prayers,hope,faith.....

[Lady Amy of York]

Update Monday March, 9

Hi everyone. I am Amy's husband. Amy had kind of a bad epsiode  today, so I am asking evryone  to keep her in your  thoughts  and prayers. I know how highly she talks of  her friends  on here.


  anyway  she  was  fine  over the  weekend, but then this  morningshei had  another  relapse. She woke up with  the worst headache she ever had.Although i don't know if headache would  be  the  right word. She described  it like  extreme pain on the  right side of  her face, and  then it felt like  someone was taking their hands  and  pressing down real hard on  the  back of  her head.  She needed  to use  the  bathroom  and  when she went to stand up, everything turned  pitch black on her. She says  she could  hardly see.  Our son was  awake  and he  wanted  the TV  turned on.  She  claims she could  hardly pick up the  remote  for  the Tv. She was shaking hard and  felt like she was  going to pass out.
  She  called  me  home  from work then.
   When I got here, she was shaking all over,a nd her hands  neck and  back felt numblike.  I asked  her if  i wanted to go to the  emrgency room, but when she went 2 weeks  ago  by ambulance, all  they  did was hand  her  some  pain meds  and  then discharge her, and  billed me  for  a huge amount.
      So I  contacted  the MS  clinic in Rochester, New York that she had  been too,a nd talked  to the staff there. They had  her records  and  previous tets  on  hand  still. The  doctor  did not feel  that her case is MS realted, atleast not based on  the previosu tests  from 2  years  ago, but he  did feel that her current symptoms  deffinitely were cause for  being seen  by a general neurologist  as  soon as possible.  So they were able  to get her  in on a emergency  basis  for  this Wednesday. I know  she  does not feel up to a long  car ride now  probably, but i know she is  willing to do whatever  it takes.
  She  will probably shoot  me  for  posting  this, but as i said i know  how highly she  talks  of  evryone  on here, and  I know  how  your comments, thoughts  and  prayers  are really appreciated  by  her.
Please  don't try to call her right  now, cause her sppech is  abit slurred  right  now, but i am sure she would love  renmail.
   Will keep you posted.   
   Thankyou everyone !

[lordwriothsley]

Like I said before thanks for the update my friend. Please keep us updated and please let Amy know that she remains in my thoughts and prayers.

Please send her this hug from me as well.

HUG!

[renren]

Thanks for the update!
We'll all be praying for her, sending positive thoughts, and renmails!

[Rani Zemirah]

Let her know we're all thinking about her, and sending love, hugs and prayers!!!

[Lady Amy of York]

Hi evryone..this is Amy. I'm still pretty shakey so excuse  my typing. Oh my gosh, i did not realize  my husband  had  posted. He did not say anything to me.  What a shock , when i came on here.  I know  he is  pretty worried about me.
Yea, I scared evryone  today, including myself. It was not good.  I literally could not see a thing, and  then i blacked  out for  afew  minutes. Pretty scary experience, and  then i would not stop shaking all over, and my hands  and feet were like  ice to touch.  So as my husband  mentioned i have an appointment wednesday with the neurologist.  shall start there and  see what happens. Also have a name of  a orthropdeic  doctor  and  a  endrocrinologist.  taking it one  step at a time here.   I just want this  behind  me  once  and  for  all, for it is  not avery pleasant experience  especially when i start  with the  tremors.  And  the passing out is  not fun either.

Thanks  for the love  and  support, and  prayers.  Love  you guys !

[Lady_Glorianna]

Amy, just hang in there! ;)Hopefully tomorrow you will get some answers if not that and some means for relief

[Lady Amy of York]

Yes, i am hoping i get some  answers  tomorrow. I  am still having  the  numbness, and  shakes  today.

This has  been going on  long enough with me.I was  so hoping when we found  the  tumor on my spine  last year and hadit removed that was the  answer, but apparently not.
So yes, hoping we  can get some answers tomorrow or atleast get the ball rolling, cause i am anxious  to get my life  back to normal gain, plus i have  to admit  that i can't help feeling awkward and  embarrass at times, at how long this  has  been going on  with me.  With all my symptoms, etc, I don't want anyone  to start thinking I am a hypercondriac(spelling ?)  or  attention seeker.( ( not that anyone  on here has  said  anything to me, but i had one  so called friend  that did )   Far  from it ! I  don't like passing out , and  shaking all over,  or  seeing the  worried looks on  my husband or  son faces.

    No, i will be glad  when i get to the  bottom  of  this. I tell you  i  could  write  a book  on  my medical history. I has  not beeen a dull one  !

- Born  with a very mild  form of cerebal palsy that affected my balance  on  my  left side.

-had several strep infections  as  a child  that led  to me  having  my tonsils  out

--had  bad, bad case  of  chicken  pox

-broke  my ankle  three   times

-broke  my collar  bone

-broken  wrists

( joys  of  horseback  riding  and  sports )

- dislocated my shoulder

--spent a year on intraveinous antibiotic treatment   for  Lyme  Disease

-- shatterd my knee cap and  had  surgery  on  it

-had surgery  to repair a torn shoulder

-had  preeclampsia  and  toxiemia   during  pregnancy

-had  emergency  c-section

--had  a botched  up spinal tap  where i leaked  spinal  fluid

--had  a lung  biopsy

-had thoracic  surgery  to remove  tumor  on  my spine  and  near  my  heart

-diagnosed  with  type  2  diabetes  and  asthma

Need  I  say  more !  Sigh  !

My husband  likes  to tease  me.  He  says  when you buy an  expensive  horse you have  it vet checked  first  for  conformation, health,  and  soundness.  He says  that what he  should  have  done  with  me !  Har!  Har  !

Thankyou evryone  for  the  prayers  and  well wishes. Means alot to me  and  my family.  Yes, hopefully  this  will be  the  year  that  we  finally  get  to the  bottom of  all of  this !I want to be  back on  my feet  and  feeling well  by summer !

[lordwriothsley]

Amy don't ever feel like you can't vent on here. That's why we are all here to listen to you when you need someone to vent to. I will as always continue to keep you in my thoughts and prayers though.

God Bless you hon and please keep me updated on how you are doing as well.

[Lady Amy of York]

Thanks Lord W. Well i leave in a couple  hours  to go see the neurologist in Rochester, New York.  Hopefully we can get some  postive  results  an d get  the ball rolling  and get down to what is  causing all of  this.  Talk to you when i get back .

[RenRobin]

You are in my prayers Amy!  Stay strong!

[Taffy Saltwater]

Don't let the doctor blow you off - you need to find out what's happening to you and have it resolved.  Best of luck.

[Rani Zemirah]

Great luck, dear!!! Don't let them put you off!!! Kick some booty if you have to, ok?!? Praying as hard as I can for you, Amy!!!

[Luciana]

Good luck my dear. I hope you'll get the answers you need. You are in my prayers.

Hugs!!

[Seryn]

Good luck hon.  I hope you are able to get some answers and some relief from your doctor today!

[white trillium]

Stay strong, we are all waiting to hear what the doctor said.