondering how you were!
Quote from: Lady Amy of York on August 03, 2009, 05:30:37 PM
Had the biopsy done. Now we just have to wait for the results. hate waiting.
I have a hormone condition called Poly Cystic Ovarian syndrome ( why i had such a hard time getting pregnant, and when i did, almost lost me and the baby, and also why i now have diabetes),and my menstrual cycles have never been regular since my son was born, and the last 2 i had significant blood loss .
So because of the blood loss, my history of PCOS, and the severe anemia i have all of a sudden despite being on the iron supplements, the doctors today felt it would be very beneficial for my health, if i have a complete hysterectomy done.
The plans are to have it done some time next month. Suppose to call me later this week to schedule. They want my blood count to improve first.
I pray that the hysterectomy is will relive alot of my symptoms if not all of them. The doctors seem to feel it will make a great improvement in my health.
so for now, sit and wait, and try to remain focus and calm, etc.... ::) :P
Greetings Lady Amy - we have never met, but we are sisters in this! I too had many of the things you described. I had a hysterectomy four years ago - and I've never regretted it for one single moment! It was the best elective surgery I've ever had. I hope it will help you as it did me and many of my other "sisters".
I will be thinking of you !!!
Capt Marga
Waiting for the results is difficult, hope you have news soon.
The results of my biopsy were negative ! So that is good news. :)
I am still on bedrest to build up my iron count, red blood cells and immune system.
I am still getting the twitches, and shakes, and dizziness, and fast pulse rate and keeping my fingers croosed that it all being caused by the anemia and hormones, and will diappear sometime after the surgery.
My feet are geeting worse with the numbness, and my vision is getting worse and i hope they are both tied in with the anemia and hormones, but i am also a dibetic, although my sugar levels have been fine and the doctors have ben pleased with my AC! tests i have to test my glucose.
My family doctor thinks i should see a neurologist, but as we know i have liitle sucusss down that path. Nope i shall wait and see what results my surgery bring me next month.
In the mean time, i'm hanging in there. Some days are better then others. But i am thinking postive, and hoping that there is a end to this tunnel ( a good ending ) soon. :)
Amy as always you remain in my thoughts and prayers my dear. Keep on having the faith and keep on fighting the fight cause like you said hopefully there will be light at the end of this tunnel which I believe in my heart there will be.
Hugs and love to you as always lass.
Just an update on how i am doing.
Earlier last week i thought, that i was finally making some progress. I was able to get up and walk around the house without feeling like i was going to pass out. I was happy to be able to get out of my bedroom.
But then last Thursday night I woke up shaking all over. My head, face, arms , legs. It lasted for about a half hour, and afterwards my left side felt numb. It was 2 am in the morning and i really did not want to go to the local ER, especially how i don't care for the service there. and it is a hour and half drive to the Oswego hospital where my new doctor is that i am seeing.
So i eventually fell back to sleep, but the next day i had two more tremor episodes, and unfortunately , it seems to be the daily regime here. atleast a couple times aday i start shaking all over.
I looked up tremors on the internet and in my health books and the info i have come acroos so far has said either neurological, MS( which they thought i had at one time ), Parkinson's , a chemical imbalance ( which could be a possibility ), exposure to lead or mercury, an adrenal gland problem, or a thyroid problem ( which i have question before and asked doctors before to test my throid, but they tell me they have done the basic tests and it was fine. But i know there are more advance tests.)
I have not called my family doctor, cause the lat time i saw him, he told me he felt that my symptoms were above his expertise and that i nedded to see the neurologist here. i refuse to go back to neurologist here after he neglected to tell me about the tumor i had on my spine,.
so i see the new doctor i am seeing, The GYn doctor this Thursday for a pre-screening before my surgery next week, so i will bring it up with him then. Never a dull mooment a round here.
In the mean time i am trying to keep focus and spend time reading , and watching tv with my son, but i have to admit these tremors are a big pain in the you know what !! Right now as i am tyrping this i have use of my hands( knock on wood ) but my face and head keep jerking. Ugh !!
Amy call your GYN doctor because he may want to see you today, I would not wait to get in and see him if you don't have to. Good thoughts and prayers are headed your way.
Quote from: lady serena on September 02, 2009, 09:24:58 AM
Amy call your GYN doctor because he may want to see you today, I would not wait to get in and see him if you don't have to. Good thoughts and prayers are headed your way.
Thanks Serena. i did call, and he not in today. so i will see him tomorrow, and tell him what is going on with me, and see what he has to say.
I also got to the hospital for lab work and a EKG, and pre-surgery tets, so i can talk to them there too.
This ( the tremors and fast pulse rate ) better not postpone the surgery cause i just want evrything done and overwith. I am so tired of all of this. I loked at my son yesterday and he was being very quiet for some reason. I asked him what was wrong and he starteed to cry and told me he did not like mommy being sick. So praying this is all over soon, and i finally find a cure, or if not a cure, atleast a treatment or solution that will along me to get on with my life and live it the best that i can.
thanks again for the prayers. :)
Amy, we're keeping you in our thoughts and prayers.
We're thinking of you and your family. We hope you get some good news soon.
Well it has been a crazy two days here.
It started Wednesday evening. One of my dogs ( the one who was diagnosed with cancer last year, but so far as been beating all the oods and proving the doctors wrong ) started not drinking and eating. Then she started to shake and act very incoherent. My husband and I thought she was on her way out, and i was like" No, please no. I don't need this right now. I'm not ready to say goodbye to her yet."
Then we noticed one of our other dogs, the puppy kept going and drinking out of the toilet. she has never done this before. But we just scolded her and thought, oh great, she has picked up a new habit. But then all three dogs started drinking out of the toilet.
so then my husband and i checked their water bowels and they were all full. None of them had drank any water all day.
So we poured the water out of the bowels, and gave them fresh water . all three really gulped it down, like they had been out in a dry desert.
after having water, the one dog was fine. But it was e nogh to shake us up for abit.
so don't know w hat is up. we are on artisian weel water, and we just had the water tested reently and it was fine, sowho knows what the dogs detected.
then about a hour later we get a call from my brothern'law and my 82 year old mother n law is going to have open heart surgery sometime this weekend, casue her one heart valve is totally close..The doctors have only bben after her for years now to get the heart valve taken care of, but she is so stubborn, so now she has no choice in the matter cause it is totally close.
Then yesterday i went for my pre-surgery tets, and my blood pressure was very high. i told them hospitals will do that to me. i don't like hospitals. i have had tow many tets,a nd surgerires, that i just dont like hospitals. but they were all concern and said they might have to scrub/postpone the surgery unless i get an okay from the doctor who handles my blood pressure.
i was like" wonderful, now what !".
so i went today to my family doctor. i saw a new doctor who just started there. i really liked him, so maybe i will switch over to him as my family doctor. anyway, he increased the dosage of my one blood pressure emdication untiol i have my surgery, and he okayed me for surgery.
also talked about my tremors. not sure what could be causing them, but knock on wood, they have not ben too strong today or yesterday,
so evrything is good to go.
so i will go up to oswego on Tuesday, and stay overnight at ahotel, cause i have to be at the hospital by 6:)) wenesday morning, and my surgery is at 8 am.
i am suppose to be ona clear liquid diet monday and tuesday, so i will have to bring a thermos of soup with me to the hotel. Hmmmm...wonders is rum or wine is considered a clear liquid ? JUST kidding !!!
Amy dear, I'm thinking of you and sending all of the healing energy and positive thoughts I have for a successful surgery and a rapid recovery. Take care, hon, and feel better soon!!!
Amy,
There's an old saying that goes "When it rains it pours" and boy does it ever, but in this case you can't let it get you down because as you see you still have and are continuing to have people pray for you and send you good thoughts as well. As I and everybody else have said before please continue to take care of yourself and not overdo it.
As always you still remain in my thoughts and prayers dear sister. Hugs and lots of love to you as always lass.
Thanks everyone. I'm hanging in there and thinking positive and keeping the faith.
Could you guys say an extra prayer for my husband Tim. His mom did not make it thru the surgery, and passed away yesterday. We got the phone call early this morning. He has yet to cry, or anything. He is keeping it all inside of him, and i am concern. I know he is uspet cause he has not seen her in two years and that he did not get to say goodbye. But evrything happen so fast.
Consider it done Amy. Tim and his family are in my thoughts and prayers at this time.
Im sorry for your loss, prayers headed your way.
Amy, so sorry to hear about everything happening at once. Hugs and prayers for you and Tim and the rest of the family. If you need to talk please feel free to call.
Thanks everyone for the condolences and prayers.
Tomorrow i head for Oswego. The surgery is early Wednesday morning. I know it is not high risk surgery like i had last year, but i am still a bit anxious about it, and will be glad when it is done and i am back home, cause i just do not like hospitals. Spent too much time in them myself and with other relatives, and not all the memories were pleasant. Wish me luck !
I plan on having my husband contact the following forum members " Master James ", and " Irish " on here, who already said they would post an update on my condition for me.
Amy, I'll keep you in my thoughts this week and have faith that you'll return to us soon in and in good health. Try not to worry overmuch.
I'm sorry to read of your mother in law's passing. I hope things even out soon for you and those you love.
Amy like I have said before you are still in my thoughts and prayers on your upcoming surgery dear sister.
Love and hugs to you as always my dear.
My Dear friend.......
Tim will be in my prayers. I hope he can remember the good times with his Mom and know, she is always with him.
Please tell little Tim, he is in my heart. He is a sweet child with a wondrous Soul.
And you better be up and ready for next faire season! You still a have a job to do! LMAO!!!!! :P
Love ya.......
irish
Amy's hubby, Tim, called me tonight. Amy went through the surgery very nicely and expects to be leaving the hospital, some time tomorrow.
Keeping Any in my prayers for a speedy recovery and Tim, with Sympathy, for the loss of his Mother.
irish
My best to Lady Amy for a speedy recovery and sympathy in their time of sorrow.
Huzzah! Send her,and her family, our love!
I'm so glad she's through the surgery, and recovering. All healing energy, and much sympathy also, to the entire family during these difficult times.
Excellent! I'm glad to hear that she went through her surgery okay yesterday. Please let her know that she is still in my thoughts and prayers irish. Thanks.
Amy called me tonight and left a voice message.
She is home resting, worn out and just wants to sleeppppppppppp!!!! Poor girl!
She wants everyone to know how much she appreciates the good thoughts and the prayers, during her recovery and with her husband's Mom passing.
Hi evryone. This is Amy. I'm going to keep it brief cause i am pretty groggy. The surgery itself went well, and they discharged me Thursday afternoon, with some pretty heavy duty pain meds to take, for i have three good incisions. One in my belly button, and two lower down. But like i said they have me on some pretty strong pain meds .
Unfortunately though, i started running a high fever yesterday and coughing alot. Went back to the hospital this morning and saw the the doctor. I have pneumonia. He did not admit me. I am at home. Felt i would rest better at home. He gave me a heavy duty antibiotic, and i am also taking nebulizer treatments to help my breathing and i am to call him on Monday.
So between the pain meds, the antibiotic, and just the general wear and tear from the surgery, and being sick on top of it, i am pretty much out of it, and all i do is sleep.
Mater of fact i am going to quit this now, cause i am falling asllep as i type.
thanks gain for all the prayers for me and also for Tim, and Timothy.
Amy the main thing is that you are at home and alright and for me I am thankful for that. I am however sorry to hear about your pneumonia though but like I have said before please do take care of yourself and not overdo it, so in this case if that means getting a lot of rest then please do it cause I (especially) want to see you back on here healthy again.
As always hugs and lots to you dear sister.
You are, as always, in my thoughts and prayers
Thanks evryone for the continued prayers for my family. Tim is still trying to cope with the loss of his mom. There is going to be no wake or funeral. His mother did not want that. She wanted to be cremated and have her ashes spread over a near by lake.
We still have not told little Timothy about his grandma. He still too concern about his mommy, and my mom suggested that maybe we wait till I get back on my feet.
I'm trying to get well and back on my feet. Unfortunately my body has other ideas. Despite staying in bed, and resting and taking my meds, my temperature is still fluctuating, i'm still very short of breath, and my pulse rate is running very fast and my blood sugar is the highest it has ever been. I also have too big lesions/sores on my left side. So i called the doctor at the hospital today, and he wants to see me Wednesday morning cause he did not like the fast pulse rate and high blood sugar level or the fact that i am still running a fever,etc. I pray he does not put be back in the hospital. I tell you, i can never do anything easy. :'( Well, atleast the surgery, itself went well ! :)
Thanks for the continuous prayers and well wishes.
You continue to be in my thoughts and prayers as always Amy.
Lots of love and hugs to as always my dear.
A quick update---As for the doctor visit today, he said my lungs look better then they did on Saturday, and that he felt it is just going to take time and rest, but if i am still getting short of breath at the end of this week i am to contact either my family doctor or a pulmonary doctor and make sure there is nothing else brewing there.
Amy, I'm so happy things are starting to look up for you, and excited that you'll be able to tell more and more, once this pesky pneumonia has cleared up, if this surgery has helped to alleviate the symptoms you've been suffering from for so long. Your typing alone shows a marked improvement, so I'm hoping the tremors have subsided significantly?
We're all keeping you in our thoughts and prayers, my dear, and looking forward to the time when you're able to come back and play here with us as much as you'd like!!! Take care of yourself, and get as much rest as you can!
Much sympathy for Tim, and the rest of your family, during this sad time. I hope the joyous memories you all carry of his mother can begin to heal the pain of loss and grief in the near future, and that young Timothy will carry her in his heart through all the years to come. My condolences...
AN update :
On friday i finished the antibiotic i was on for the pneumonia, and i was still very short of breath and running a temp, so i called and talked to my doctor and i was sent to the local hospital for a chest xray. I spent the weekend in bed resting and drinking lots of fluids. Got the results back yesterday, and the xray was clear. So that was good news.
I'm still coughing a bit though and running a temp, but i think it is just a matter of rest and taking and it easy.
It is really too soon for me to tell if the surgery has helped any of my symptoms. I still get mild temors and tingling, but i have also been sick with the pneumonia, so like i said to early to tell.
They still have me on iron for the anemia, and i am also now on estrogen to replace the hormones i dont have any more.
I have been told by the doctor i should deffinitely see some relief in some of my hormone realted symptoms so time shall tell it's tale what symptoms were hormone related and what were neurological or something else.I am hoping they were all hormone realted and i will soon be over all this crap, so to speak.
my husband was home with me the last two weeks, and he spent time researching some of my symptoms on the computer, and along with me dealing with an hormone imbalance, diabetes, and a neurological problem we are convinced that thru all my years of being put on antibitoics, and steriods, and other meds, that i have a fungus, and yeast build up in my system, which by researching more about it, we have learned can cause breathing problems, neurological symptoms, hormone problems, etc.
So once i get over my bout with the pneumonia, i plan on going on a anti yeast/fungus diet and start taking probiotics.shall see if it works. always something. But i can't complain. can always be worse. it has been a long two months, but my family has all managed, if anything it just brings us closer and makes us stronger. The good news is i made it thru the surgery weell, and hey, i also have lost 25 pounds since this all started. Thats because all the meds they had and have me on have destroyed my appetite.I can think of better ways to lose weight but i'll take it.Hmmm...do i hear new spring wardrobe next year, and new ren gowns !! ;D ::) ;)
thanks everyone for continuous prayers and well wishes for me and my family. Hugs and love to you all.
I'm laying here in bed, and I'm thinking to myself, that maybe, yes maybe, overall, and after five long years, we maybe finally making some progress with my major symptoms. ( Knock on wood ! ) :)
-My eyes i know i will always have the problem focusing at times because i suffered some damage to the , high, high blood pressure i had when i was pregnant with my son.
- My sinuses and allergies are just an everyday nuisance- although i did read that fungus and yeast can sometimes mimic sinus problems, so take care of the fungus and yeast and who knows
-- I still get the tingles and tremors in my face and hands but hopefully i will be able to figure out what is causing them soon
.
--- My glucose levels and my high blood pressure are staying under control finally ( knock on wood ) due to me watching what i eat, and trying to exercise ( except for the last few weeks) on a regular basis.
- i got rid of the tumor that was on my spine last year.
--I took care of my irregular menstrual bleeding and some pain in the neck hormones. ;D
--I still have the anemia to take care of, but hopefully that will be gone soon.
--i still get pain in my back, probably due to the two bulging discs i have, but i refuse to have any surgery done, since i have known people who have had back surgery and just felt worse after.So you just grin and bare it, and get on with life so to speak.
- i still get the numbness in my feet which drives me crazy at times, and hopefully i can pin down a cause.
--i still get the fast pulse rate and dizziness, but that may be due to the anemia.
But we are slowly making progress and getting answers, i think.
i could not have made it this far without the love and support of my family at home, and the love and support and well wishes from my friends and family here on the forum. THANKYOU, THANKYOU, everyone ! :) :-*
Amy dear you have no idea how much this means to me seeing you in good spirits despite all the crap you have been through for the past several months. I have been telling you time and time again that I believe in my heart that there is a miracle ahead for you and based on what I have been seeing and reading on here from you that that miracle has finally arrived. Well all I have to say now is Huzzah and I'm really happy for you that things are finally starting to look up for you again.
Just know that as always you still remain in my thoughts and prayers my dear.
And as always hugs and love to you as well.
Amy, please keep us updated on how you're feeling these days, ok? I'm glad you're seeing some improvement, and I'm hoping you'll experience a complete recovery from all of the neurological symptoms. Once the anemia is gone, and you've addressed the yeast issue, perhaps you'll have the answers you've been looking for. I certainly hope so, anyway! I'll be thinking about you, dear! Take care...
You're in my thoughts & prayers Lady Amy. Please let us all know how things are with you.
I'm so glad to hear that things are looking up for you, and I'm sure it is in no small part due to your fantastic attitude ;D
HUGS!!! to you & your family
Lady Amy,
I know you and your husband have been doing some pretty extensive studying to find out what could possibly be the problem(s), but I was wondering if you have done any study on Chiari? If not, here are just a few links you and/or your husband may be interested in checking into. It is not such a well known disorder, and can have multiple symptoms and problems involved with it. I encourage you to look into it if you have not already done so:
http://www.asap.org/chiari-malformation.html (http://www.asap.org/chiari-malformation.html)
http://www.ninds.nih.gov/disorders/chiari/detail_chiari.htm (http://www.ninds.nih.gov/disorders/chiari/detail_chiari.htm)
http://www.mayoclinic.com/health/chiari-malformation/DS00839 (http://www.mayoclinic.com/health/chiari-malformation/DS00839)
http://www.chiaricare.com/Welcome.html (http://www.chiaricare.com/Welcome.html)
http://www.chiariconnectioninternational.com/ (http://www.chiariconnectioninternational.com/)
Oh yes - there is also a Chiari Institute in New York:
http://www.chiariinstitute.com/ (http://www.chiariinstitute.com/)
Thanks Lord W! yes, i am doing my best to stay in good spirits. You always have to have faith and think positive...that is my motto. If i was to sit and dwell on all my symptoms all the time, i would never get anywhere.
I have a life to live and happy for everyday that i am alive, although there are days when i feel like" what next?' but overall you just have to think positive. Now talk to me tomorrow and i may have a whole different attitude ! LOL !
Thanks Rani. yes, i am hoping that once the anemia, and yeast stuff get taken care of and my hormones balance out that my neurological symptoms disappear too.
I can't complain though. Things could be alot worse. i just get tired of the numbness in my hands, face and feet. The face and feet being the worse. the face cause it affects when i talk at times, and my ffet cause it ffels like i liiterally put both my feet in the freezer. But like i said could be worse.
Thanks Sterling Fan. I'm hanging in there. Right now besides the numbness, i am still getting very tired. i also have a slight infection in one of my incisions and keep putting antibiotic sab on it.I see my doctor next Thursday for a post- surgery exam.
Tygrkat--What fantastic attitude...who me ??? LOL !!! thanks girlfriend !
Nyneve-thanks for the info, you posted. i will deffinitely check it out.
thanks evryone. hugs and blessings to you all
A quick update:
Before i forget, i have some good news. I went to my doctor who did mu surgery, my ob-gyn, yesterday for my post surgery exam. Everything looked good and was healing nicely. My blood count and iron count is back to normal, so no more anemia. Yea. can get off of those awful iron pills.
So i just need to continue to keep my blood pressure under control, and my cholesterol, which so far both are doing pretty good.Hopefully i continue to do well, and can eventually get off of the meds i am on for it.
My blood sugar levels have been up a bit for some reason, so i have to keep an eye of them, and also still work on getting the yeast out of my system.
but finally making some progress i think. Yea !!! ;D ;D ;D
i still get the numbness and tingling, especially in my feet, hands and face, but i keep hoping eventually i will find an answer, or that the symptoms will disappear, but at least things are looking up for now, and hopefully for good ! :)
:D HUZZAH, Amy! So good to hear some good news. I'm glad that you found this doctor... just not the way you found him. Anyway, I'm so happy for you.
Thats good news that you are feeling better.
Huzzah on the good news! Kudos to you for maintaining a positive attitude!
I'm so happy to hear some positive news for you, Amy dear!!! Please continue to let us know how the yeast purge is going, as well as any new developments in your treatments! I hope it all starts to get better as you get closer to your goals. Take care, and take it easy on yourself!
I'll be keeping you in my thoughts... :)
Amy like I said before I am so glad to hear that things are starting to look up for you and hopefully for good as well. Please like Rani said continue to keep us updated any new developments you get and continue to hang in there and fight the good fight like you have been doing all this time.
Your are as always still in my thoughts and prayers though.
As always hugs and lots of love to you lass.
Been a wile since I checked in on you but very happy to hear your doing better! Your positive attitude is commendable!
You are still & always will be in my thoughts & prayers. Godspeed to a full recovery.