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Candles for Prayer => Candles for Prayer => Topic started by: Lady Amy of York on February 08, 2010, 11:38:36 PM

Title: Prayers Needed-Udate ! Finally some answers !!
Post by: Lady Amy of York on February 08, 2010, 11:38:36 PM
  My string of bad luck has hit me  again. Ever since my incident with the anemia last summer, my digestive tract has not been right, and i keep getting constant bouts of diarrhea. I went twice now to the doctor and they said i had a bacteria infection and put me on antibiotics, but it did not help and so i actually made an appointment to see some one else .

Well then over the weekend, my feet and hands kept getting real puffy. Then yesterday I woke up with the worst pain in the mi idle of my chest like  someone was slamming their fist in me. I had pain running down my left arm too.  I was like " OH shi... !! "  ( excuse  the language !! )  The pain got worse and i was in a cold sweat.   My husband  called  for  the ambulance  and i was  rushed to the hospital.

 In the hospital they did EKG,  and blood work. One of  the blood tests  they did, showed i might have a clot, so then they did  a cat scan. I spent several hours in the ER , because my pulse keep racing over 100, and  my blood pressure went up to 210 over 140. Every time i moved, or  sat up, it would send my pressure even higher.


I thought sure they were going to admit me, as did my my husband.But as everyone who knows me, knows that i do not care  for  the local emergency room here, or  the service very much. Even though my blood pressure  and pulse were still on the high side  they released me, and told me  that i was to contact a cardiologist in the morning that was on staff there.

So this morning my husband called  the cardiologist for me  and told them went happen yesterday, and  to make  a long story short, I can not  be  seen until  Monday.

So i am trying my best to think positive, but it so frustrating. as everyone  who knows me, knows i have been thru enough  health wise, these last three years, with my thoracic surgery, the tumor on my spine, and  the surgery i had  last year. This was going to be my year to be healthy again.Oh well, I am not going to let this get me  down. I have gooten thru before...but I have to admit,,,,i am scared  this  time. I never had blood pressure that high.My arms  and legs are still very swollen.

Keep me  in your  thoughts please, and  my family too.  Thanks !!
Title: Re: Prayers Needed
Post by: crazyrennie on February 09, 2010, 08:57:30 AM
Keeping you in thoughts fro out here in Az
Title: Re: Prayers Needed
Post by: Xantrawler on February 10, 2010, 09:38:20 PM
Lady Amy when we meet at Sterling this year, (Notice I said when, think positive) I will give you the hug. You have been through a lot. I don't like the idea of you waiting until Monday or Tuesday. You do need to be in a hospital. Both the wife and I will keep you in our prayers and if you come to Strong in Rochester let me know and we will even visit after one of my treatments.
Title: Re: Prayers Needed
Post by: Lady Amy of York on February 10, 2010, 10:08:25 PM
Quote from: Xantrawler on February 10, 2010, 09:38:20 PM
Lady Amy when we meet at Sterling this year, (Notice I said when, think positive) I will give you the hug. You have been through a lot. I don't like the idea of you waiting until Monday or Tuesday. You do need to be in a hospital. Both the wife and I will keep you in our prayers and if you come to Strong in Rochester let me know and we will even visit after one of my treatments.


I am holding you to that hug my friend ! :) We both need to think positive, for i know  you are dealing with  your own health issues  too  right  now.

Yea, I am not thriiled about waiting till Monday to see the cardiologist, nor are my parents, but as anyone who knows me  and my health story, they know I am not thriiled  with the local hospital here.


Well, if i do not get any satisfaction here, one of my nieces works as a nurse on the cardiac care floor at the hospital in Albany, and she said she could  give me  names of  some  doctors  there.
Title: Re: Prayers Needed
Post by: irish on February 12, 2010, 10:53:39 AM
Good Grief! What will we do with you? No more being ill! Got that??  :D
I hope things work out on Monday.  Make sure you call, if you need to talk. OK???
Title: Re: Prayers Needed
Post by: renren on February 15, 2010, 03:04:47 PM
Positive, healing thoughts headed your way from northern Minnesota!
Title: Re: Prayers Needed
Post by: Lady Amy of York on February 15, 2010, 05:46:02 PM
Hi. So here is the latest :

Went and had cat scans done on Friday of stomach and pelvic area to try to find cause of  the chronic diarrhea and  side pain, i have been getting for  the last three months now.  Doctor called  this morning and  said tests came back normal. he still wants  to see me Thursday  to go over them.


Then i saw  the Cardiologist  this afternoon.  Bottom line they did not feel that the swelling in my arms  and legs, the high blood pressure, chest pains, shortness of breath  was heart related, and had no deffinite explanation to what could be causing it. They did another EKG, checked my pressure, listen to lungs.

I'm still getting the diarrhea, my hands  and feet are still puffy, and i'm still short of breath  and  dizzy.


So good news is that the tests showed nothing wrong. The bummer news is that i am left  like usual  without any answers  to what is going on with me. I feel like screaming ! Even my husband Tim just shooked his head.   I think i will go down to the corner tavern and have  a couple  drinks ! :'(
UGH !!!!
Anyway, thanks  for the prayers. :)  Hugs--Amy
Title: Re: Prayers Needed
Post by: Xantrawler on February 16, 2010, 07:30:07 PM
Hang in there, we're all here for you
Title: Re: Prayers Needed
Post by: irish on February 18, 2010, 07:46:43 PM
{{{AMY}}}
Dang Sis! Maybe you need a few good shots of rum?  ::)
As always, you are in my thoughts and prayers!
;D
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Lady Amy of York on February 19, 2010, 01:17:40 AM
*******************************************************************************************

Good news ! Finally. finally....and for a change...took long enough...we have some answers to what have been causing my symptoms. Yea!!

The swelling, and puffiness of my hands, feet, legs and arms are due  to the Premarin (Estrogen ) they put me on after my hysterectomy last fall. So plan is to  lower the dosage.

As for the diarrhea i been having for months, since the Cat scans showed nothing wrong with my stomach or intestines, the doctors feel that it is a food allergy. To what we don't know. But they felt it could be to diary products.

And as far as the chest pains, erratic heart rhythm, and palpitations...one of my blood tests showed i was very low in potassium. Low potassium levels causes the heart to work harder and can cause cardiac like symptoms.

Also, low sodium can cause tingling  that i have been getting in my hands and feet.

So i had the thoracic surgery 2 years ago to remove the tumor on my spine that was pressing on nerves and causing problems.

Then i was still left with dizziness and passing out, and tremors, which we found was due to the anemia, so i had the hysterectomy last fall.

But there was still the tingling, diarrhea, swelling, and the erratic heart rhythm, and palpitations, and the numbness in my hands and feet.

But as i said, now we know the Premarin caused the swelling, and the low potassium caused the tingling, and the heart stuff. As for the numbness , who knows maybe it causes that too.I do know also i have 2 bulging discs in my back that may be causing it, but no way am i having back surgery.

But finally some answers. Yea !!! Yea!! ;D :) :) :)

Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: crazyrennie on February 19, 2010, 09:18:49 AM
Keeping you in the thought from out here in AZ
Congrats on the good news!
crazy
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: ladylissame on February 19, 2010, 09:19:31 PM
Answers are good to have
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: irish on February 20, 2010, 06:45:16 PM
YEA!!!!!! Finally!! I am so glad they have given you some answers!
Still in my prayers and still need some rum!  :P
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Baroness de Vale on February 20, 2010, 09:35:35 PM
So glad to hear that you have answers to your problems! Yea! I had physical therapy because I had tingling in my fingers caused by a bulging disc. The tingling disappeared and a year and a half later I still have no problem. I didn't know that low potassium caused palpitations. I've been having them and thought I was on the verge of an anxiety attack. I figured one of my other medicines was causing that, and a recent EKG showed no problems. I was just diagnosed with low potassium and the doctor put me on a supplement. Hopefully that will get rid of that little problem. Thanks for posting about it because you helped relieve my mind!
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Anna Iram on February 20, 2010, 10:44:08 PM
Amy, if I were you I'd tell my doctor I wanted an alternative to Premerin. It's a horrid drug. Not just for the side effects, but for how it is made. Do some reading about it and say no.

I wish you could find a natural health practitioner up there. One that would look to making you well.
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Tygrkat on February 20, 2010, 11:21:00 PM
Oh Lady Amy! I am so glad you are FINALLY starting to get some answers!  :) I know I'm not on often, but you are in my thoughts and I am always sending thoughts of strength & healing whenever you come to mind.

 
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Lady Amy of York on February 20, 2010, 11:26:17 PM
Thanks everyone !! ;D
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Celtic Lady on February 21, 2010, 12:04:51 AM
so happy you have some answers, Amy  :D. it's about time!
Quote from: Anna Iram on February 20, 2010, 10:44:08 PM
Amy, if I were you I'd tell my doctor I wanted an alternative to Premerin. It's a horrid drug. Not just for the side effects, but for how it is made. Do some reading about it and say no.

I wish you could find a natural health practitioner up there. One that would look to making you well.
i agree with you Anna. Premarin is unkind. for those that don't know it's made from estrogen that is collected from pregnant mares' urine. these mares are bred only for the purpose of providing estrogen/urine. what happens to their foals is sad. some are saved and find homes many do not.
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Lady Amy of York on February 21, 2010, 05:12:52 PM
Quote from: Celtic Lady on February 21, 2010, 12:04:51 AM
so happy you have some answers, Amy  :D. it's about time!
Quote from: Anna Iram on February 20, 2010, 10:44:08 PM
Amy, if I were you I'd tell my doctor I wanted an alternative to Premerin. It's a horrid drug. Not just for the side effects, but for how it is made. Do some reading about it and say no.

I wish you could find a natural health practitioner up there. One that would look to making you well.
i agree with you Anna. Premarin is unkind. for those that don't know it's made from estrogen that is collected from pregnant mares' urine. these mares are bred only for the purpose of providing estrogen/urine. what happens to their foals is sad. some are saved and find homes many do not.

I agree with you Anna  and Celtic Lady. Being a horse owner, i knew all about Premarin.  I had a friend  who would go around and adopt  the  Premarin foals.
 I told  the doctors i did not  want Premarin, if that was  the  form of estrogen they were going to use.  But what happen was that  the hospital after  the hysterectomy last year, while i was still knocked out from the anesthesia, they, without, my knowledge  had started administering   the Premarin thru  IV.  
Since  they were giving a large dosage  thru IV, i  was told I could not just stop  cold  turkey.  I had  to wean off of it.
I have been trying to get my Obgyn to switch me to something else, with not much success. so i just said " Forget this. I am not going to take the prescription ." Plus  the new family doctor I am seeing was not too keen on me being on Premarin either.

I am a  believer  of  natural health. I too wish I could  find  a natural health practitioner around here. I do have a store near by  that i love, that carries natural health products, so i  may  go there and talk to them, and see if   they have some biodentical, or natural estrogen cream. To be honest though, i'm not really crazy about using estrogen at all,  so i may  not use it all.

UPDATE :

I contacted the natural health store by me  and they have  two different estrogen products made from soy. But the more I research about the pro and cons of estrogen I'm not too sure  the beneifits  are worth the  risks. So undecided at this point.
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Auryn on February 23, 2010, 01:40:59 PM
Lady Amy,
I am glad you have at least a partial answer to your problems.

Personally my body is too sensitive to any form of outside hormone, to the point that I can't eat anything soy based as it will make my hormones go nuts.

May I suggest you look into acupuncture??
it has done wonders for my mom's back problems- things they told her she could only have mitigated by back surgery which she absolutely refused.

Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Anna Iram on February 24, 2010, 08:59:56 AM
I stay away from soy products too, but there are other products to consider . Keep in mind I am not a medical professional nor have I had personal experince with any of these alternatives. I also don't know the specifics of why your doctors chose Premarin and why they are taking so long to get you off of it. Anyway...disclaimer having been made... :D

Here's a lit of possible alternatives. Some are yam based. Some are better for certain conditions. It's a good list to start from anyway.

http://members.tripod.com/p3_acres/id49.htm

It's confusing to decide what you really need and what women are being told they need. Perhaps you could sit with your new doctor and discuss some of the products off the list. I'm always reading about something or another. I'll keep an eye out for anything that might be of help Amy.
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Lady Amy of York on February 24, 2010, 04:32:09 PM
Thanks Anna.

I  don't know  why my OB  doctor  decided on Premarin either. He  had told  me  before  the surgery  that since  they were taking  the  ovaries  too, that I  would  nedd estrogen.  I  told him I was not too thrilled  on the  idea, and i also recall telling him, not to put me on Premarin. 
  But that is  what  they went  and  put me on  while  in the hospital  recovering f rom the  surgery, and  I  was  told  by them (  although i  don't think it   is  rellay true, based on some  research i have  been  doing )  that you can  not just stop taking it cold  turkey.
  But I  did. I totally stopped  taking  it .  Sometimes you have  to take  matters  into  your own hands.  Only  you really  know  your  own  body.
 
Thanks  for  the info on Yams.

I am constantly reading health books  and  researching  on the internet.  Yes, you do have  to be careful what  you read  and take. I always  research  everything very carefully  first, but i have  found  some   times   doctors  do  not always  know  everything. There is  alot of info out there if  you take  the  time  to read  and  research. You just have  to be careful that you  don't start  thinking  you have   every  disease in  the  book. I  am a  firm beliver  now, of  researching  every prescription  your  doctor  hands  you  and  finding  out  all about  the  possible  side  effects.

Thanks  again.
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Anna Iram on February 25, 2010, 01:33:01 PM
 :) You are very welcome.
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Xantrawler on March 07, 2010, 06:44:37 PM
Lady Amy, this is great news. Does this mean not only do we get to send hugs all around (And keep Irish out of trouble) but perhaps we two, our loved ones, family and friends as well as others we know at Sterling can join in and do the Maypole dance together? We can call it the pole of Hope, or Survivor's Pole.
Catch my update to find out why I have been absent. I'm doing much better now.
Once more this has been great news and I'm looking forward to July to give you your hug.
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: irish on March 07, 2010, 07:10:16 PM
Hmmmmmmmmm........I wonder who is going to keep you two out of trouble, cause, if you are keeping me out of trouble, then you'd be in trouble...hell! let's just get in trouble all together and let SterlingFan and Tygrkat, watch us.....ummmmmm, well, they need to be in trouble too, so..........it will just be a troublesome affair at the faire....lmao!  ;D
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Tygrkat on March 07, 2010, 07:22:26 PM
I'm definitely no help when it comes to staying out of trouble....now if you need help FINDING trouble, that is another matter ENTIRELY  ;)



*ETA* I CAN'T WAIT FOR FAIRE!!!  ;D
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Lady Amy of York on March 07, 2010, 10:29:19 PM
Quote from: irish on March 07, 2010, 07:10:16 PM
Hmmmmmmmmm........I wonder who is going to keep you two out of trouble, cause, if you are keeping me out of trouble, then you'd be in trouble...hell! let's just get in trouble all together and let SterlingFan and Tygrkat, watch us.....ummmmmm, well, they need to be in trouble too, so..........it will just be a troublesome affair at the faire....lmao!  ;D

   Irish..Lets see, between, me ,Xantrawler, Tygrkat, Sterling Fan,   ..the four of us  should be  able  to keep you under  control....then again.... I  think  we need more  recruits ,  or  we  could  just take  away  your  mirrors  and  floggers ! ;D ;D

Xantrawler, I definitely hope  to meet  you in person this  year  at faire.
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Xantrawler on March 18, 2010, 04:18:44 PM
Lady Amy I'm hoping we all can meet. My wife wants to meet you all. Hmmmm I wonder if she will keep us out of trouble. All of us will come together, perhaps at the Bad Dog. Raise our mugs to each other and all those who are fighters. Then afterwards we can take Irish for a short walk to the pond, if he has misbehaved.  Lol
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: irish on March 19, 2010, 08:41:07 AM
Xantrawler! LOL! I am a SHE........lmao!!  ::)


Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Xantrawler on March 19, 2010, 11:44:01 AM
whoops, I was wondering why I had an extra S after I got done with that post.
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Celtic Lady on May 10, 2010, 06:26:19 PM
Hey Amy. Hope you are doing well. Have you any updates for us with what is going on with you?
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Lady Amy of York on May 11, 2010, 12:20:03 AM
Celtic lady !  Hugs  girlfriend !

I'm doing good.   ( knocks on wood ! )  The potassium pills seem  to have help the heart palpitations. ( knocks on wood  again ).  As long as
I watch  what i eat ( i deffinitely have food allergies )  i  don't seem to get the diarrhea. but sometimes i will forget and  then i pay  the      l  price  the  next day.
I stopped the estrogen all together and that helped with the  extreme  swelling i was getting in  my hands  and  face.  I  still get some  swelling sometimes if  i have been doing alot of  walking, in my feet, but that is  due  to  my  diabetes.

  I still get numbness on and off in my hands  and  feet but alot of  that is  due  to nerve damage  from my diabetes  going undetected for  so long, plus  the neurologists  told  me i had definitely had  something at one  time  that attacked my nerve cells. Could have been the Lyme  disease i had back in 1992.

I just went  to the eye doctor last week, and got new lenses to help me  see better. At least i better see better, seeing how  for  the prescription regular glasses, then the  sunglasses, plus  the  exam it came  close  to $1000. Unfortunately  my health insurance  does not cover eye  care.


i go this week  for  a root canal and  a crown put in on of my teeth  for  the tune of $2000.  So needless to say  there goes  the family vacation we were  going to take  next  month. oh well !
I go next week  to my family doctor, the new one  that i  like, to have my potassium levels  checked again, and  to have my  cholesterol  and blood sugar checked. depending on my blood sugar reading this  time, they may  start me on meds for  my diabetes.

overall though, things are doing good  for  a  change. Thanks  for  asking ! :)
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Rani Zemirah on May 11, 2010, 08:36:31 AM
I'm so glad they're starting to figure out what the different problems have been, and are treating what needs to be treated!  I will continue to pray that things get better every day for you, dear!  Take care, Amy!  :)
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Celtic Lady on May 11, 2010, 06:45:36 PM
Quote from: Rani Zemirah on May 11, 2010, 08:36:31 AM
I'm so glad they're starting to figure out what the different problems have been, and are treating what needs to be treated!  I will continue to pray that things get better every day for you, dear!  Take care, Amy!  :)
i second that. i'm so very happy to hear things are on an upward curve now  :).
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: lordwriothsley on May 12, 2010, 08:25:04 AM
You both (Rani and Celtic Lady) might as well go ahead and throw me into the mix as well. Amy I am very proud to hear that things are looking up for you now and that you are finally being treated for all the problems that you have been faced with so long. Please know that you are still in my thoughts and prayers like you have always been.


Love and Hugs to you as usual Amy.
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: Lady Amy of York on May 12, 2010, 03:44:03 PM
Thanks everyone. yes, nice  to have  things looking good   for  me   for  a change.  :)  Could not have made  it  thru all that i went thru  these  last 5  years  though without  my family  and  you guys.  Thanks  for   everything !  < Prays  things  continue   to  go well,  don't want to jinx  myself  here ! :)  ;)>
Title: Re: Prayers Needed-Udate ! Finally some answers !!
Post by: photomike on May 12, 2010, 04:37:20 PM
So glad things are looking better! Still sending healing prayers your way!