Positive power/prayers

[Fairyfly]

I hope all goes well for you today! You continue to be in my thoughts! *hug*

[RenRobin]

Wishing postive thought for you and saying many prayers for healing and understanding.

[Peddlin]

Our thoughts and prayers are with you.

[Lady Amy of York]

OH hon,  having  been there myself ( i have  had three spinal taps  )     I will keep you in  my thoughts.    The  most important thing is  too lay  flat afterwards  , and  drink  lots  of decaffeinated  beverages.     This  will prevent the terrible  headaches  you can  get.  although i was  lucky, i only  got    a  real  bad headache  with  one  of my taps, and  that is because e i did  not lay down flat afterwards.

  A lesion on your  spinal cord.  did  they  say what kind  of lesion  ?  I am just asking cause that is  exactly what happen  to  me.   They  found  a lesion on my upper spinal cord.   The  doctor  who specializes  in MS  that i was  seeing  spotted  it  on  my Catscan,   and   then  refferred  me  to an  Thoracic  surgeon.  and   My lesion  ended up being a noncancerous  tumor   that  they were able  to remove   this  past spring.  So  maybe  yours  is  not MS  and is   a  noncancerous  tumor  or  cyst .

wishing  you the  best !  Love  and  hugs  !

[Celtic Lady]

Thank you all so much. The spinal tap went well and right after it I was told to go to my neurologists office when they were done with me/i was ok'd to leave. I did and the neurologist wanted to start treatments right away. I am having a totall of 3 treatments... today, Saturday, & Sunday. After that then we wait until Feb. 4th when I see him with the results of the tap.

I've been laying flat pretty much all day. They gave me a list of things to do if a headache should start. one of them was to caffeinated drinks as this helps to narrow the blood vessels.

Sir Morgan was still upset that he couldn't be here for me. I made him realize that the sooner we get this done the sooner we get the results and that the sooner we get the results the sooner we can start treatments for the long haul. The treatments that I'm getting this weekend are just for treating the symptoms. He wanted to know everything so he called my neurologist to get answers. Of course they couldn't give them to him as he doesn't have permission to get them... that's gonna change though.

Anyway... that's what I know for now. Will keep you posted on future happenings.

[Fairyfly]

I'm glad to hear things went well today! You and Sir Morgan will continue to be in my thoughts hun! *HUGS*

[lordwriothsley]

Hunny I'm so glad that the Spinal Tap went well for you the other day.Just remember to continue to do what the doctor tells you and before you know you will be back to your old self again.   You and Sir Morgan will continue to be in my thoughts and prayers.
Hugs to you!

[Celtic Lady]

It's been awhile since I've checked in. Not too much has changed since the spinal tap and the treatments. I have been able to raise my arm up without it feeling heavy and wanting to flop down and I haven't been as tired. Friday night I started having a bit of tingling in my fingers on the left hand  . It hasn't gotten any worse than that but it's still there. Thank God I see the neurologist on Wednesday. Anway, that's about it. I'm just taking one day at a time  .

[Rani Zemirah]

Oh, my dear, I'm so sorry I'm late on this thread! I had no idea any of this was happening with you, and I admire you courage and ability to go on as though everything was normal in all of the other threads you post in! You are an inspiration to this one who seeks it in all possible places!

I will be sending you prayers of healing and thought's of loving support during your trials and treatments, and everyday, just because it can never hurt! You have such a wonderful attitude, and looking to the positive will help more than many things! Blessings to you and yours, gracious Lady!!!

[lordwriothsley]

That was very nicely said Rani. I totally agree with everything you said and I will even second you on it as well.

[Celtic Lady]

Today was the visit with the neurologist today to get the results of the spinal tap. He told me that the tap revealed that the levels of certain indicators in the spinal fluid (I can't remember what he said they were) were quite elevated. He said that alone they could indicate a number of different problems but since there were symptoms and other test results, all of them combined point at MS. We talked briefly about some theories on why it happened, what to expect throughout my life with it, and different treatments. He also told me that he was going to be leaving the practice and that his colleague who specializes in MS would be my new neurologist. Sooooo.... tomorrow I will be picking up a bunch of info on four of the treatments that are offered and when I meet with the new doctor on the 16th we will decide which treatment I will be starting.

Other than all that I'm doing better. My left hand still has some tingly numbness in the pinky and surrounding area of the hand and the right is still pretty much completely numb/tingling. I'm learning to cope with with it while i'm typing and writing... it's not too bad but my hand and forearm do get tired at times. There are times where i get angry because I can't feel things that I'm trying to get out of my purse or I can't get out of the seatbelt because I can't feel the button or have the strength to push it. Sometimes while getting dressed I get angry (esp. when I'm in a hurry) and scream.... simply because I can't feel things. I get over it.... eventually.....lol. Anyway, I'm doing ok right now.

[Lady Amy of York]

OH hon, I'm so sorry.  But if  there is  any  goodness out of  this, it is  that  you  finally know  what is   going on, and  what is  causing  it.   I know  from my own research on MS, , that there are alot of new  and  promising  treatments  out  there.    You are in  my  thoughts  and  prayers.
        Ah, yes  the numbness  and  tingling. I can relate  very well to that.  It is okay to scream.  There are days, when i get up in the morning  and  the  numbness hit  me and I just feel like screaming .   So anytime  you have  a bad day just renmail me  and  we can scream  and  vent  together  hon  !     
  And  don't hesitate  to ever ask  for help   when the  numbness gets  bad. 
    Hugs  and  love  to  you  !

[lordwriothsley]

Sweetheart like Amy just said I to am glad that you were finally able to find out what is wrong with you. Even though I have never experienced what you are going through right now I can only imagine what the tingling and numbness must feel like right now. However I am glad that you are learning to cope with it. I know it gets frustrating at times but at least you know that you have some well trained doctors out there who know will take good care of you and send you on the right path on your road to recovery.

You still continue to be in my thoughts and prayers sweetie.

Hugs to you! 

[Celtic Lady]

The best way to describe the tingly numbness is the way your hand feels after it has gone to sleep for some time. Not only does it feel odd and but you don't have too much control (in the case of the hand falling asleep) of fine motor movements. I don't have the pain that accompanies sleeping hands, though.

Today, I picked up four books from the neurologist. They contain info regarding MS and the different kinds of treatments of it and what to expect of them (good and bad). I have lots of studying to do before the 16th.

[Rani Zemirah]

I am so sorry to her this news, my dear, but I'm so glad you're being so proactive in pursuing your treatment and care! I am sending all the healing energy I possess to you, and loving thoughts and prayers for comfort and positive outlook! Take care, and take time to adjust to changing circumstances... We're all here for you!