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Please Pray for TigerFairy!

Started by Fairyfly, October 21, 2008, 09:40:01 PM

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Fairyfly

I got a phone call a little while ago from my sister. My Daughter, Phoenix was in the hospital all day. They rushed her there this morning and she was diagnosed with Type 1 diabetes. I don't know what it means, but her blood sugar was over 500. All I know is that is a bad thing. She's going to be in and out of the hospital for a while from what I was told. And I'm sitting here going out of my mind!

Please pray that she is ok!
EtteMum
TaskMistress of the Bayou Scoundrel's
Fae'N M'Crack... or at least working on it.
Rani's Divine Whip

Amras Elfwine

You got it, love...a pretty gold candle now merrily sending warmth her way!
HUGS!
R/F member since 2004
"They say that men who go warring afield look ever to the next hope of food and of drink." ~Tolkien

"Who are you callin' plushy??" ~ Todd the Squirrel

Hibernian

The little one and her Mom are in our prayers this night.
"Badges? We don't need no stinkin badges!"

Fairyfly

Thank you so much! They got her stable and let her go home after being at the hospital all day. When they took her in this morning she was really pale, and her lips were blue. Her blood sugar level was really high. So she's got to go back to the hospital for testing every few days for the next two weeks at least.

I'm going nuts being so far away from her. I'm going out there as soon as I can. I wish it was now, but I just don't have the money yet. Please keep her in your prayers, and add a couple to the gods of gas money for me.

She's so scared of needles and things like that and she spent the entire day getting stuck with stuff. I know my sister was with her, but it's just not the same as Mom being there. I don't know what I'd do with out all of you! Thanks so much to everyone who has gotten in touch with me and let me cry on your shoulders! It means so much to me to know that I'm not alone! *HUGS*
EtteMum
TaskMistress of the Bayou Scoundrel's
Fae'N M'Crack... or at least working on it.
Rani's Divine Whip

renren

Sending lots of healing thoughts and prayers you way!
Please continue to keep us posted.

How old is she?
Renren
Wench  #  3783
Treasure Guardian and giggling interrogator of the "Feisty Lady"

Guppy # 32 ROoL

Fairyfly

Thanks RenRen. She's 7.

Last night they had to call the dr twice because her readings were too high. They had to go to the clinic this morning and have her retested. From that they changed her doses and schedule. She's staying in the high range pretty consistently right now. She's out of school & KinderCare for the week. She REALLY hates doing the testing all the time. It was a real blow for her when I had to correct her thinking that when we move back this way she won't have to test any more.

I'm going to be moving out there. But there's a slight kink in the plan. {Isn't there always...} My Sister has to talk to their landlord but isn't too optimistic about him letting me stay there for more than two weeks. And they are convinced that I can't bring her home here now because my sister and her hubby think I can't handle this by myself. So, I'm in shock, confused, what to see my kid and be there for her, but life isn't playing fair. Happy thoughts are REALLY appreciated!
EtteMum
TaskMistress of the Bayou Scoundrel's
Fae'N M'Crack... or at least working on it.
Rani's Divine Whip

Tygrkat

Sending all sorts of strength and good thoughts your way...
50% Endora, 50% Aunt Clara.

Fairyfly

I had the hardest conversation with my daughter yesterday. She went in her bedroom where my sister wouldn't hear her, and asked me if I have diabetes too. Then the harder questions started. Why did this happen to her? What did she do wrong? Trying not to cry when she started crying was impossible. It was hard to explain about dna and genes to her. But we got through it and she said she felt better afterward. But I can tell she's putting on a show for my sister. As soon as she walked back into the living room she was acting all happy, laughing and silly again.

Wednesday I fly {pray for me I hate flying} out to see her for a week and a half. We both really need it.
EtteMum
TaskMistress of the Bayou Scoundrel's
Fae'N M'Crack... or at least working on it.
Rani's Divine Whip

lordwriothsley

FairyFly you and your little girl are in my thoughts and prayers sweetie.
Irish Penny Brigade
IBRSC# 1584
Part Time Noble
Full Time Rogue
Overall Ren Geek
Man of many names
"Did I say that"

Rani Zemirah

Oh FairyFly, I'm so sorry to hear this, and of course I'm sending prayers and healing energy! I know how scary it is to find out you have diabetes and I'm an adult, so I know you're baby girl must be frightened, but she knows you love her, and are doing all you can to get to her!

Diabetes can seem like such a terrible thing when it first hits, but it's extremely manageable, especially when the parent/s are motivated by love and necessity. Once you get a handle on the process it will start to get easier, or at least more automatic, and there have been lots of advances in diabetes research the last few years. It's really all about counting, and you will be taught what to count and when. There are also lots of new testing methods that use the tiniest drop of blood imaginable, and many of them cause very little pain, especially the forearm testing kits. Finding the best method is something you and your daughter can research together, and that will help her to realize that you are in this with her, and she can always count on you to help her through it. You're in for quite an education in the next few weeks, but once you all get your daughter's glucose levels evened out things will start to return to a more normal pattern.

I have faith that you can handle this, FF, and that your daughter will be fine. I will keep you all in my thoughts and prayers!

Love and light,
Zemirah
Rani - Fire Goddess

Aut disce... aut discede

Fairyfly

Thanks so much! It is very scary for me. I'm not one of those people who handle needles very well. I'm the kind that sees a surgical needle and gets lightheaded, cold sweats, turns grey and sometimes passes out. lol SO, getting used to handling those things, let alone sticking my daughter with them is going to be a HUGE challenge for me. I haven't ever been able to watch a needle going into the skin without feeling sick and turning away. I'm so scared because I can't turn away when I have to give her an insulin shot. What I want to do is find somewhere to get the type of needle I'm going to have to use on her and start practicing with an orange and water just to get used to the concept and stop turning grey. Me not doing well with the needles will not help her one tiny bit, and I don't want to make her more scared then she already is now. I plan on watching, as best I can, her getting her needles when my sister and her husband give them to her while I'm out there.

She was scheduled to come home at the end of Nov. But that probably won't happen until around the end of Dec, or beginning of Jan now. I'm trying to find somewhere to learn what I need to learn and to take a class her Dr. out there says I need to take so I can bring her home. I've been reading the Juvenile Diabetes web site trying to learn all I can. Doesn't help that my sister is acting like only her and her husband can take care of her now. Making me angry is not helping me to get my nerves back in order that's for sure.

Thanks SO very much for all the support. This has been a bit over whelming at times this week, and probably will be on and off until we get her stable again.

*HUGS*
EtteMum
TaskMistress of the Bayou Scoundrel's
Fae'N M'Crack... or at least working on it.
Rani's Divine Whip

Amras Elfwine

Continuing to keep TigerFairy in our thoughts...as well as you, Mom!

I remember being uncomfortable with the concept of giving shots and starting IVs when I first udnerwent medic training, but you get used to it, and it becomes second nature with time.
You will have to advantage of giving cair to your young one while you do so, and that will be all the motivation you need. You can do it!!

Love ya!
Your Amras
R/F member since 2004
"They say that men who go warring afield look ever to the next hope of food and of drink." ~Tolkien

"Who are you callin' plushy??" ~ Todd the Squirrel

Tygrkat

{{hugs}}

I'm definitely sending thoughts of strength and love, and patience your way...

We have a lot of diabetics in my family, and fortunately, most of the needles I've seen are relatively tiny - I know any needle can seem
daunting, especially when your daughter is involved, but as Amras said, it will get easier..

I'm certainly no expert, but if I can be of help in any way, feel free to ask!

:)
50% Endora, 50% Aunt Clara.

Rani Zemirah

FairyFly, if you can get to the point where you stop seeing the needle and testing as something causing pain to you daughter and instead view it as something that is saving her life, then it becomes easier, and you begin to be grateful for the routine that keeps her healthy. It takes a while to get there, but once you do the whole situation will take on a whole new aspect. Also, your family's diet is going to change for the better, and that will help all of you be more healthy, as well.

It will be very important to your daughter that you can reassure her that you can help her deal with this calmly and rationally, without too much drama or fuss, and I believe you have far more than enough strength in you to be what she needs right now. Also, you are her mother, and you don't ever have to allow someone to push you into the background, not even someone who loves you and is trying to help. You have every right to care for your daughter, and no one can stop you unless you let them.

The needles for insulin have gotten so tiny there is barely a prick anymore, and you will both get used to the process, and after a while it will be just another part of your day. You might call a local pharmacy and see if they sell the syringes over the counter. In many states you can just buy the type you need without having a prescription, so you could start practicing sooner. The class will help you so much in getting over your anxiety and fear, once you start absorbing all you need to learn. It might seem a bit overwhelming at first, but no one expects you to get it all down in one day, so don't let it freak you out! You might try calling your local teaching hospital and see if they have the class you need.

I'm glad you're educating yourself, that's half the battle right there! You'll be fine, and you will learn how to keep your daughter healthy, and knowing you're there for her will keep her happy! Bless you both, sweetheart, and prayers, hugs and lots of love and support coming your way!
Rani - Fire Goddess

Aut disce... aut discede

lordwriothsley

I will continue to pray for you and your little girl FairyFly and especially strength for you as well so you can help your little girl get better.
Irish Penny Brigade
IBRSC# 1584
Part Time Noble
Full Time Rogue
Overall Ren Geek
Man of many names
"Did I say that"