Around 5 am yesterday morning, i started shaking all over in my sleep. I was shaking so hard it woke my husband Tim up. he woke me up, and i continued to shake. My head felt like it was going to split in two. My left side of my face and left arm was numb. So Tim called for the ambulance and they rushed me to the emergency room. While the nurses were trying to take my vitals, i continued to shake. My pulse was over 100.
The one nurse said " she is seizing," and went running for a doctor. They hooked me up to an iv ans started pumping meds thru me to stop the seizure. and then they hurried me down to Cat- scan for a Cat-scan. then i was brought back to my room, where they pump me full of pain meds. they also did a EKG on me, and drew blood.
i was there for several hours while they monitored me and kept me there until my vitals went back down to nromal range.
The doctor came in and said the cat -scan showed no brain abonormalities, but yet i displayed very sign of a mild seizure. They sent me home with Vicoden and one other pain med to take for the pain. they also sent me home with Valium to take for the seizures, and then one other med to keep me from vomiting cause i guess the pain meds and the valium can do a job on my stomach. I am suppose to follow up with my family doctor and possibly a neurologist. The only neurologist here in the area is the one that i use to go to, who detected the cyst on my spine that i had removed earlier this year, over a year ago, but neglected to tell me. So i will probably end up going out of the area somewhere.
So i need this like a hole in the head right now , especially at this time of year.
Hope you can read this. i am typing one handed. not bad for one hand. i have liitle use of my right hand, and the one side of my face keps going numb. ugh ! Very frustrating, cause i thought after i had the cyst removed earlier this year, that evreything was behind me. I was doing so well ! so now it is back to searching for an answer again !
Well atleast i have you guys on here and my family to lift my spirits !
more
(((super healing hugs)))
You'll be in my thougths and prayers, dear!
* Hugs Amy * I pray you'll get better. Is terrible what is happening to you.
Amy you are in my thoughts and prayers dear sister.You have all my love,support,and hugs during this difficult time.And don't worry cause the ship is in good hands right now.Doctor Bones to rescue! ;D ;D
Oh Amy, I am so sorry to hear this! Of course I will send you all healing energy and prayers for comfort, rest and no pain...
I will write more tomorrow, dear, after I get a new keyboard...
You and your family are in my thoughts and prayers, many hugs for you.
OH Amy! I know that the time of the year might make things more difficult but just try and get to someone reliable and be sure to take care of you. Sure wish God had a little less faith in us and stop giving us things he thinks we can handle. Hang in there!
You are so in my prayers Amy.
Amy dear you know you have lots more prayers and healing thoughts headed your way. I hope they figure it out soon! Huge hugs and get better fast!
Thanks evryone for the hugs and prayers. i appreciate it. Thankyou so much !
I have to admit i was abit embarrass at first and reluctant to ak for prayers seeing how um..how many prayer requests have i had in the past year, but i am a strong beliver in prayer and faith. it got me thru this far !
I just can't belive this is happening gain. I am more fustrated then anything. I was doing so well after i had the cyst remove on my spine earlier this year. I was able to walk again without pain, the numbness seemed to be gone. I attended faire every weekend this summer. I went on a long vacation in october with my family. Everything was going good. Then this just hit me out of the blue.
So the cyst may have ben causing part of the problems, but apparently there is some other underlying factor going on with me too.
Now to just figure out what.
It is also fustrating, cause this sems to have been going on forever. This first all started 4 and half years almost five years ago. I was still living in California and my son was only 3 months old. I remember waking up one morning and i literally could not see at all. Luckily i regained my vision back, although i still get some blurinness at times. But it was after that , that i started with the numbness in my hands, feet and face. There were times when i could not even walk or talk. I saw several differnt doctors in California. they all threw out different diagnoses at me, and seemed to be very willing to put me on any pain meds they could find. My condition just got worse.
Then i moved back here to New York. for the first 6 months my symptoms were gone. I thought maybe it was something in california i had came in contact with, but then they started all up again. Some of you may recall three christmas's ago when my son who was two at the time, found me past out cold in the living room.
and from there i started seing a neurologist here, went for cat-scans, mri's, nerve conduct tests, had spinal taps done, .
Then they thought I had MS and sent me to a specialist. It was there that i was told i had the cyst on my spine. and then this past spring i had it removed and evrything seemd to be going good.
So now it is starting all over again. There has to be some reason why i had a seizure and why my hands still have tremors in them, and why my face keeps going numb.
So i am hanging in there ! Just angry and fustrated more then anything. Thanks gain for the hugs and well wishes. They are really appreciated !
thanks everyone for well wishes.
LOL, Lord W..you better not be putting in a new bar on my ship !
Yes, Lady Glorianna, i do agree it feels like God tests us to the brink sometimes ! But i am still keeping the faith.
Hugs and love to all of you !
LOL! Don't worry Amy,the bar on our ship is still in tact.I'm glad I was able to make you laugh and smile.It makes me feel good when I can bring a smile to the face of someone in need.Continue to hang in there and take care of yourself,I am confident that the doctors will find out what is causing all this to happen.
Lady Amy, my thoughts of strength and healing and are with you.
{{hugs}}
Please keep us posted, and by all means keep your sense of humor about you...
...we do have fire dancers to wrangle, and mead to sip while we watch...important business for sure ;) ;D
Ah... My Lady Amy, forgive my silence here. I now have a new keyboard, which does not drip water from various places, and may type as I see fit!
I hope you are holding tight to your faith in the Universe to offer it's healing energy to those of us in need of it, as well as your stubborn resolve to fight the thing which ails you at this moment! My heart reaches out to you in your hour of need, and I offer you all the love and support you have showered on me in my need, back to you, with my own sent along as well! Keep your faith and your family/fairmily close, and resist despair. If your strength fails you, borrow ours, and if your fears attack, I leave you my dagger to fight it back! Fear is a cowardly thing, and cannot withstand the light of love... or a sharp and pointy Turkish dagger!
Care for yourself, and allow others to care for you as well, and insist on the thorough diagnosis and treatment you are entitled to receive!
Never give up, never give in!!!
Oh... and when you feel up to it again, your place by the Fire is assured in perpetuity!
Thanks Rani. I am deffinitely keeping the faith up and holding my spirits up. I have learned that i can't let it get the best of me. I have to fight and think positive. Plus i have alot to live for .
Right now it is snowing hard out. Looks so pretty out. it helps lift my spirits, but if it snows too much i may need that seat by the fire you were talking about to warm up !
Oh, I love the snow... especially when it comes down in big soft clouds of flakes that twirl and float on the wind...
I'll keep extra logs on the fire just for you, my dear!
Hang in there Lady Amy!! I have your back.
I emailed you. You may need to come to my neck of the woods so the Dopctors at the Mayo Clinic can examine you thoroughly and get to the bottom of the troubles you have been having for several years now. I can come and be with you.
Rani!! Stay strong!!! You can beat this bug!!!!
Hugs to both of you!!!
Thankyou for the prayers. I have some limited use of my hands back, but i still get tremors and twitches in them and my face. The morning that it happen, Wednesday, I was sound aslep. I started shaking all over in my sllep. it woke my husband Tim up, who then woke me. it felt like my head was going to explode, my right hand and arm would not stop shaking, my left arm and hand were numb, my face was going numb, and i kept feling like i wanted to vomit.
Tim called 911 and the parmedics rushed me to the hospital, wjere i would not stop shaking. My blood pressure was 195/120, which was unusally high for me. I know they tested my blodd sugar . i cant remember the number but they said the levels were fine. My pulse was very fast. Over 100.
So they did a cat-scan, urine test, blood test. They gave me Vicoden, tramadol, and flexeril for the headache, and Valium for the tremors thru IV in the emergency room.
The doctor said the cat scan showed no brain abnormalities, but yet i displayed the classic signs of amild seizure. No explanation to what may have caused it. he sent me home with presriptions for vicodin, tramadol, and Valium, until i get in to see some one.
I don't want to go back to the neurolgist i was seeing locally here, cause he was the one who neglected to tell me about the cyst on my spine. it was there on all of my films i had taken, but he never told me.
So i am looking for someone else to go to.
We are thinking of looking into going to an infectious disease doctor. The only reason being because when i was in the emrgency room, i also had broke out in a rash on my back . The emrgency room doctor in the hospital saw the rash on my back . The emrgency room doctor said it is some type of fungus infection. he said they use to treat it with anitbiotics, but have found that patients can build up an resitance to antibotics.
So Tim went on the internet and found out that fungus can attack your central nervous system and cause the symptoms i had the other day.
So anyway, that is the latest scope here. i am trying to stay strong for everyone and keep my spirits up. More fustrating then anything cause i was doing so well. I know i could be much worse off, but i am not lloking forward to going thru tests again, and being put back on meds, etc.
right now i am trying to be strong and enjoy the holidays. Can't believe christmas is almost here ! Tim has been real helpful and is helping me get the decorations up. We were going to go down to mom and dad's for christmas, but things did not turn out according to plan. We found someone to take care of the horses, but unfortunately the kennels are all booked up. I was not about to bring 3 dogs down to my parents, especially since one is still a puppy !
Plus one of my dogs, my yellow lab is dealing with health problems herself, so we were hesitant to leave her. So we will be here for Christmas.
As it is we can't get out of the house right now. We have atleast 2 feet of snow on the ground and more is on the way, Thanks to lake effect snow ! We live very close to Lake Ontario here in New York!
You know it is funny that both me and my yellow lab have similar health problems. she is having problems with her balance and gets tremors i her face. the vet put her on Predisone which seems to be helping her. But it make me wonder at times if she and i came in contact with something in our house we live in in California. That house was a fixer upper, and it was really dirty , and filthy, Tim and i did alot of cleaning before we moved in. We brought it for the property, and we got it for a steal, but i sometimes wonderif we came in contact with something.
Anyway, thankyou everyone for the prayers and support. right now i am taking it one day at a time. i can feel find one hour and then the next hour, out of the blue, the tremors start, or i get the numbness and the headches. Knock on wood it has not affected my legs too bad. there is some weakness but ima still able to get up and walk about.
yesterday Tim took me for a ride in the car, and we saw the Christmas tree in the city square all li up. then it started to snow. it was real pretty.
So as i said i am trying to stay strong, and fight all the way. Easier said then done, especially since i thought this was all behind me. :( But I have christmas with my husband and liitle boy to look forward too ! :)
tAKE CARE,
LOve, Amy
Amy,
Wishing you the best in finding out what's going on, and finding a way to feeling better!
Don't discount the possibilty of exposure to something that is causing these problems for you both.
M'lady,
Praying for you in my dailys, and hoping you are feeling better.
Cheers!
Lady Amy - just said a prayer for you. Hope that you feel better soon and find the culprit behind your trouble. Take care and God Bless! :)
Lady Amy if you can try and see some of the doctors at the Mayo in MN, they are the best around. Still praying for you may you feel better soon!
Thanks everyone ! I appreciate it. Today is a so-so day ! My face really has the tremors today, and so does my left hand.
I know there are people worse off then me, but i just want an answer to what is causing all of this. I don't like the idea that i had a mild seizure last week and don't know what caused it.
Yes, Lady Serena, i may look into The Mayo clinic. They helped my mom who has chron's disease many, many years ago when her family doctors could not find what was wrong with her. Her family doctors told her she had one month to live. That was 30 years ago. She is a strong lady today, and is my strength and inspiration !
Blessings, Lady Amy, and prayers for comfort and knowledge, also!
Continued thoughts of strength and healing to you Lady Amy, and to your canine friend as well...
{{HUGS}}
...and another testimonial for the Dr.s and support staff at Mayo - although I only had experiences with the Jacksonville, FL branch - they are phenominal! They took excellent care of my mom pre- and post-lung transplant. You really couldn't put yourself in better hands, IMO.
Hoping you find the peace, comfort, and health you deserve SOON :)
Quote from: Tygrkat33 on December 08, 2008, 11:26:01 AM
Continued thoughts of strength and healing to you Lady Amy, and to your canine friend as well...
{{HUGS}}
...and another testimonial for the Dr.s and support staff at Mayo - although I only had experiences with the Jacksonville, FL branch - they are phenominal! They took excellent care of my mom pre- and post-lung transplant. You really couldn't put yourself in better hands, IMO.
Hoping you find the peace, comfort, and health you deserve SOON :)
Thanks hon. Doing a little better this afternoon. face still numb, but atleast hands are co-operating enough so that i can come on here and chat with my friends. It is funny how the symptoms come and go, i never know when they are going to strike.
Hugs to you !
Amy it is truly breaking my heart to see you in this condition especially right around Christmas Time.I do hope that you find the answers you are looking for soon.You are still in my thoughts and prayers as well dear sister.By the way Captain I thought I was the good child so why is all this conspiring going on against me on the ship.I promise I was behaving like a good man should. ;D ;D ;D
Quote from: lordwriothsley on December 08, 2008, 02:57:29 PM
Amy it is truly breaking my heart to see you in this condition especially right around Christmas Time.I do hope that you find the answers you are looking for soon.You are still in my thoughts and prayers as well dear sister.By the way Captain I thought I was the good child so why is all this conspiring going on against me on the ship.I promise I was behaving like a good man should. ;D ;D ;D
Thank you dear. I'm trying to keep my spirits up ! Thats why i come here to be among my friends and crew who help cheer me up. Yes, i hope i get some answers soon to what is causing this.
Plotting gainst you. Nah ! Drac, James and i were just having fun stealing the rum from the bar. Just Trying to make me laugh.
Besides if you read back abit in our story, you will see that your sister and captain, sent you on a nice romantic carraige ride witha certain Rebecca .
as far as you being the good child....( choke, choke ) I um.......nevermind.... ;D
Well i need to log off as my hands are starting to numb up on me abit. Thanks for the hugs and prayers dear brother.
Oh Amy,
I'm sorry I've been off the boards lately, had some major health problems of my own going on...but you know that you are always in my thoughts and prayers no matter how long I stay away from here. Sending some major good thoughts and healing prayers your way!
Amy my dear sister any time you need my love hugs or support they will be here for you.And yes I did see where you did send me on a romantic carriage ride with a (as you like to call it) certain Rebecca and I must say that I did like that.Anyway please do continue to take care of yourself and do continue to keep us updated on your progress and we are all pulling for you through this.
I only wish there was something I could say to help or to make this issue better for you. I suppose all I can do is let you know that you are in my thoughts and that i do pray you will become well, fully well, again soon!
Thankyou Elemental Air.
! Mentally I am trying not to think about, and trying to focus on Christmas and doing things with my little boy. easier said then done. Emotionally, i am fustrated and angry, but I am determined to not let it get me down, or spoil my Christmas.
Physically is another story. I am very uncomfortable. The tremors and shakes are back strong today.
But i know it could always be worse. I can still see, i can still talk, i can still walk. some people don't have it as well. So when i get really fustrated , i sit and count my blessings and it helps.
Oh and before i forget, i love your avatar photo. Very pretty photo !
I need to change mind, and get a better photo of me, although i do like the photo of me with my husband and son, but it does not show up very clear.
Lord W thanks for making me smile , brother !
Deborah, sister ! So good to hear from you. I have been worried about you. i have emailed you a few times. I would call you, but i can't find what i did with your number. Things have a way of disappearing from my computer desk drawer.
Well my tremors are getting the best of me right now, so i nedd to stop typing for now. Love and hugs everyone.
Oh my dear, I do not even know what to say. My prayers are with you. Write me if I can do anything for you.
Until then .. many hugs from me. You're strong and I am so sorry you need to go trough all of this.
Hugs
Amy, my friend, I am so sorry you are having to face this all over again, but I am so glad that you have your wonderful, loving husband, and you beautiful little boy to support and bolster you.
I'm sending comforting thoughts like warm fleece wrapped around your toes when they're cold, loving care like a gentle massage for when you're tired and in pain, and a steadying hand for when you need someone to lean on!
I will also instruct Lord W, our Keeper of the Flame, to stoke the fire so you are warm and toasty, and I have laid in a generous supply of Special Reserve cocoa, not too terribly sweet, until you are ready once again for the meade!
Focus on taking care of yourself, dear, and let your friends and family help, but mostly remember to open yourself every day to the healing energy we're all sending you! I'm praying for you, my friend!
Quote from: luciana on December 09, 2008, 05:34:06 PM
Oh my dear, I do not even know what to say. My prayers are with you. Write me if I can do anything for you.
Until then .. many hugs from me. You're strong and I am so sorry you need to go trough all of this.
Hugs
It does seem that the strong ones have more tests of that strength than others, doesn't it? Perhaps that is what makes us so strong, or perhaps it is simply what
keeps us strong...
Happy Sunday. I'm hanging in there. Still getting numbness in my hands and feet , and twitching , and some numbness in my face. My vision is blurry and i can tell my balance is off a bit but i am hanging in there. I have been focusing on spending time with my son, and trying to enjoy the holiday season.
My husband and parents surprised me by finding a place by my parents for our dogs to stay at. and we got some one to take care of the horses, so we will be going to my parents for Christmas. First time in 10 years. So i am looking forward to that. We will be driving . Praying for good weather.
I see my family doctor tomorrow. See what he has to say.
I'm so glad you're not going to miss this trip, Amy!!! I know you were looking forward to it, and it will be special if for no other reason than that it's been so long! I'm sure it will be one to remember, and you will have a wonderful time!!!
I am sending you all my strength and prayers right now, my friend, and wishing you the happiest of Holidays! Make sure you take lots of pics, and post some for us, ok??? Take care of yourself, Amy... I'll be thinking of you!
We'll be hoping and praying, Amy!
((hugs))
Quote from: Rani Zemirah on December 14, 2008, 06:47:49 PM
I'm so glad you're not going to miss this trip, Amy!!! I know you were looking forward to it, and it will be special if for no other reason than that it's been so long! I'm sure it will be one to remember, and you will have a wonderful time!!!
I am sending you all my strength and prayers right now, my friend, and wishing you the happiest of Holidays! Make sure you take lots of pics, and post some for us, ok??? Take care of yourself, Amy... I'll be thinking of you!
Yea, i'm excited. when we were living In california, we could not afford to fly back, and then i got sick and could not do it there for the last couple of years, so I am thrilled to be able to this year. gthe last time i saw some of my nieces and newphes they were just young teenagers. Now some of them are married with young babies of their own. Oh yes, i will take plenty of pictures, cause my dad really goes all out with the decorations. my oarenst have a big old two story white colonial, and it looks like something out of a Dicken's christmas at Christmas. they have wreaths in the windows, and red bows and candles.
So i can't wait. and with eveyrthing going on with my health again, and one of my dogs i just needed to be with family ( not that my husband and son are not family ) this year. So now it just btter not snow , so we can get there. Now if it wants to snow once we get there that is fine, cause then i can stay and vist longer.
hugs and love to evryone. Happy holidays !
Amy I am so happy for you that you and your husband and son will finally be able to go to your parents for Christmas this year.I know that that was something that you had been looking forward to for quite some time now and it finally here.Yay for you! ;D ;D ;D Please do still continue to take care of yourself and know that you are still in my thoughts and prayers dear sister.See ya on the ship.
Thankyou dear bro. Yes, i continue to take care of myself. i see my family doctor today matter of fact, we shall see what he has to say. I just want some answers to what is going on with me gain, althoughi think it may take more then just going to the family doctor. Time will tell. But yes, atleast i have going home for the holidays to look forward too. Yay ! :)
Amy dear sister just know that I will always be here for you whenever you need and know I am pulling for you every step of the way.May you and yours have a Blessed and Happy Holiday Season and May God Bless you all.
I saw my family doctor and he thought my problem was due to some underline neurlogical condition. So in otherwords, still no answer to what the cause is, but i managing to put up with the symptoms. I still get the twitching and some numbness but , Things could always be alot worse . I can see, i can talk, i can walk, I'm alive, so i can't complain. I count my blessings. I have learn to do that over the last few years. I think after all i been thru health wise the last few years has made me a stronger person, and i don't let the liitle things get to me ( well most of the time. ) I have learn to roll with the punches most of the time. There are times, when i say what next ?
Thanks everyone for the hugs and prayers. Have a wonderful holiday everyone ! :)
You are in my thoughts and prayers every day, Amy. I'm praying as hard as I can that you'll find a specialist soon who can tell you exactly what the problem is, and what you'll need to do to fix it!
May your Holidays be truly blessed in every way, and may the be filled with love and laughter, family and friends!!!
HUGS!!!
Amy sweet sister there is a never a day that goes by that you are not in my thoughts and prayers especially with all that is going on with you and your health right now.Just like Rani I to am praying as hard as I can that you will find the answers that you have been looking for all this time so that you can do what needs to be done to get better again.May you and your family have a blessed and happy holiday season.