Well, I will be having my discogram tomorrow. After that I have to go back to the the back surgeon who I will see May 30th. It will be determined then what will happen with me.
Sir Dragon's chemo is on hold until his oncologist and his gastroenterologist come to some sort of agreement of what is next. Both his colonoscopy and upper GIw/small bowel series came out ok but he is still unable to keep much down and in massive medication controlled pain. There are a couple of things theycan look at but the cancer doctor has to ok them. We should have an idea of what the plan will be next Wednesday.
Our prayers are with you from the wRenHouse! Do keep us informed of how things are looking.
lighting a healing candle for you both.
candles for you both.
Sending prayers, positive energies, good thoughts and healing vibes to Lady Glorianna and Sir Dragon. :)
Our prayers are wth you for good health and sound bodies be restored to you and yours!
Prayers and healing thoughts from our clan.
Prayers and good thoughts are headed your way.
Well, my back is killing me, I Hate discograms >:( The doctor that did it told me that it confirmed that the disc above my fusion is the culprit for my pain. Now what that means in terms of what is next I will not know until the 29th.
On Sir Dragon's front, we got two I guess you can call good news: a)we finally got his claim for social security on track and b)we got a letter from the lawyer that they got all the medical records and that we should get an answer in about a month.
Praying for you both. Keep positive. Peace and blessings
The two of you are in my thoughts and prayers.
Prayers, candles and warm, fuzzy thoughts all going at the same time.
latest update:
Looks like Sir Dragon will start the new round of chemo next week, most likely Friday May 30th. This round will be a bit harder as it will be a bit stronger and will require weekly treatments instead of bi-weekly.
so so sorry for all you are going through. my prayers are with you both..LF
Thinking of you both and sending Healing thoughts and prayers.
Light and Love,
Morgan
I am truly sorry for all that has happed to you both. I will be praying for you. peace I will pray for you, I pray that healing will come your way. Allow your faith to reach out and grab hold of all you need at this time.
Sir Dragon is not holding on to either food or meds. We have tried several things (saltines. gatorade, soda, baby food, broth, bland simple foods, etc) and nothing seems to work. He just told me that if he is not better by tomorrow, we were headed to the hospital. He is scheduled to begin chemotherapy next Friday. Please pray that his system calms down enough to start treatment as this is a consequence of the cancer. He just had an upper gi series w/small bowel and a colonoscopy and all came out well so we know that it is not his digestive system.
Sending thoughts and prayers.
Thoughts and Prayers are with you, I'm lighting a Big candle for you. BLESS YOU BOTH.
Both he and you are in my thougts and prayers. Looking forward to see you both at MDRF opening weekend!
He made it through the weekend but tomorrow is doctor day. He called the gastroenerologist and has secured an appointment for tomorrow at 9. He also has an appointment with the oncologist for 11:45. We are packing a bag and taking it with us in case he is hopitalized by either of them.
You both were in my thoughts with your absence from the RenDevous. You're in our prayers at the wRenHouse still, thank you for keeping us updated.
** Latest Update**
Sir Dragon was not hospitalized. It was decided by the doctors that he would get fluids at the chemotherapy center today, an endoscopy and another session of fluids tomorrow and if all goes well, he will start chemo on Friday. Since he cannot take pills, the doc prescribed a patch in order to help with the pain.
Your are both in my prayers, keep positive. Peace and blessings.
Today has been quite a day
They found a "high grade obstruction on the duodenum from probable extrinsic compression from tumor, cannot rule out invading tumor." He has been referred to a surgeon for a stent placement. Meanwhile he has to remain on a liquid diet until all of this is solved and none the less he will start a new round of chemo tomorrow.
As for myself, the discogram was positive. Due to several mix-ups/misunderstandings the doctor would not give a definite diagnosis but seems like I am headed for more back surgery, Will know more when I see the doctor again on June 19th.
I am so sorry to hear that both your issues continue to worsen. You both are in our thoughts and prayers and we look forward to seeing you again soon!
I'm sorry for all the medical things you both are having to deal with. You are in my prayers.
I will keep you both in my prayers.
You are both in my prayers...(http://smileys.smileycentral.com/cat/17/17_1_10.gif)
Chemo went well on Friday. He is to go to the U of MD Medical Center in Baltimore this Tuesday for the stent placement.
Ya'll are both in my prayers.
My BIG candle is still burning for you both. Pray some kind of good news comes your way soon.
Blessings and prayers are with you both.
Jezzy
Stent has been placed. Things went well. He is now just trying to get used it and chemo which this time around, he has to get every week. It is too early to tell, but it seems like chemo at least helps controlling most of the pain and to halt most if not all the complications.
Awesome news! Cant wait to see you two again ... Duclaw's Wednesday maybe?
Many thanks to all for your prayers and well wishes. Scotsman, possibly. It all depends on how I feel.
Sending prayers of comfort and healing your way for both of you.
Got I guess somewhat of a good surprise: looking into our accounts I guess I got approved for social security disability. With all the advertisements for lawyer services and after talking to several people who emphasized that 99% of applicants get denied the first time, I had thought that I might have to fight SSA too. Guess my doctors painted a pretty grim picture and got me through the process.
Thats wonderful news. That could take some stress off of you, my husband had a year of fighting with them before his attorneys had any success. Prayers are with you and your lady. God Bless.
I came across this poem today and thought i would share it with you.
What Cancer cannot do........
it cannot.....
invade the soul
suppress memories
kill friendship
destroy peace
conquer the spirit
shatter hope
cripple love
corrode faith
steal eternal life
silence courage
You both continue to be in my thoughts and prayers ! :)
Well, it is now official. The disk at L3-L4 is screwed up and in my doctors's opinion, conventional therapies will do nothing to solve the problem so his recommendation is more surgery. This time around they would have to go in either through the back or through the side. Although he has vast experiences doing surgery, if I agree to the less invasive side surgery, I would the the first patient he does said style of surgery to. Of course, all of this if workman's comp approves all of this. They could still say that I need to to go through other therapies before they will approve surgery. We just came back from the doctors and Sir Dragon is feeling miserable so needless to say we shall discuss this further later. I'm a bit bombed because again my participation at MDRF is being messed with and we were both so looking forward to it for many reasons from it is therapy to us righ through this might be Sir Dragon's last time at MDRF.
I'm so sorry to hear this . I feel so bad for you guys. I know how it is to go for years living in pain. No fun !
I'm sorry you have to have more surgery on your back. I would deffinitely see if they can do it from the side then go through the back. When i had my surgery to remove my tumor, they went through both the side and back.
The back incisions hurt, but the side one was not too bad. Maybe you can find someone who is experience with doing the less invasive .
Have you considered looking into laser surgery? My cousin who is a operating room nurse told me there is something called a Gamma kinfe, ( i think that is what she called it ), that is very inavasive, and you barely feel a thing she claims.
Soory to hear Sir Dragon is feeling poorly. I Hope you two will both somehow beable to go to faire. Don't give up hope. I know easier said then done, but miracles do happen !
Hugs and prayers to you both ! :)
You both continue to be in my prayers! I hope worker's comp doesn't keep you waiting too long! I know what a headache they can be. Hugs!
My prayer are with you both, I pray for you to believe for the impossible because when you belive for the impossible, the impossible becomes the possible. hold on to your faith and don`t let it go, I know it is hard to keep looking for at the bright side things, but keep looking at the bright side of things.( the fact you have each other to hold, your family, your dreams, your passions, the love you share with each other these are the things I wish for you to look at) when we allow ourselfs to just see all the bad we can get very depressed, so look at the possitive things that are going on right now. I know they might be few, from your stand point; but find if you can good things and look at. The good things will help pull you through the bad times. The good things can be streams of water in the desert times.
Well, we heard from the lawyer and it looks like the @$#&%$# doctor will get away with what he did to Sir Dragon.
Follow up with a formal complaint to the State Attorney General, give him copies of all your information and what the lawyer did too. Something has to be done to correct this injustice. Still praying for your both.
He had chemo on Friday and things are we are still trying to get adjusted to his reactions/cycles. We need to get a handle on things sonn as we start rehearsals for MDRF this week and also there is the benefit where he will be a VIP (details at http://www.renaissancefestival.com/forums/index.php?topic=2081.0)
Well, after tha last chemo last Friday, they found him anemic. To remedy this, he had to undergo a blood transfusion yesterday. Things went well but we won't know how well until his chemo this Thursday.
Well someone at my job decided to add more on to my plate. Ever since I "returned" to work back in March, the deduction for my health insurance has been screwed up and to top things off, I did not get paid for the 4th of July holiday. I have come to find out it was because some idiot decided to classify me as a part-time employee. ??? >:(
Since I had used my leave to deal with the back situation in the beggininning and here we are a year later (no reimbursement of leave), I had to request donated leave to cover those days that Sir Dragon has treatment or just plain and simple does not feel well. Seems that some ??? decided to launch a complaint saying that I have been using the donated leave to cover days I take off due to my back and not to deal with Sir Dragon. WTF ??? I had to put a list together and supposedly I could still be requested to have his doctors confirm the dates.
The workman's comp person has at least and at last gotten to the right parties and has started the ball rolling on getting this mess fixed telling me that "Seems to me that the right now the only focus you should have to deal with is spending as much quality time with your husband as possible" and not to worry about this anymore. I guess time will tell....
Don't you just love insurance companies and workmen's comp. Hang in there ! You are both in my thoughts and prayers !
Well, we had to put Sir Dragon's cats to sleep today so needless to say he is a bit down. A new symptom (severe edema) has developed so that is creating al sorts of problems too. Friday cannot get here soon enough (so that we can see his doctor who is on vacation at the moment.
Prayers are with you both.
We still have no answer to the water rention problem which trust me when I say it is happening in the most uncomfortable place. His doctor asked me to give him the rest of Friday and the morning of today to consult about the situation and to call him in the afternoon. I did and left him a message but he never called back. Since his doctor does not work Tuesdays I have to wait til Wednesday. I shall call first thing in the morning.