RenaissanceFestival.com Forums

Candles for Prayer => Candles for Prayer => Topic started by: Celtic Lady on January 02, 2009, 06:46:19 PM

Title: Positive power/prayers
Post by: Celtic Lady on January 02, 2009, 06:46:19 PM
I received a phone call from my doctor this morning regarding an MRI that I had on New Year's Eve. They found a small (9 mm) spot on my brain. My doctor has me scheduled with a neurologist on Thursday.
For about the past 3 or 4 weeks I've had a tingling numbness in my right hand and arm. My arm has been getting weaker and I'm starting to lose some use in it. I've been quite tired as well.
My sister has MS and it's been known to hit siblings. I researched the symptoms that were list on WebMD for MS. Alot of mine match the list that they have.
I've been quite frustrated due to my right hand and arm being affected... naturally I'm right handed. Things that I took for granted/never thought about are very hard to do now. I think the the one of the worst things for me was not knowing for sure if there was something wrong. Now we just have to find out what and go from there.
Anyway, thank you for letting me ramble and for your thoughts and prayers/positive powers.
Title: Re: Positive power/prayers
Post by: MacLaren on January 02, 2009, 08:19:23 PM
Candles are lit for you. I hope there's nothing serious going on. But if there is, I hope all is taken care of in very short order.
Title: Re: Positive power/prayers
Post by: Lady Amy of York on January 03, 2009, 12:15:54 AM
My dear lady, my heart goes out to you. :'( :'( I have been in the same exact situation. I  suffered from numbness and tingling and pain in my arms , and hands and legs  for almost three years.  I saw a neurlogist who did serveral diiferent nerve tests on me  and MRI's etc.    They found a couplevery, very small spots on one MRI scan, but said it was nothing conclusive, and continued to monitor  me, and hand me pain meds as if i was some guinea pig.   My symptoms  only got worse.   
I have a cousin with MS  and i started to recognise   some of the symptoms i was experiencing.  I ended up going to a special  MS  clinic  in Rochester, New York.   It was probably the best  move I  could have made.  The neurologist i saw there had MS himself, and he was very compassionate  and  understanding. He orderd  some more MRI    scans  done  along with some  cat scans   and it ended up  showing a tumor on my spine . I had it removed this past spring,and the terrible  pain is  gone ( knock on wood ) although i still suffer from some numbness and tingling, which makes me think there is still something going on.
     

  I have had just about every test  there is  for MS, so if you have any questions or just want to talk feel free to renmail me  hon  anytime.  I know what you are going thru, the uncertainity can drive you crazy.
     

I recccomend a couple  things :
                  -ask for copies of  your MRI  films
                  - did you have a closed  MRI or open MRI. FOR  EVERYONE WHO EVER HAS  TO HAVE A MRI DONE, I HAVE LEARNED FROM EXPERIENCE THAT  CLOSED MRI'S ARE MUCH BETTER THEN OPEN MRI'S. THEY GIVE A MUCH BETTER PICTURE.   mOST DOCTORS  DO NOT LIKE THE QUALITY THAT OPEN MRI'S  GIVE.
                   --  also   ask for a contrast MRI. they also show much more detail.

                    -find  a neurologist who knows what he is  doing. i have learned that there are good neurologists  and  bad  neurolgists.

                      -If they want to do a spnal tap, make sure it is someone who knows what they are doing, and ask that it be a guided  spinal tap.  This means that they use what looks  like a  cat scan machine  to detect  the right spot  in you spine.   I  say this becuse i have had three   spinal taps   done. The    first one  was unguided and went okay, but   The second  one  again was unguided, and  i ended up leaking spinal fluid  and was in alot of discomfort.  The third one was guided  and   went very smoothly.

Not trying  to scare you, just trying  to help you, and keep you from going what i went thru.

Hugs and best of luck  to you.  Keep us  posted !



                   Your neurlogist will probably  want to do a nerve evoke  test. it is not as bad  as it sounds, and is pretty accurate on  detecting   MS.


Hugs and love- Amy
Title: Re: Positive power/prayers
Post by: lordwriothsley on January 03, 2009, 09:34:49 AM
Celtic Lady I am sorry to hear about this.Boy what a way to start the new year huh. :( I will send you lots of love,hugs and prayers and also pray that nothing serious is detected and if something serious is detected then I hope that they can take care of it in a timely and painless manor.

Hugs and Love to you dear lady.
Title: Re: Positive power/prayers
Post by: Celtic Lady on January 03, 2009, 04:58:18 PM
Thank you all so much.
I've been trying to keep a positive attitude about all of this. Sometimes it's hard and the one I complain/cry to is taking it harder than me. Sir Morgan (my fiance') sometimes looks to the negative in situations where I look to the more positive. Funny how that is. When the doctor first called to tell me that they saw something on the MRI my first thought was "oh good I have a brain". I told Morgan what was said and he voiced my thought after a bit to lighten the mood but it was he that needed the light humor. He worries so about it. I'm worried, too, but realize that there's nothing I/we can do until we see the specialist(s). For now the only hands that I can put my "problem" in are God's (or whatever you call the Higher Power).

Lady Amy, thank you for the suggestions. I will definitely keep them in mind when meeting with the doctors. As for my MRI it was a open one. I did have the contrast MRI. At first I wasn't going to have it as I'm allergic to iv iodine dye but when the tech explained that they don't use iodine dye for this I agreed to have it done.
I'm so glad that they were able to find your trouble and remove it. I pray that you stay free and clear of it.

I will keep everyone posted... even if it's just to vent or cry a little.
Thanks again.
Title: Re: Positive power/prayers
Post by: Lady Amy of York on January 03, 2009, 05:05:58 PM
Hang in there  hon.  keeping an positive  attitude and  your  faith and  sense of  the humor is   the best thing you can  do.
  Also you may want to pick up    any of  the books  by " Montel Williams  ."   He has suffered  from MS  for several years now, and  has worked  with doctors   to help others  going thru similar situations.   I  found his books  very interesting  and   resourceful.
  And  vent  and  cry all you want  to  !
                 Hugs--Amy
                     
           
Title: Re: Positive power/prayers
Post by: Tygrkat on January 03, 2009, 09:54:57 PM
Keeping you in my thoughts...{{Hugs}}
Title: Re: Positive power/prayers
Post by: Fairyfly on January 05, 2009, 09:48:48 AM
You are definitely in my thoughts hun! I'm so glad there are people like Lady Amy who can offer you some suggestions. It's great that you are keeping a good attitude, and humor is one of the best medicines! Nice when we can get confirmation that we do in fact have a brain in there. Lol Especially in times when you feel that you must have lost it somewhere along the way.

Keep your chin up hun. *HUG*
Title: Re: Positive power/prayers
Post by: Celtic Lady on January 08, 2009, 11:28:44 PM
Well I had my appointment today with the neurologist. It was the standard "new patient check". Asked lots of questions, did a few tests (non-lab ones), and talked about what the next step was. He ordered a cervical MRI with contrast for me and talked about doing a spinal tap... the flouroscopically guided kind.

He says that the spot on my brain the the first MRI found has nothing to do with my hand/arm numbness and tingling and weakness. I already figured that.... learned in biology that the right brain controls the left body and the left brain controls the right body. He thinks we may be dealing with possibly two problems   :( .

Well that's all for now. Next Thursday is the cervical MRI and then I have to wait until February 4th to see him again. When I go in for the MRI I will be asking for a copy of both sets of MRI "films".
Title: Re: Positive power/prayers
Post by: Fairyfly on January 09, 2009, 09:00:14 AM
I'm glad to hear you're getting somewhere at least. Even though it might be two problems, it's better to have someone who's willing to address them and get you feeling better.

You'll continue to be in my thoughts hun! *HUGS*
Title: Re: Positive power/prayers
Post by: Nyneve on January 09, 2009, 12:11:55 PM
I very strongly suggest finding a neurologist who specializes in MS

As Lady Amy indicates: "there are good neurologists and there are bad neurologists"... but to also ADD to that:  There are good neurologists that specialize in MS. 

Speaking from experience - my husband was diagnosed with MS last year.  When his symptoms began, we were seeing an excellent, highly regarded neurologist.  When the diagnosis of MS was made, by coinsidence we found that he had much less knowledge of how to treat the disease than a neurologist with a specialty in MS.  In fact, the treatments he recommended and described to us did not even include one of the most recent medications, which is what my husband has ended up taking (with brilliant results).  We were fortunate enough to know somebody who referred us to The Mellen (MS Research and Treatment) Center here in Cleveland. 

Although his first neurologist was world class, there was truly a WORLD of difference between his knowledge and the knowledge of his current neurologist who specializes in MS.   
Title: Re: Positive power/prayers
Post by: RenRobin on January 09, 2009, 12:52:54 PM
You are in my prayers.
Title: Re: Positive power/prayers
Post by: lordwriothsley on January 09, 2009, 02:27:31 PM
Celtic Lady I'm so glad to hear that you are getting somewhere with this.Even though we are dealing with two problems here I am confident that the doctors will find a way to treat you and cure you so you will be back to normal.You still continue to be in my thoughts and prayers Hun.

Hugs to you!
Title: Re: Positive power/prayers
Post by: Celtic Lady on January 15, 2009, 08:50:24 PM
I had my second MRI this morning. This after noon my neurologist called and told me that he received the results and they found an active lesion on my spinal cord in my neck. He talked with a colleague of his that specializes in MS and they both felt that I needed to have my spinal tap now. It was orginally scheduled for Tuesday (Sir Morgan was going to be home for me then) but due to the new findings it's been moved to tomorrow morning. Then after that I'll be starting my treatments. I don't know much more than that. Will let everyone know more as I find out.
Title: Re: Positive power/prayers
Post by: Nyneve on January 16, 2009, 11:49:10 AM
Luck to you - you are in my thoughts...
Title: Re: Positive power/prayers
Post by: Fairyfly on January 16, 2009, 12:29:23 PM
I hope all goes well for you today! You continue to be in my thoughts! *hug*
Title: Re: Positive power/prayers
Post by: RenRobin on January 16, 2009, 12:41:58 PM
Wishing postive thought for you and saying many prayers for healing and understanding.
Title: Re: Positive power/prayers
Post by: Peddlin on January 16, 2009, 01:36:04 PM
Our thoughts and prayers are with you.
Title: Re: Positive power/prayers
Post by: Lady Amy of York on January 16, 2009, 02:38:59 PM
OH hon,  having  been there myself ( i have  had three spinal taps  )     I will keep you in  my thoughts.    The  most important thing is  too lay  flat afterwards  , and  drink  lots  of decaffeinated  beverages.     This  will prevent the terrible  headaches  you can  get.  although i was  lucky, i only  got    a  real  bad headache  with  one  of my taps, and  that is because e i did  not lay down flat afterwards.

  A lesion on your  spinal cord.  did  they  say what kind  of lesion  ?  I am just asking cause that is  exactly what happen  to  me.   They  found  a lesion on my upper spinal cord.   The  doctor  who specializes  in MS  that i was  seeing  spotted  it  on  my Catscan,   and   then  refferred  me  to an  Thoracic  surgeon.  and   My lesion  ended up being a noncancerous  tumor   that  they were able  to remove   this  past spring.  So  maybe  yours  is  not MS  and is   a  noncancerous  tumor  or  cyst .

wishing  you the  best !  Love  and  hugs  !
Title: Re: Positive power/prayers
Post by: Celtic Lady on January 16, 2009, 06:35:04 PM
Thank you all so much. The spinal tap went well and right after it I was told to go to my neurologists office when they were done with me/i was ok'd to leave. I did and the neurologist wanted to start treatments right away. I am having a totall of 3 treatments... today, Saturday, & Sunday. After that then we wait until Feb. 4th when I see him with the results of the tap.

I've been laying flat pretty much all day. They gave me a list of things to do if a headache should start. one of them was to caffeinated drinks as this helps to narrow the blood vessels.

Sir Morgan was still upset that he couldn't be here for me. I made him realize that the sooner we get this done the sooner we get the results and that the sooner we get the results the sooner we can start treatments for the long haul. The treatments that I'm getting this weekend are just for treating the symptoms. He wanted to know everything so he called my neurologist to get answers. Of course they couldn't give them to him as he doesn't have permission to get them... that's gonna change though.

Anyway... that's what I know for now. Will keep you posted on future happenings.
Title: Re: Positive power/prayers
Post by: Fairyfly on January 16, 2009, 06:57:49 PM
I'm glad to hear things went well today! You and Sir Morgan will continue to be in my thoughts hun! *HUGS*
Title: Re: Positive power/prayers
Post by: lordwriothsley on January 19, 2009, 09:31:01 PM
Hunny I'm so glad that the Spinal Tap went well for you the other day.Just remember to continue to do what the doctor tells you and before you know you will be back to your old self again. :)  ;) You and Sir Morgan will continue to be in my thoughts and prayers.
Hugs to you!
Title: Re: Positive power/prayers
Post by: Celtic Lady on February 01, 2009, 05:22:27 PM
It's been awhile since I've checked in. Not too much has changed since the spinal tap and the treatments. I have been able to raise my arm up without it feeling heavy and wanting to flop down and I haven't been as tired. Friday night I started having a bit of tingling in my fingers on the left hand  :( . It hasn't gotten any worse than that but it's still there. Thank God I see the neurologist on Wednesday. Anway, that's about it. I'm just taking one day at a time  :) .
Title: Re: Positive power/prayers
Post by: Rani Zemirah on February 01, 2009, 07:31:47 PM
Oh, my dear, I'm so sorry I'm late on this thread! I had no idea any of this was happening with you, and I admire you courage and ability to go on as though everything was normal in all of the other threads you post in! You are an inspiration to this one who seeks it in all possible places!

I will be sending you prayers of healing and thought's of loving support during your trials and treatments, and everyday, just because it can never hurt! You have such a wonderful attitude, and looking to the positive will help more than many things! Blessings to you and yours, gracious Lady!!!
Title: Re: Positive power/prayers
Post by: lordwriothsley on February 02, 2009, 02:12:55 PM
That was very nicely said Rani. I totally agree with everything you said and I will even second you on it as well.
Title: Re: Positive power/prayers
Post by: Celtic Lady on February 04, 2009, 07:08:55 PM
Today was the visit with the neurologist today to get the results of the spinal tap. He told me that the tap revealed that the levels of certain indicators in the spinal fluid (I can't remember what he said they were) were quite elevated. He said that alone they could indicate a number of different problems but since there were symptoms and other test results, all of them combined point at MS. We talked briefly about some theories on why it happened, what to expect throughout my life with it, and different treatments. He also told me that he was going to be leaving the practice and that his colleague who specializes in MS would be my new neurologist. Sooooo.... tomorrow I will be picking up a bunch of info on four of the treatments that are offered and when I meet with the new doctor on the 16th we will decide which treatment I will be starting.

Other than all that I'm doing better. My left hand still has some tingly numbness in the pinky and surrounding area of the hand and the right is still pretty much completely numb/tingling. I'm learning to cope with with it while i'm typing and writing... it's not too bad but my hand and forearm do get tired at times. There are times where i get angry because I can't feel things that I'm trying to get out of my purse or I can't get out of the seatbelt because I can't feel the button or have the strength to push it. Sometimes while getting dressed I get angry (esp. when I'm in a hurry) and scream.... simply because I can't feel things. I get over it.... eventually.....lol. Anyway, I'm doing ok right now.
Title: Re: Positive power/prayers
Post by: Lady Amy of York on February 04, 2009, 10:13:15 PM
OH hon, I'm so sorry.  But if  there is  any  goodness out of  this, it is  that  you  finally know  what is   going on, and  what is  causing  it.   I know  from my own research on MS, , that there are alot of new  and  promising  treatments  out  there.    You are in  my  thoughts  and  prayers.
        Ah, yes  the numbness  and  tingling. I can relate  very well to that.  It is okay to scream.  There are days, when i get up in the morning  and  the  numbness hit  me and I just feel like screaming .   So anytime  you have  a bad day just renmail me  and  we can scream  and  vent  together  hon  !     
  And  don't hesitate  to ever ask  for help   when the  numbness gets  bad. 
    Hugs  and  love  to  you  !
Title: Re: Positive power/prayers
Post by: lordwriothsley on February 05, 2009, 09:50:49 AM
Sweetheart like Amy just said I to am glad that you were finally able to find out what is wrong with you. Even though I have never experienced what you are going through right now I can only imagine what the tingling and numbness must feel like right now. However I am glad that you are learning to cope with it. I know it gets frustrating at times but at least you know that you have some well trained doctors out there who know will take good care of you and send you on the right path on your road to recovery.

You still continue to be in my thoughts and prayers sweetie.

Hugs to you!  :)
Title: Re: Positive power/prayers
Post by: Celtic Lady on February 05, 2009, 07:22:19 PM
The best way to describe the tingly numbness is the way your hand feels after it has gone to sleep for some time. Not only does it feel odd and but you don't have too much control (in the case of the hand falling asleep) of fine motor movements. I don't have the pain that accompanies sleeping hands, though.

Today, I picked up four books from the neurologist. They contain info regarding MS and the different kinds of treatments of it and what to expect of them (good and bad). I have lots of studying to do before the 16th.
Title: Re: Positive power/prayers
Post by: Rani Zemirah on February 05, 2009, 08:25:18 PM
I am so sorry to her this news, my dear, but I'm so glad you're being so proactive in pursuing your treatment and care! I am sending all the healing energy I possess to you, and loving thoughts and prayers for comfort and positive outlook! Take care, and take time to adjust to changing circumstances... We're all here for you!
Title: Re: Positive power/prayers
Post by: Seryn on February 13, 2009, 07:10:07 PM
Oh dear, I'm so sorry you are having to deal with this.  You seem to be handling it so much better than some would be, though.  I will be thinking of you and praying for you and hoping things will get better as you continue your treatment.
Title: Re: Positive power/prayers
Post by: Celtic Lady on February 16, 2009, 06:46:30 PM
Hey all. Today was my day to see the neurologist about my medication treatments. There were 4 different ones that I was to read about and decide which one was right for me. There were two that I was considering. I chose the same one that my sister is using. It's a daily subcutaneous injection that I will give myself. The other was once a week but it goes IM (intramuscular). I'm not up for that. Anyway, I have to wait until I hear from the phamacy rep as to when and how and where I will be getting my meds. I wish they'd call soon. After that I get to go in and get trained by my doctor's nurse on self injections. About a month later I go to see him again to see how I'm doing. From that point I'll be seeing him every 3 months. yippee  ::) .

O yeah... almost forgot. He wants me to go for a sleep study. That seems to be pretty standard when ever something is going on with a person. Not sure what that has to do with certain conditions but that's what they seem to keep pushing.
Title: Re: Positive power/prayers
Post by: Lady Amy of York on February 16, 2009, 11:15:33 PM
Hello girlfriend. How are you feeling ?  I read your last post . I wish you luck with your meds and pray that they bring you needed relief and  comfort.
   In regards to your sleep study are they asking you to have a sleep study to test for sleep apnea, or a sleep study to test for  neurological symptoms?
  I ask cause they did the same thing with me. 
      The sleep apnea test was a pain in the butt  atleast for me, cause  they decided to  conduct it four hours after i had given birth to my son. Great timing huh ! I was uncomfortable, still in pain from having C-section and  the last thing i wanted  was them running some  tests on me . LOL ! But overall what  they do is strapped some different wires and stuff on to you, and then they monitor you while you sleep for three hours.
          The sleep test fo the neurological study was not bad at all.  I went in this small room. There was  a nice bed  and  a  TV.  They strapped some wires to my head  and i think there were some on my legs too. Can't remember.  And first they monitored my brainwave function, while i watched tv.   Then they monitored me while they flashed different images on the tv screen, and then different sounds.     And then they had me close my eyes  and  try to sleep.  They monitored me  for about a half hour .
  Basicially they were  watching how my brain waves function and  trying to see if there was any abnormalties  they could  detect. They use this type of test to help diagnose or  rule  out different diseases that can affect your brain wave function .
    Hope this info helps. Good luck to you.                 

 
Title: Re: Positive power/prayers
Post by: lordwriothsley on February 17, 2009, 11:50:09 AM
As always you continue to be in my thoughts and prayers m'lady.
Title: Re: Positive power/prayers
Post by: Seryn on February 20, 2009, 01:29:25 PM
Keeping you in my thoughts and prayers.
Title: Re: Positive power/prayers
Post by: Celtic Lady on February 23, 2009, 09:14:34 PM
Well this weekend was a difficult one for me. Friday at work the right side of my face started to droop and look swollen with my right eye only opening halfway at the most. I had a call from the medical company that is helping/supplying me with my medical supplies/help. They were confirming that I got my self injector for my daily shots. As of Friday I had not received it and was concerned because they said that it had been signed for. They said that they would send another to my work. Saturday was no better. I had to work until noon and was very tired despite getting about 8 hours of sleep. Sunday found me tired and sleeping most of the day. When I was up my speech was slow and somewhat slurred.
This morning when I woke there was no improvement so I called work to let them know that I would not be there because I was having a relapse. I called my neurologist's nurse to see what I should do because of all that was happening to me. She checked with the doctor and he said that I needed to start the three IV treatments again. After getting home today we found found out who signed for my injector and now I have it  :D . The pharmacy called to let me know that my meds will be ready tomorrow after noon and that I have a great co-pay as they cost almost $3000 for a 30-day supply :o .
Tonight is ending better than the day started. Already I'm feeling better  :D . Tomorrow I'll be back to work but will be taking some time off to go take my treatment and hopefully can get the training that I need to use my injector and the meds. Thankfully both the neurologist's office and the treatment center are in the same building  ;D .
Title: Re: Positive power/prayers
Post by: Rani Zemirah on February 23, 2009, 10:19:53 PM
I'm glad you're feeling better, now, but it's awful that you had to suffer through all of that because your meds were delayed! Hopefully things will start to improve more rapidly, now! Find whatever works to keep your spirits up, dear, and rest when you need to!!! We'll always be here for you when you need us...
Title: Re: Positive power/prayers
Post by: lordwriothsley on February 24, 2009, 03:18:42 PM
Celtic Lady that is such wonderful news that you are feeling better now, but like Rani said it was a shame that you had to suffer like that before feeling better. You still continue to be in my thoughts and prayers though.
Title: Re: Positive power/prayers
Post by: Celtic Lady on February 24, 2009, 07:20:22 PM
I had the second IV treatment today. I'm still feeling good and my speech is still good. I feel like a pincushion. Yesterday I was poked 3 times before they were able to get the IV in me. I wanted them to leave it in so I wouldn't have to go through all of that again but just before the treatment ended it started to become uncomfortable. Today, it took 4 attempts before they struck blood... literally. Again I wanted to keep it in and again it became uncomfortable. Soooo, it looks like I'm getting poked again. Thankfully it's my last treatment.
I noticed that when I'm tired my face and eye lids tend to droop.
After my treatment I saw Nurse Edna (my neurologist's nurse). She gave me my lesson on how to use my meds and the injector. She gave me my first dose as well. I waited there for a few minutes to make sure I didn't have any reaction to the meds. The worst reactions I could experience are chest pain and difficulty breathing... usually happening 15 minutes after the injection and lasting up to 30 mins. although my sister had a reaction that lasted more than an hour.
Title: Re: Positive power/prayers
Post by: Lady Amy of York on February 24, 2009, 07:37:38 PM
I read your post about your hard time getting poked. How often are you suppose to ge a IV?  I  am  sometimes a hard stick, and have been told  sometimes  by nurses that i may want a permanent shunt( spelling ) put in me to make it easier to give  blood or  receive  meds.

You are in my thoughts  and  prayers.
Title: Re: Positive power/prayers
Post by: lordwriothsley on February 25, 2009, 03:27:05 PM
I'm glad things are still continuing to go well for you however I'm sorry that you had to be stuck so many times in order for them to draw blood.

You still continue to be in my thoughts and prayers though.
Title: Re: Positive power/prayers
Post by: Celtic Lady on February 26, 2009, 12:38:01 AM
Today was my last dose of steroids for my recent relapse. Thank God they are over. My veins didn't want to cooperate and now I'm full of bruises from trying to find vein sites to get the IV to work. sigh... darn body. Anywy, I'm walking better and my speech is better, too. At work it seemed to me that i was able to move my fingers a bit faster although I still have the tingling numbness esp. in my right hand. My left hand seems to have less of the tingle now so here's hoping and praying that it's on the mend. The right eye is still not fully opened but it's getting better. It still has twitches or tremors but that's ok... not bothering me right now. The droopiness on the right side of my face is slowly getting better but is most noticeable when I'm fatigued/tired.
This evening I gave myself my second dose of my daily meds. The shot itself wasn't bad but the meds were a tad bit stinging after a fashion. Feels better now though. We'll see how all this goes with mending. Who knows.... maybe I'll regain my right hand.  ;D
Title: Re: Positive power/prayers
Post by: Lady Amy of York on February 26, 2009, 12:53:57 AM
wishing you continued sucess and healing hon ! :)
Title: Re: Positive power/prayers
Post by: lordwriothsley on February 27, 2009, 06:41:28 AM
Likewise, may God be with you as you continue to heal and mend from this recent illness of yours.

Hugs to you!  :)
Title: Re: Positive power/prayers
Post by: Celtic Lady on March 05, 2009, 08:34:25 PM
Just checking in with everyone. I've been on my now a whole week plus a few days. Today was absolutely great  ;D . I got up early so that Morgan and I could run an errand before I had to leave for work. I've been sleeping pretty well lately and that seems to be helping me. The past couple of days I've had tons of energy with today being the best. I'm walking without difficulty and my speech is pretty normal. The only time either changes is when I get tired. My hands still have the tingly numbness to them but I'm regaining the use of them. As for my face and the "droopiness" and tremors things come and go. When I get tired my face tends to droop and the tremors around the eyes get worse. Other than that things are starting to get better.
Title: Re: Positive power/prayers
Post by: Rani Zemirah on March 05, 2009, 11:34:33 PM
I'm so glad you're feeling a bit better now, CL, and you're getting into your treatment routine. I'm still thinking about you, and sending you healing energy, loving thoughts and positive prayers, so remember the magic coming your way from all of us, ok? Take care of yourself, and get your rest!

*HUGS*
Title: Re: Positive power/prayers
Post by: Peddlin on March 06, 2009, 06:53:24 AM
This is wonderful news! Now, just don't overdo. Take care of yourself, and get plenty of rest. We are all thinking of you.
Title: Re: Positive power/prayers
Post by: Lady Amy of York on March 06, 2009, 01:58:10 PM
So happy  that  you are making  progress !  You continue  to be  in  my  prayers  and  thoughs !
Title: Re: Positive power/prayers
Post by: lordwriothsley on March 06, 2009, 02:34:23 PM
Huzzah! That is such wonderful news Celtic Lady.

You still continue to be in my thoughts and prayers.
Title: Re: Positive power/prayers
Post by: Seryn on March 11, 2009, 06:37:07 PM
So glad to hear this!  I am keeping you in my prayers :)
Title: Re: Positive power/prayers
Post by: Celtic Lady on April 03, 2009, 06:07:19 PM
Hi all. Just checking in and updating.
I've been doing pretty well since the last time I posted. However, today I'm having a small set back. I called the doctor about it and talked with his nurse. She told me that it was too soon for more steroid treatments but would check with the doctor. When she called me back she said that he told her I couldn't have any IV treatments but to let them know if I get worse or something changes/is different. So that's what I need to do. They said that if I'm tired or have any kind of infection... even a cold... that it could make the symptoms come on stronger  :(. sigh

Tonight I'm going for a sleep study.... I'm keeping my mouth shut about how I feel about it :-X. Don't like the masks... feels like I'm suffocating. Plus I'm a stomach sleeper and a mouth breather. The masks don't work real well for my kind. Grrrrrrr.
Title: Re: Positive power/prayers
Post by: lordwriothsley on April 05, 2009, 02:23:52 PM
Celtic Lady I'm glad to hear that you doing alright but am sorry to hear of that little setback you had. You remain in my thoughts and prayers as always. I will also be saying a prayer for you that things go well on your upcoming sleep study. Please keep us posted on how you are doing.

Hugs and lots of love to you lass.
Title: Re: Positive power/prayers
Post by: Celtic Lady on April 05, 2009, 04:01:24 PM
Well the sleep study is over and I just have to wait to hear from them as to whether or not they want me to come back in for another but with the CPAP machine... (yuck). Don't know how fair the study is as I can't say I slept all that well. I was aware of the wires and felt restricted because of them. On top of that the bed was very firm, the room too quiet, Sir Morgan wasn't there, I had to wear something to sleep in, had to be ready to sleep before my normal bedtime, and then there was the voice on the intercom at times... all of which is not normal to my usual sleep.
Anyway, the tech told me that I did sleep without trouble and that my oxygen levels were fine. He said that he'd be surprised if they had me come back.
Title: Re: Positive power/prayers
Post by: Celtic Lady on May 06, 2009, 09:01:19 AM
I got the results back from the sleep study. They said that since I slept mostly on my side/stomach that everything was ok although I do have some sleep apnea when I'm on my back. At the moment it doesn't warrant a machine.... thank goodness.

On Monday right after my nightly injection I had a reaction to it  :(. It was almost immediate. My upper lip felt as if were burned (like with chapped lips) and it swelled up. My face turned red, I became itchy on my upper back and between my fingers. I felt real strange but needed to be in the bathroom for some reason. I started feel nauseous after I got there. After sitting down I started to feel dizzy and almost as if i was going to pass out. During that time my hearing got very dim and I could barely hear anything. I tried not to panic as I knew that it would only make things worse. Thankfully Morgan was home. We were both aware that this could happen so that helped with keeping calm. I called my doctor yesterday about it and told them everything that happened. He said to take my shot that night and if there was a reaction to call in the morning and he would see me.
While were getting ready for bed Morgan noticed a pretty good sized bruise on my arm where he gave me my shot the other night. He remembered there being some blood after giving me the shot. He thinks that maybe there was a bloodvessel there that was hit and the medicine injected there and it spread too quickly throughout my system and that was the reason i had the reaction.
Title: Re: Positive power/prayers
Post by: Lady Amy of York on May 06, 2009, 01:40:24 PM
Wow  girlfriend ! It sounds  like  your  system got  too much of  the  medicine  at once  or  else  you had  a  severe allergic  reaction  which can be   very scarey, I  know,cause i have  had it happen  to me.Glad  Morgan was home  with  you and that  you are okay.

So happy you don't need a machine  for  sleep apnea.   Yea  !  :) :)

Title: Re: Positive power/prayers
Post by: Celtic Lady on June 29, 2009, 09:58:10 AM
Well it happened again. I had another bad reaction to my meds last night. This one was over rather quickly though I spent most of the night shivering and feeling very cold. Morgan was home (thank Goodness). He told me that I was really warm despite me saying I was freezing. Right now I'm just waiting to hear from the doctor about the reaction.
Title: Re: Positive power/prayers
Post by: lordwriothsley on June 29, 2009, 05:46:48 PM
I am sorry to hear about the bad reaction you had to your meds last night CL. As always you continue to be in my thoughts and prayers m'lady.

Hugs to you and God Bless you lass.
Title: Re: Positive power/prayers
Post by: Lady Amy of York on June 29, 2009, 06:13:36 PM
Sorry to hear about your  bad night girlfriend.  Glad  you called  the  doctor. Hope  you hear back  soon.   
A suggestion.. this  is something I learned  from personal experience ....   Go  to your bookstore  and get  yourself  a  reference book  that list  all  the prescription drugs  out there and  their  possible   side  efects or  reverse  reactions.
    I have one that  is  a copy of   a nurses    handbook  for  prescription  drugs. It has  saved my life  more  then  once.     When ever i was put on a new  medicine  i  look it up in that book.  One time i had a bad  reaction  to a pain med  i was on, and i  looked it up in the book  and  found  the cause  right away.  The pain med i was given  did not  interact well  with  some other meds i was  on.
So get  yourself  a  reference book, cause i have learned that  doctors  sometimes prescribe  meds  without  even  checking  what other meds  you are on, etc.
Title: Re: Positive power/prayers
Post by: Celtic Lady on June 29, 2009, 07:59:07 PM
Thanks Amy and Lordwriothsley. Last night was rough more so because I was so cold despite Morgan telling me I was very warm. I slept very tight trying to warm up and because of that my joints were quite stiff today. The doctor said to try the medicine again tonight and see what happens. It could be something that will happen every so often with me.

As for meds reacting badly with one another, I'm only on my MS medicine and ibuprofen when needed. No problems there.
Title: Re: Positive power/prayers
Post by: Lady Amy of York on June 29, 2009, 11:19:35 PM

It sounds like  a  couple  things  could have  been  going on.

1.
a   reverse  reaction  to the meds.  It deffinitely sounds like  your body  is having a hard time handling  the  medicine  you are on.
  I hope  I am wrong, and  that you have  a better night  tonight, if  not  i  would  deffinitely get on the phone  with  your  doctor  right  away.

2. The meds are working  for  you and are drawing out  the so called  toxins, bad stuff  in your body that is making you  sick,  thus meaning you are sweating it  out, and it is making  you  cold.

3. Your immune  system   and body is being attacked  by something  right  now.  I have had it  happen to me.  Whenever i get  a  real bad case  of  the  chills i  know  my neurolgical symptoms, etc, are starting to act up again, or  I  am  coming  down  with the  flu  or  something.

4.  Hormones.  Have you had  your  thyroid  check?    some people  with  thyroid  problems  experience  the  chills  alot.

5. you got  yourself  overtired, cause  sometimes  when i get  really tired  i canot get warm  for  anything.